@thenystagmus H Sassafras, just typed a message and I lost Internet connection so it disappeared. I hope you're feeling better now after your outing at the hospital. Just been reading your post about you not being able to see a neuratologist because there isn't one in your insurance network. That must be so annoying when there is one in your area. Hopefully your next neurologist will be more helpful. I suppose the only way to see the neuratologist would be to go privately and that would undoubtedly cost an arm and a leg. It all seems so unfair when we highly suspect that the vaccine is the cause of these symptoms. I admire your energy and determination. I hope your symptoms will improve and you won't have the need to worry about seeing doctors or specialists.
That is so frustrating when what you've written goes into electronic oblivion!
Well, this is my next persistent angle:
I had been advised to see a neurotologist, but the only one around said they're not in my insurance network. So I called a second ENT in-network that I was checking into seeing, but he also said with my symptoms I need to see that neurotologist (that's not in my network). So I called my insurance company and they put in an escalation request to see if I can get an exception to get coverage from them to see this doctor. My HMO policy claims there are no out-of-network benefits, but I figure it can't hurt to try!
@tabby Hi, Tabby.
Thanks, I'm glad to say I have gotten over the really rough way I felt after doing my tests. For a long time now it seems the more I push myself to be as active as I can tolerate, the better I do.
I have felt like getting the Moderna vaccine 3+ months ago kicked things up many notches for me, but in hindsight I've had to admit that I had issues before that also. If I thought my symptoms were only vaccine reaction, I would be more able to settle into just waiting another month to restart vestibular therapy and go with that and eating healthy, taking my Vitamins D & C. But I've got the last year of intermittent symptoms to figure in and after having symptoms I've attributed to vaccine reaction for so long now, I feel I'm overdue to get anything ruled out that an MRI could reveal.
I hope this finds you having a good day!
@dizzyfromvaccine I've returned to the forum after taking Glutathione and Quercetin for a week and I'm back to normal except for my stamina after being sedentary for two months! I can't thank you enough for posting your doctor's suggestion! I know you were only dealing with dizziness but I had the brain fog, headaches, stiff neck, eye/ear/head pressure and think that is why it took me a week to feel better unlike your two days. I bought liquid Liposomal Glutathione and Quercetin Phytosome on Amazon. I took 2 teaspoons of Glutathione 3x a day with Liposomal Vitamin C and 1 Quercetin pill 3x a day with 1 Zinc (only 1 in the morning). I reduced the Glutathione to 1 teaspoon 2x a day after the fifth day as the recommended daily dose on the bottle is for 1 teaspoon a day and I was taking 6 times that. Shortly, I'll reduce it to the 1 teaspoon a day and plan to take it indefinitely. It was quite a task for me to remember to schedule meals around the Glutathione which needs to be taken on an empty stomach and then no food for 40 minutes after and then the Quercetin with a meal.
I did do a lot of research on the supplements as I'm like your husband and feel that most supplements are not taken in ways that are available to your body which is why I bought the type of supplements that I did with corresponding supplements that support them. I also searched "m1/m2 monocytes mrna vaccine" and "m1/m2 monocytes Glutathione" to read a lot of articles on those topics. Glutathione is a detoxifier and anti-inflammatory that is produced in your body. Quercetin is an antioxidant and natural anti-inflammatory/antihistamine that has worked wonderfully in place of my Claritin D. I was really wowed by what I read on Glutathione and shared the information with family and friends who all plan to start taking it.
For anyone reading that is curious about my previous posts, click on my username and then click on activity on my page. While I have been reading that some have gotten better through time, I know for a fact that this wasn't the case for me. Last week before I received the supplements, I decided to see how I would feel without my Claritin D and Ibuprofen which had been keeping me at a "new" normal of about 70% for about 6 weeks. Without it, I was plunged back to my initial two weeks of misery before finding the combo that helped some. So, after eight weeks from my initial episode of vertigo, I felt exactly the same without my meds. While we are all dealing with different side effects and started with different states of health, I have always felt that my issues were rooted in inflammation and allergy reactions to the vaccine.
Dizzyfromvaccine, I wish I could kiss your doctor, my husband wishes he could kiss your doctor, my kids wish they could kiss your doctor, as well as the rest of my family! I'd give your husband a hug too because his encouraging you to post in case one person could be helped included me!
