I am going to call again on Monday if I am still dizzy and just ask for the ENT referral. If I don’t get it I’ll find a second opinion elsewhere.
It's hard sometimes, but I'm glad you're not letting yourself be set aside for 2 weeks with "allergies"!
I wasn't getting good results with the APRN at my low cost clinic, so I've put in an application to change my insurance coverage to more benefits. I hope to find out if it's accepted this week. If so I will change to an MD for my primary care. I hardly used medical care before this, but now I've been to the clinic, the optometrist, the ER, had an ultrasound on neck lymph nodes, started vestibular rehab therapy and have an upcoming ENT appointment. I hope to avoid really expensive imaging, but I'm sure the ENT testing will be costly. If I can get a diagnosis and some good input, it will be worth it to me. It's been 2 months since my vaccine and I'm better, but some days my symptoms are still pretty bothersome.
I hope you're successful in getting a referral to an ENT soon.
hi Veda,
so sorry about your experience. I too have very swollen nodes in my throat since having the second dose of Pfizer six weeks ago. I also have had severe tinnitus, fatigue and headaches. I talked to my ENT yesterday and he said in the doctors forum he follows, there are numerous reports of vaccine reactions but most are not longterm. Or that’s what they think now. I didn’t mention my swollen nodes to him as I just thought they were due to something else. I hadn’t seen a post by anyone else on lymph node swelling and really appreciate your sharing this interesting reaction. It makes perfect sense. It’s been six weeks since my second dose and given my reactions I wish I had waited longer but I had no reaction to the first jab. I’m so glad your doctor recommended waiting. Hang in there as this WILL pass. If for no other reason than it has too. 🥰
I've had swollen neck glands also ...but I've actually had them every couple of months over the last year - ever since I was sick in early March '20. Didn't have strep or flu type A or B. Was told it must be a virus ...now I wonder if it was Covid. So, after that l getting mild sore throat and neck lymph nodes for a day or two every couple of months just made me feel like my body was good at fighting off stuff and I'd dodged getting really sick and I didn't think too much of it.
After I got the vaccine and this vestibular reaction I went to the clinic and was asked if I knew my lymph nodes were swollen - only in my neck. I said no, and they weren't tender. A couple of days later they became tender for a week or so. An ultrasound of ttem was normal. Six weeks later they swelled up again and became tender again the last several days. At the same time my sinuses have felt swollen, but no congestion. I'm hoping I'll get some input on this when I have an initial appointment with an ENT this week. I haven't been used to running around to doctors ... Yes, I have hopes also that this will eventually pass. I'll be glad to get past all this!
@isismadec. I posted my symptoms on a list to which I belong. It deals with many things, politics, economy, etc. I got a blast from the list operator essentially inferring it is unpatriotic to note this in public. It might dissuade others from even taking their first jab! So we are stuck. The docs brush us off and speaking to others out of this group makes us seem to be letting the nation down. A kind of catch 22, or double bind.
@isismadec. I posted my symptoms on a list to which I belong. It deals with many things, politics, economy, etc. I got a blast from the list operator essentially inferring it is unpatriotic to note this in public. It might dissuade others from even taking their first jab! So we are stuck. The docs brush us off and speaking to others out of this group makes us seem to be letting the nation down. A kind of catch 22, or double bind.
I have talked about what I've read here on other forums. Needless to say, I will not get the vaccine. I have literally had abuse heaped on me. I've been attacked, namecalled, berated, and lectured. I'm doing what I feel is the best choice for me. Anybody that doesn't like it can go to hell.
Ok. My GP told me that take this one drug that is called Pramistar, it is not a serious medications it is more like brain food supplement, and also she told me that physical activity helps. She said that all of this is based on the information that they get about healing from COVID when it affects the brain neurons, because she have no info about vaccines causing such symptoms. Well, I have been taking that medicine for two weeks and spent last weekend camping and being outside, riding my bike (strangely I feel good cycling, well maybe because I have more of a dizzines than vertigo and I am an avid biker) and now on monday I feel way better, on few occasions I thought that it has gone away completely, but no. I wonder if it'll come back after doing some work at the computer. But I hope that might help someone.
I woke up with a severe bout of vertigo March 3. Could barely walk and certainly couldn’t drive. I had pain in my neck and behind my ear, so I assumed an ear infection. Couldn’t get in to the nurse practitioner until the next day, but when I went, the ears were clear. Fortunately, the spinning and lightheadedness had improved, and by the following day I was back to normal.
Fast forward to my first Pfizer vaccine March 17. No side effects, but about a week later, the spinning and dizziness came back. I toughed it out for several days before calling the Dr’s office about trying some meclizine. That knocked me out but didn’t tackle the dizziness. I returned to my nurse practitioner and was referred for PT and an ENT. Some days were better than others. About that time I happened to be told by two different people that they had developed vertigo in the days after getting their covid vaccines.
