@sassafras No, actually it wasn’t any of yours from what I’ve seen and it certainly wasn’t a blanket statement for all those that are struggling in so many ways with ongoing sx. Wherever I started reading today started with exactly what I said, fear mongering from someone who hasn’t even been vaccinated. People on here have enough to worry about...trying to manage and get through daily lives, and process what has turned their world upside down without that. I understand the ongoing frustration, mine included. It would appear that some people have moved posts well beyond the physical, mental and emotional toll and effects of the actual covid vaccine side effects, what works, what doesn’t ect. to maligning insurance, science, the government, drug companies lack of transparency, and slipping the conspiracy theory language in. I don’t disagree with some of the issues, but it feels like there are a lot more posts to sort through than the original intent of this forum subject.
I appreciate your time, thoughtfulness, support and ability to respond to so many on this forum when people are reaching out for help and information. My post was worded out of frustration with what I was reading, and I’m first to admit my immediate reaction wasn’t the best, that’s on me. However, I can express myself without you moderating me.
@mcross I don't have power to moderate you. This is what I asked of you, "...please moderate yourself to be more amenable to others..." Thank you for your thoughts.
@mcross Moira, I don't think you've read enough of my posts to realize that I do resemble what you have objections to in many ways. Many with strong viewpoints feel they can point to others and claim they're using conspiracy theory language, but this "elephant" has many possible viewing points besides your own. Also, I have enjoyed conversing with you the couple of times that you have sent me a personal message through the VEDA message center, telling me that you couldn't figure out how to reply on the forum or it was difficult for you to do so. Since you have posted here 20 times - 2 of which were today, I'm convinced that you now know how and I'd prefer that you not send me additional private messages. Yeah, it can be a rough road, friend. Best wishes, Sassafras
Same, and definitely appreciated your help at the time. After today’s exchange, I’m not sure what lead you to believe I would be reaching out to you private message or otherwise. But after your last post this is my response, and done. And you are correct, I don’t have the time or energy to read every single one of your posts. Gleaned more the thoughtfulness and support of others. Of course there are many viewpoints, each to their own, but I stand in that many posts, this forum has deviated from the original “Covid vaccine side effects”. I continue to deeply appreciate people sharing their new and ongoing journeys, doctors suggestions ect. and have tried several treatment suggestions as have my doctors. It’s horrible that everyone is going through this at all and continue to be thankful for a forum to share that. You and I just don’t see eye to eye which is fine.
Hi all, My Dad had AstraZeneca shot in Feb after few days he started experiencing "Meniere's disease" which is like dizziness while moving head, sitting, standing or even moving head in sleep. This was neither getting better nor worse for about 3 weeks, having consulted few doctors and even ENT specialist and everybody prescribed Vertin tablet and later consulted couple of doctors to check if its ok to take the shot of Covishield, seems like no doctor or any information they had to tell this is due to vaccination's side effect, they all suggested to go for 2nd shot. Now after 2nd shot, the situation is much worse, not able to do his daily activities, started deteriorating after 3 days of the shot, now into 10th day no sign of improvement, feeling very emotional hearing his pain. PLEASE PLEASE PLEASE help me who come across any suggestion or updates for this problem's solution 🙏 🙏🙏
Hi, I happened to scroll backwards and I was glad to come across your post. There's a funny thing about this site, that when you first post here, your posts aren't approved by those moderating as fast, but then it ends up in the lineup in the order of composition and may get overlooked. So, please don't feel that you made this appeal and it's been being ignored. I may have been the first to come across it.
Oh my, this is such as difficult thing to go thru! Your dad is fortunate to have you caring and advocating for him. Bless you for it! Unfortunately not enough doctors have seen enough of these reactions to be familiar with them, or know much about how to help with them.
I'm one of many posting here, all sharing many things related to this journey we've unwillingly set out on. Some of our doctors have run tests, some have prescribed medications for symptoms. Some have had their patients try a round of steroids. Others have taken over the counter medications, vitamins, and other supplements or tried acupuncture. Some have felt they have benefited from some of these, but none have worked for everyone. The passage of time for our bodies to recover has seemed to be the most sure thing.
My reply to your post will bring it to the most recent spot, and I hope others will reply also with any suggestions they would feel helpful for you. You have arrived at a place where we are all dealing with what your dad is going through. I'm sorry you have need to be here, but since you do - welcome and best wishes for your dad's recovery!
@lh2021 Your timeline sounds like the opposite of mine and many others. I had severe vertigo event after the initial shot and then felt fine for three full weeks. Three weeks after my shot the symptoms randomly started. For two weeks symptoms slowly went away and now I'm feeling much better. Only slightly off with caffeine. I started taking vitamin C and changed my diet a bit.
I go from feeling great to skeptical that things are back to normal. Please keep us updated on your timeline and hope you find something to treat your symptoms.
Has anyone that has received any of the new Covid Vaccines, did you experience any increased dizziness or other symptoms?
Woke up with vertigo nine days post vaccine (Pfizer/BioNtech). Have had symptoms including dizziness, headaches, numb and tingling arms and generalized pain intermittently since then (5 months). Have had clear brain scans, bloods, physical exams and urine tests. Wondering has anyone with these symptoms been tested for autoimmune disorders?
Hi, I have yet to receive a diagnosis also, except that of reaction to Covid vaccine. I'm waiting to do an ENG test before my ENT will venture any further guesses. You've been dealing with this for a while longer, with mine being given in early March. I have had questions in that direction, also - my doctor ordered the most preliminary immune marker testing without conclusive evidence to run the more specific tests. I did have a slightly elevated TSH that reverted to a normal level several weeks later. I didn't want to go on thyroid supplements on the basis of one test, so I'm glad it was normal later. My ANA screen was normal. I do remember one person sharing that she had a positive ANA test for the first time, but her doctor wanted to wait and see if it was temporary, with a plan to run follow up tests later. If you do get testing done, I'm sure there's interest here to hear your results. Best wishes!