I have so appreciated this forum and everyone that has been contributing to it - for the commiserating, tips, advice, rants, and encouragement. I will come back to post if I need to update anything but please feel free to message me if you have a question.
I am literally jumping up and down, I am so happy for you! I was stuck in that misery and it makes me feel so good 😊 to hear someone is out of it as well! And I’ll give my husband kudos for telling me to go online!
There seems there are many people trying it - even lots I haven’t talked to. I hope it helps others as well and we can all say our goodbyes from the camaraderie of this forum and go on to live our lives! I feel so lucky 🍀 to have found my way to this group. It was totally by accident.
And I learned something from you - that you can click on activity of someone because it’s bit hard to follow and sort through the posts here.
If others did or didnt have success please post. It’s good to know all the info about what’s working or not.
All the best!
30 Year old male here. I am suffering from Dizzyness and Vertigo without a break from 3 days after vaccine (May 29th first shot) to present (June 9th) It's driving me crazy. I had NO history of motion sickness, and had to google what vertigo was. I was able to be to be active when I wished and only ever felt like this when VERY drunk.
To anyone else relatively healthy experiencing this I had no history of dizzy/vertigo/motion sickness until now. And am still having 24/7 symptoms coming up on 2 weeks soon.
If anyone is/was in the same boat (only dizzy/vertigo/brain fog symptoms without any other symptoms or history) I would appreciate your tips or stories. My e-mail is [email protected]
Hi Shawn you can go back and look my old posts with info on the supplements I took that helped me. Some people have had full or partial success with them.
Hi there, I found your post about the supplement. Is Liposomal Glutathione are in liquid form? Quercetin are in pill form? Can you let me know what brand did you buy? I am not familiar with these 2 supplements. How many mg of Zinc did you take? My dizziness just started several days ago but I have been having pins/needles and numbness in various places in the last 2 weeks.
thanks!
What we don’t known could hurt us. As a follow up to Sassafras’ link and comment, I looked up “mimicry” to see what it meant and found something very scary on the following link.
https://pubmed.ncbi.nlm.nih.gov/29503439/
Several people on this form have expressed the concern about developing autoimmune problems and while I’m not a medical person, these Covid 19 vaccines do not sound that safe to this lay person’s sensibility.
Full text version:
@gingerjones Thank you so much to share the link. It’s so important. As the expert of vaccine, his tinnitus after vaccine may be a credit of us. He will convince the medical communities to look into the link which most of us believe so. I wonder if he found this forum.
Hello everyone, I’ve done a ton of reading on various forums and sites on this topic and, like many, feel so much comfort seeing other people who are struggling with the same issues I am having (although I wish we had none at all!)
Personal Stats
I’m a 25 year old healthy and active female
Vaccine Timeline
4/1 - Received first Moderna vaccine with only side effects being nausea, a temperature, chills and persistent aches that went away after several days. Nothing else post vaccine #1.
5/1 - Received my second Moderna vaccine and had the same symptoms as vaccine 1 that evening.
5/2 - Woke up incredibly dizzy and unable to walk, exercise, drive. I was useless, and those symptoms continued to persist for three weeks with very bad and okay days in between, but the nonstop dizziness and feeling of disequilibrium 24/7 never went away.
5/18 - Started taking Vitamin C, D3 and licorice root per the advice on another forum
5/22 - Felt total relief from all symptoms, with slight tinnitus still in the ear
6/2 - All symptoms of dizziness, disequilibrium and even worse tinnitus returning when I woke
6/4 - Extremely loud ringing in my left ear that graduated to pressure and muffled hearing making it extremely difficult to hear anything on my left hand side
6/10 (Today) - Still suffering from severe dizziness, disequilibrium, tinnitus, pressure and severe muffled hearing in my left ear.