No one in the medical field seemed to have heard of any vestibular issues after vaccinations, so I had my second dose April 7. To be honest, I was dizzy enough that day that my husband took off work to drive me to my shot. I have since started PT to learn the Epley maneuver which seemed to make things worse for the first several days. My PT seemed convinced that this was a clear case of BPPV based on my nystagmus response. I’ve had a few almost dizzy-free days but also some that are totally debilitating, where walking is almost impossible.
I can’t get in to my ENT until June 9 unless I can get in on a cancellation and if anything, things are getting worse. Some days my vision is blurred, and the last two weeks I’ve had worsening tinnitus. Turning, head movement, sometimes even visual cues set off a whole new round of trouble. On the bad days, the mental fog is a real challenge. Some days I can’t even ride in a car because it feels like everything is heading right at me. I’m really feeling pretty helpless right now.
Since my first bout of vertigo was before my first vaccine, I had assumed that the vaccine was not the culprit, but after reading through much of this thread, I kind of wonder.
@zabr00 I’m a new member here, and I’m in the same boat as your wife. I’ve said to several people that I often feel drunk, and not in a fun way. I know what you mean, too, about the possibility of this being vaccinate related being brushed off. On the bad days, I can imagine all of the worst possible causes and outcomes. I happen to be a stage 3 cancer survivor, and with that I knew what I was fighting and we had a plan that turned out to be successful. This ongoing vertigo/dizziness/lightheadedness junk doesn’t seem to come with a clear path to recovery. Hang in there. I’ll keep your wife in my prayers and hope that we’ll both find good answers soon.
Unless someone has gone through this, it can be hard to imagine "dizziness" being a big issue. Sure, you twirl yourself around and the room spins for a bit ...you get the vaccine and you have a few side effects for a couple of days... I was enjoying my retirement, had several projects I was in the midst of - fixing things, building things, painting... All this and even the basics of daily life came to a screeching halt when I should have been recovering from my couple of days of side effects, then instead lurched head first into this Alice in Wonderland experience of nutty symptoms that morph, recede, return, rinse & repeat... Baffling, buffeting... Yeah, you know - if you've been there. If not, you haven't the slightest idea! There, I've had my rant. If I hadn't gone through all this, I probably wouldn't truly understand, either. It's good we have somewhere we're understood!
@thenystagmus Hi Sassafras,
I understand your frustration and I think many of us identify what you are going through, I know I certainly can. I'm just coming out of another four day migraine, haven't had this many in years. Some days I feel I'm better then others, I tend to make the most of things then, but yesterday, I had dizziness for most of the day, brain fog, tinnitus more noticable, it's horrible. Like you, there are so many things I want to do, like drive my car, visit my mother to help her out with housework, but I cannot. I take Dramamine but even the less drowsy ones zonk me out. It's so frustrating, ten weeks today since my first jab, I can't see me getting another if I remain like this, it's due the end of the month. My mother is in her 80's and she's had both jabs, no problems lasting for more than a few days. She has never suffered with migraines, I wonder if there is a connection there? I hope we all get through this soon. Take care. 😏
@lukenick Hi Lukenick, that's how I am, one day I feel like I'm finally over this but then the next day it's back again. I would be interested to know what antihistamine your ENT recommends for you. Good luck with your visit.
@krmizrachgmail-com thanks for checking in! I read the post by @dania last week and something about taking vitamin C resonated with me. I have been taking 2000 mg of Vit C since last Wednesday, April 28th and I'm thrilled to report the dizziness is gone! I only had vertigo for a few days after my symptoms popped up so it was really the dizziness on and off all day that was driving me crazy! I'm due for the shot this Thursday the 6th and I'm still undecided. I'm leaning toward not getting it though right now - I just don't want this dizziness and vertigo to come back! Also worried it will be worse with the second dose. Be well!
one day I feel better, next back on couch for the day. This is one nightmare. I am hoping acupuncture helps me a bit.
I just pray that this is not here for the rest of our lives.
they should make it public how many people are suffering! From these horrible side effects.
hope u feel better everyday
Four days after my first Pfizer vaccine, I started having symptoms. I woke up fine, stood up to get out of bed and crashed to the floor, hitting my face on the carpet. There was no reaching out my arms to catch myself or anything like that...it was like I blacked out for 1 second and woke up when I hit the floor. I sat up and felt dizzy, and was able to stand up and continue on my day feeling ok. I drove, worked, etc.
Then the next day when I woke up I felt VERY dizzy. Not room spinning, just an off-balance, drunk sort of feeling. It took me about 15 min. before I could safely get out of bed and I felt dizzy the rest of the day. No driving. I went to my primary dr. and she couldn't find anything wrong. She gave me Meclizine but since I felt much better the next day, I haven't taken it.
It's been 4 days since I fell and I am feeling much better. Still a little dizzy here and there but nothing like day #1 or 2. I just wanted to let everyone know how long it lasted for me. My dr. recommended getting vaccine #2 but I'm not sure yet. I probably will, but I may delay it for a few more weeks. Of course she said there's no way to tell if this was related to the vaccine but I'm sure it was. Good luck to all, this dizziness stuff is scary.