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Covid-19 Vaccine side effects

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Callie
(@callie)
Active Member
Joined: 10 months ago
Posts: 33
 

@ashleyc unfortunately I still have the visual snow and floaters. I also have insomnia so the lack of sleep isn’t helping. I wish I had better news to share. You say you’ve had it 3 months so hopefully you will see improvement over time. 


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Susie
(@lookingforanswers)
Very Active Member
Joined: 5 months ago
Posts: 222
 

@jtall15 awww I’m so sorry that you are suffering as well. 


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CX
 CX
(@centralx)
Active Member
Joined: 8 months ago
Posts: 9

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DrL
 DrL
(@nresearcher)
Active Member
Joined: 8 months ago
Posts: 68
 
Posted by: @medee
Posted by: @nresearcher
Posted by: @medee
Posted by: @nresearcher
Posted by: @carym23

@medee I wish someone could explain why her symptoms are so much worse at night while we sleep. I’m guessing it’s the autonomic nervous system I just don’t understand why it would worsen at night.

The immune system may be more active at night.

"Researchers have found that during nightly sleep, certain components of the immune system rev up. For example, there is an increased production of cytokines associated with inflammation." (from sleepfoundation.org)

So how do I fix this? It used to get cold with chsst tightness during Jan-Mar and now it has started to turn hot with tightness.

I did 10 HBOTs, felt better for just 2 weeks or so and it again started turning cold and then moved to hot.

It really scary. Also I can't breathe and get bad palps

Interesting that hyperbaric oxygen therapy seemed to help, even if it was temporary. Some people may have more than 10 sessions - do not know what the risk-benefit analysis would be.

Based on this, it could be that symptoms are linked to lower than usual oxygen levels. This may happen to some people with long covid also. May be hard to do deep breathing exercises, if that would help at all.

@carym23 had a suggestion below to try to buy a pulse oximeter online to get a rough measure of your oxygen levels at different times. Maybe you could then take this information to a cardiologist or other doctor.

It seems the best thing might be to try to find a cardiologist or other doctor who will take the symptoms seriously and accept that you do not want to take further medication for this, since medication seemed to make it worse in the past. If there is not a good doctor in your area, maybe through telemedicine?

I'd be tempted to contact a functional medicine doctor like Dr. Galland, who may have worked with some patients with vaccine injuries, and ask his advice or ask his office who to contact for advice:

https://drgalland.com/contact/

Also, if symptoms at night are linked to higher levels of inflammatory cytokines at night, then lifestyle methods to decrease inflammation should be relevant: an anti-inflammatory diet and maybe some anti-inflammatory and/or other supplements (maybe magnesium, b vitamin complex?). Not sure if intermittent fasting has helped some people. Can't really give medical advice, but maybe a functional medicine doctor could advise?

Posted by: @carym23

@medee It's just a thought because you mentioned chest tightness which can come from respiratory system. You can easily purchase a pulse oximeter at a pharmacy or Amazon. they are easy to use and give you a reading of your blood oxygenation and heart rate.  

 

He replied saying he can't take new patients until October.

If you can't find a decent health care provider who is willing to acknowledge covid vaccine injuries, maybe you could consider contacting Remote Health Solutions listed on the React19 website:

https://react19.org/physician-network/

"If you have a provider that you find outstanding, please email us at [email protected] so that we can consider adding them to our growing network of “vaccine injured friendly” providers. These can be physicians, nurse practitioners, chiropractors, acupuncturists, physical therapists, or other providers. However, if you haven’t found a local practitioner, React19 has partnered with Remote Health Solutions to provide telehealth for primary medical care."


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LTN
 LTN
(@pfizerinjured)
Active Member
Joined: 3 months ago
Posts: 72
 
Posted by: @mike411
Posted by: @yi03

Can someone give me some info or help me out? I've been vaccine injured since last June. I have recently been having neurological issues come up again. Doctors keep wanting me to take tests and I think it's a waste of money. I took cytokine back in September and obviously they were crazy and inflamed. My brain feels fuzzy, like my receptors are blocked/not working. I can't feel anything if I drink or vape ( I don't do these things every day, only socially but I don't even do it anymore because I don't feel anything) I need something to fix this, whether its a supplements, prescribed medicine, etc. I am tired of migraines, tightness around my head, advil, tylonel, etc makes it worse. my LDN doesn't seem to be doing anything for me anymore. 

assume by cytokines. you mean you had the IncellDX cytokine profile (14 cytokines) done? Generally, you at least need a good statin and low dose 81mg aspirin as a foundation and take for many months to maximize its potential. atorvastatin gets into brain and can help with many with neuro inflammation. so treats both symptoms and the root cause.

LDN works for some to symptom relief but it's doesn't permanently treat it just helps some keep going until body can overcome this. Depending on which cytokines were high, some do well on Fluvoxamine to help with brain fog, headaches, etc, while working to bring down several important cytokines. 