Hello Friends,
I received my Pfizer vaccine on May 19 and felt brain fog up until about 24 hrs in when dizziness and vertigo started to show up riding on a golf cart. I am a healthy male of 36 years old (go to gym 5+ times/week) and have never had any vestibular issues with the exception of an ear wax buildup a few years ago causing some mild vertigo. The symptoms can increase and decrease from time to time. I feel that exercising and generally keeping busy has helped somewhat. After reading much of this forum, I feel that I am suffering Vestibular Neuritis brought on by hyper-inflammatory response affecting CN7 (Vestibular Nerve) and also on the adjacent nerve CN8 (Facial Nerve) on a few occasions. Not sure if inpingement, myelin degradation, or inflammation. I had a strong immune reaction after the shot, as my arm went from feeling like a punch to a baseball bat strike.
Diet has been low-inflammatory, in and out of keto during this, and supplements were about the same going into the shot, however now I've only upped Zinc, Turmeric, Quercetin, Omega 3, Vitamin D, K2, Melatonin and B Complex.
I wish you all the best and hope we can get to the bottom of this.
This is an account of a person that experienced getting diagnosis & treatment for BPPV over a period of 4 months. A number of us haven't been diagnosed with this particular vestibular problem, but having some kind of vestibular issue, I think maybe you'll be able to relate. The link is from a "sister" website to VEDA that's based in Canada.
https://balanceanddizziness.org/found-on-reddit-heart-wrenching-story-by-young-bppv-sufferer/
I developed tinnitus 1 week after first dose of Moderna. It's been over 3 weeks now since the vaccine and I still have T. No improvement at all. No previous history of any ear/hearing problems. After the vaccine I also have numbness in toes. At first it would only start while exercising but now it's constant. Not sure if numbness is related but I'm almost certain I got tinnitus form the vaccine. I also have mild headaches, come and go, and random body 'pings' like nerve pulses in the head
I am on day three Of my second Moderna shot. Since yesterday I've had these horrible hot flashes! I'm 44 and these are worse than hormonal hot flashes 🤣 this is the worst side effect I've experienced. Slight headaches and a stiff neck on the side of injection all weekend was the other
@markm90 Hey man, I also started seeing eye floaters 4 days after my first vaccine. I have no idea if it was related to the vaccine or not but it is very frustrating. Did you get the Pfizer? I am 37 years old with no history of eye issues as well. How are the floaters doing for you now?
@hollyd yes, I am totally better but I have no past ear or dizziness problems. All I know is that 2nd vaccine brought on dizziness, fogginess, and fatigue 15 days post vaccine and lasted few days to return weeks later for about 30 min. again. But, since then, my fogginess is almost all clear.
That is good! Having suffered for 3 and a half months and for it to come back after 3 weeks of basically nothing is a bit disheartening - but I will just have to deal with it.
My ENT did some testing that she basically said "was out of their scope of expertise" at this point and referred me to a neurologist that specializes in vertigo. I never went since I was feeling better, but now might go just to see what he may have to say.
I also have no more Vallium for my Meclizine, Zofran, Vallium cocktail that I take with onset. They are very stingy with those Valliums and only gave me like 5 of them - but I think I definitely need to see someone who will give me a decent Rx to have on hand for emergencies.
I am trying really hard not to wind up in the hospital again!! and since Zofran and Vallium is what they generally give in hospital, I would rather self medicate before it gets so bad I have to go to ER.
Hi everyone. I've been reading this forum for a few weeks now, since my symptoms started, and I just wanted to say a huge THANK YOU to everyone for sharing your experiences. It has been really helpful for me. Thought I'd share mine in case it was helpful to someone else!
1st Moderna shot--sore arm a little fatigue, that was it.
2nd Moderna shot - standard symptoms of fatigue, fever, headache, body aches on and off for a few days.
Then, 8 days after the 2nd shot, I woke up with Vertigo. I had never had it before in my life. Room-spinning, full on Vertigo when I woke up in the morning and laid down at night for bed. Plus some brain fog and fatigue during the day. Then after 2 or 3 days of that (which in hindsight, was actually pretty tolerable), my symptoms shifted to a slight, constant sense of vertigo all day long. It was like every step I took, every time I moved my head, things were wobbly. And the brain fog got way worse. My head felt full/off, my eyes felt pressured, I had a headache. And I was extremely fatigued. I tried to work throughout and it was very difficult, one meeting for an hour would wipe me out for the rest of the day. Thankfully I was sleeping well, but I would sleep for 11 hours and still wake up exhausted and feel exhausted all day.
Then one day the chills, aches, nausea and extreme fatigue set in again. I went to the doctor and they diagnosed an ear infection, started me on antibiotics. I still am a little skeptical that it was "just" an ear infection and not some sort of reaction to the vaccine. Not sure I'll ever know. I only really started feeling somewhat better on the last day of my 7-day course of Amoxicillin.
Now, 3 weeks after the start of symptoms, I am finally feeling much better. My vertigo is only slightly present and the fatigue is mostly gone. I'm not 100% and I hope I don't have what some others have experienced where the symptoms come back again in full force. Knocking on wood over here.
The treatments that I noticed helped were: vitamin C, turmeric, acupuncture, cold showers (really!), lots of rest, and time.
For those of you who are feeling hopeless, and like this will never end, know that you are not alone, and that I'm sending healing thoughts your way! Hope you all feel better soon.