The tightness around head, migraines, etc. are very indicative of vasodilatation due to vascular inflammation and damage. vessels are expanding increasing pressure and blood plasma leaks out of tiny capillaries due to damage and creates more pressure. 

Mike, is this vasodilatation responsible for spikes in blood pressure?  My BP can be through the roof these days (not all the time though).  Like yesterday, it was 155/94 when it's normally in the 125-130/80ish.


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Cary L
(@carym23)
Active Member
Joined: 1 year ago
Posts: 75
 

Back in March I went to a rheumatologist since I had a mildly elevated ANA. He did an extensive work up for connective tissue disorders, including Lupus, and found everything to be negative and that the ANA was negative. He keeps bringing up drug induced lupus. He says its possible if I had tested my ANA levels 1 year ago, my ANA would have been much higher (received vax 04/29/21, Low ANA - 02/2022). He says drug induced lupus resolves when you stop the drug causing it. I personally don't think drug induced lupus explains my predominantly neurologic symptoms. Actually, I'm thinking our currently available clinical labs and tests will not answer our questions.  

I did bring up all the data that has been coming out regarding auto-antibodies and he said he was aware of them but the lab studies are not readily available for clinical practice. I was hoping to come back here with more helpful information to share...but no luck. 

So far...nothing helpful from neuro, ENT or rheumatologist. My primary flatly told me he has no idea and that they are all kept in the dark. 

Not giving up...I need to understand what has happened and what the long term ramifications are going to be if any..

Stay strong!

 

 

 

 


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Coco
 Coco
(@coco)
Active Member
Joined: 1 year ago
Posts: 21
 

For those who have GI issues : apparently I have something called SIBO, and my doctor will treat me for it. Apparently it’s quite common for people like us to have either SIBO or dysbiosis.


KitKat, gingerj, alia and 1 people liked
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Dee
 Dee
(@medee)
Very Active Member
Joined: 9 months ago
Posts: 650
 
Posted by: @nresearcher
Posted by: @medee
Posted by: @nresearcher
Posted by: @medee
Posted by: @nresearcher
Posted by: @carym23

@medee I wish someone could explain why her symptoms are so much worse at night while we sleep. I’m guessing it’s the autonomic nervous system I just don’t understand why it would worsen at night.

The immune system may be more active at night.

"Researchers have found that during nightly sleep, certain components of the immune system rev up. For example, there is an increased production of cytokines associated with inflammation." (from sleepfoundation.org)

So how do I fix this? It used to get cold with chsst tightness during Jan-Mar and now it has started to turn hot with tightness.

I did 10 HBOTs, felt better for just 2 weeks or so and it again started turning cold and then moved to hot.

It really scary. Also I can't breathe and get bad palps

Interesting that hyperbaric oxygen therapy seemed to help, even if it was temporary. Some people may have more than 10 sessions - do not know what the risk-benefit analysis would be.

Based on this, it could be that symptoms are linked to lower than usual oxygen levels. This may happen to some people with long covid also. May be hard to do deep breathing exercises, if that would help at all.

@carym23 had a suggestion below to try to buy a pulse oximeter online to get a rough measure of your oxygen levels at different times. Maybe you could then take this information to a cardiologist or other doctor.

It seems the best thing might be to try to find a cardiologist or other doctor who will take the symptoms seriously and accept that you do not want to take further medication for this, since medication seemed to make it worse in the past. If there is not a good doctor in your area, maybe through telemedicine?

I'd be tempted to contact a functional medicine doctor like Dr. Galland, who may have worked with some patients with vaccine injuries, and ask his advice or ask his office who to contact for advice:

https://drgalland.com/contact/

Also, if symptoms at night are linked to higher levels of inflammatory cytokines at night, then lifestyle methods to decrease inflammation should be relevant: an anti-inflammatory diet and maybe some anti-inflammatory and/or other supplements (maybe magnesium, b vitamin complex?). Not sure if intermittent fasting has helped some people. Can't really give medical advice, but maybe a functional medicine doctor could advise?

Posted by: @carym23

@medee It's just a thought because you mentioned chest tightness which can come from respiratory system. You can easily purchase a pulse oximeter at a pharmacy or Amazon. they are easy to use and give you a reading of your blood oxygenation and heart rate.  

 

He replied saying he can't take new patients until October.

If you can't find a decent health care provider who is willing to acknowledge covid vaccine injuries, maybe you could consider contacting Remote Health Solutions listed on the React19 website:

https://react19.org/physician-network/

"If you have a provider that you find outstanding, please email us at [email protected] so that we can consider adding them to our growing network of “vaccine injured friendly” providers. These can be physicians, nurse practitioners, chiropractors, acupuncturists, physical therapists, or other providers. However, if you haven’t found a local practitioner, React19 has partnered with Remote Health Solutions to provide telehealth for primary medical care."

Thank you! I'll check this out too.

I've also sent you a message. Could you please reply to that as well... I hope something works out soon. 


DrL liked
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Kit
 Kit
(@forest2022red)
Active Member
Joined: 5 months ago
Posts: 5
 

@ksmith I've been dizzy since second shot Feb 2021.


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Kit
 Kit
(@forest2022red)
Active Member
Joined: 5 months ago
Posts: 5
 

@ksmith I've been dizzy since second shot Feb 2021.


LTN liked
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Mike411
(@mike411)
Active Member
Joined: 3 months ago
Posts: 65
 

@pfizerinjured no, the vasodilatation leads to brain fog, headaches, and the pressure can increase broader Neuro symptoms. Raised BP and BP spikes are caused by one of two things (past immediate post vax reaction phase): 1) autoantibodies (and possibly molecular mimicry) that disrupts the body's blood pressure regulatory system (Renin Angiotensin System) in some way, or 2) autonomic dysfunction due to either auto antibodies interfering with the balance of sympathetic/parasympathetic nerve balance (similar to POTS) or same effect but instead of antibodies, driven by micro-vasculature interruption of blood flow to the autonomic nerves causing disruption (e.g. neuritis in nerves, neuroinflammation in brain). 

 

If your BP is mostly normal baseline and then spikes with movement or certain times of day, it's more likely #2. If your BP is constantly high and spikes on top of that, it could be either #1 or #2.


KitKat, DrL, alia and 1 people liked
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ichi
 ichi
(@ichi)
Active Member
Joined: 11 months ago
Posts: 25
 
Posted by: @callie

@ichi Hi, I just saw your 11 month update post. Is that how long you’ve had the insomnia for? I also have insomnia. Has it got any better over time? And what antihistamine are you taking? 

Yes, that's right. It was the worst during the first months, then become better 60-70%, but remained constant and no change really. I tried both Zyrtec and Telfast, both of them worked for me when I took them just before sleep.

Update: In few days it is one year since I got my first jab. When I wrote my last post I was quite depressed and didn't feel well physically too. I felt that I urgently need a break and change of the environment, so I spontaneously decided to go on a 5 day long holiday, alone. It was the first time I spent more than a day away from home over the past year, but I really needed it. I have been back for 4 days now and I have to say it was the best decision I have made.

I was finally able to get rest and dig that anxiety out of my body. I was also quite active (did swimming and lots of walking), nearly all whole days were spent outside (felt mostly fine, except some moments). And the result? Since I'm back, I have had no dizziness that I can recall, no brain fog, no insomnia really, even tinnitus feels ~50% less than two weeks ago and I feel much more energy now. I didn't expect that at all and this is very encouraging! But I'm not cheering yet, because as we all know a relapse can be just around the corner. I really-really hope I'm not falling back to the hole again, but I will do another update in a month and let you know.

Till then, y'all take a holiday!


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LTN
 LTN
(@pfizerinjured)
Active Member
Joined: 3 months ago
Posts: 72
 
Posted by: @forest2022red

@ksmith I've been dizzy since second shot Feb 2021.

You still dizzy?  haven't got any better?


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LTN
 LTN
(@pfizerinjured)
Active Member
Joined: 3 months ago
Posts: 72
 
Posted by: @mike411

@pfizerinjured no, the vasodilatation leads to brain fog, headaches, and the pressure can increase broader Neuro symptoms. Raised BP and BP spikes are caused by one of two things (past immediate post vax reaction phase): 1) autoantibodies (and possibly molecular mimicry) that disrupts the body's blood pressure regulatory system (Renin Angiotensin System) in some way, or 2) autonomic dysfunction due to either auto antibodies interfering with the balance of sympathetic/parasympathetic nerve balance (similar to POTS) or same effect but instead of antibodies, driven by micro-vasculature interruption of blood flow to the autonomic nerves causing disruption (e.g. neuritis in nerves, neuroinflammation in brain). 

 

If your BP is mostly normal baseline and then spikes with movement or certain times of day, it's more likely #2. If your BP is constantly high and spikes on top of that, it could be either #1 or #2.

Thanks for another detailed reply, Mike.

 

I think for me, it is both 1) and 2). 

 

But I've had some weird headches since the vax.  I rarely had headaches in the past.  But lately (I am 6 months post 2nd jab), I've been having some pressure headaches (like there's a tight rubber band around my head), or throbbing headaches which I almost never ever had before.

 

My BP is borderline high, isn't it, at 125-30/80ish? have all kinds of symptoms, inclg neuritis, neuropathy etc.  Should I panic?


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LTN
 LTN
(@pfizerinjured)
Active Member
Joined: 3 months ago
Posts: 72
 

https://www.livescience.com/antihistamines-to-treat-long-covid-pasc?fbclid=IwAR0xn6MRs1pkhZq1Ciii4wapbcH26ZJPNW87qiWpnhd-MvP1db7V3P_B_zw

I wonder if they'd help us, ie. people injured by the vaccines?


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