Difficult Daily Tasks
Because of these symptoms I can hardly drive (probably shouldn’t as I feel total brain fog and inability to fully see the road because I’m so dizzy)
I can’t run/exercise
looking at a computer is difficult but my symptoms are worse in motion, so sitting or laying down and keeping My head in one place/looking at one specific object is fine
Supplements Taken
Vitamin C - 6,000 mg daily
Vitamin D3 - 5,000 ICU daily
Licorice Root - a drop in the AM & PM
I slowly decreased my vitamin c and licorice root I take after my symptoms subsided several weeks ago, week 1 of symptoms being gone I went to 4,000 mg of vitamin c a day and week 2 down to 2,000. I had been taking 2,000 mg of vitamin C daily for a week or so when all of my symptoms suddenly returned again. Since then I have jumped back up to 6,000 mg of vitman C and will start taking licorice root again. My D3 intake has not changed since I started taking it.
Questions & Emotional Update
Of course these symptoms have completely altered my quality of life, happiness and overall mental health. I have seen an ENT and PCP, but as a young person (thankfully with a good job but not a ton of money for extra medical care), I have basically been told I’m crazy, these symptoms are not a result of the vaccine and there is nothing they can really do for me. Instead of spending several more thousand dollars just to be told there’s no solution, I have taken my research and hopes here. It’s hard to perform daily tasks and keep a positive and open mind, but after reading comments on here I feel much better.
My questions, after reading the thread, has anyone discovered a supplement/medication plan that has eliminated symptoms completely and for a long period of time? I saw some mentioned lipsomol glutothione, has that been beneficial? Wondering if I should take a trip to the pharmacy tomorrow to get some. Any other suggestions are welcome.
To anyone who has made it this far, thank you for taking the time to read. I’m sending recovery thoughts and healing wishes to everyone here and hope that our symptoms subside here soon. XX - Peyton
Hi Natalie
This is what I took. I didnt have pins and needles.
Trifortify flavored liposomal glutothione 2 tsp 3x per for only for a week (compared to the tube directions this dose i was pretty large) this is not liquid it’s like the consistency of hand cream.
Thorne zinc picolinate 30 mg 1 capsule 2x per day
Vital nutrients quercetin 250 mg 1 capsule 2x per day (zinc and quercetin at same time)
i felt better after 2 days - so I reduced the glutathione to 1 tsp 3x a day after 3 days because it was a little harsh on my stomach.
Im not a health professional just relaying what I took. Glutathione i think is soy based if you have a soy allergy.
Probably good to check with your dr before starting anything new and check contraindications.
Thank you so much for the brands and doses. I will meet with my doctor next week so I can talk to him about the supplements. Thanks again!
I'm in a better place. Had several very light headed moments where I thought I might pass out 2 weeks after my first shot but that hasn't happened in a while. I used to struggle with shortness of breath to the point sleeping was a real struggle. Much less of that now.
I was dealing with a lot of things but now, I'm mostly dealing with breathing issues that I think is anxiety related. I'm not sure. Doctor's aren't sure. Going through some therapy for migraine related things and I'll be doing some work for more relaxed breathing as well. I'm certain some of my discomfort and lightheadedness is very related to bad breathing habits.
However, these habits and anxieties never really happened until after the shot. And one day, just randomly while driving, I got super light headed I really thought I might black out. That was really scary and I've tried driving a few times since. It's been 3 weeks since that really scary moment and it's happened in less serious forms while driving but enough to make driving really stressful and ultimately just not good for me and maybe unsafe.
So I haven't been driving... For basically 3 weeks.
I'm pretty upset about this vaccine and all the pressure to get it and the ignorance as well. Like it's FDA approved... Not exactly!
I'm done listening to pressure from others and media and I'm thinking for myself even more than I used to.
Guys, we already had the shot. Getting mad maybe serves no purpose. We get through this, it's the only way. Trust that our bodies will figure it out and let's try to have a more loving approach to healing as opposed to an angry one.
I can't get better when I'm consumed by hate and regret.
One thing that helped me specifically, which might help others dealing with tight breathing, is looking up videos on tight breathing meditation. Anxiety can lock you up in the diaphragm and might be responsible for a lot of what you are dealing with. I know it is for me. Hard to say if it's everything but remember how important breathing is. It's literally maybe the most important bodily function and any imperfections in how we do that can add up quickly.
Good luck. Message me or reply if you have questions. I'll let you know if I can relate or have helpful ideas. I understand the frustration of telling friends and friends just saying go to the doctor.
Hi - I have Benign Positional Vertigo and migraines as well as other things. I have had what I thought a severe reaction to a pneumonia shot in 2017 as well as flu shot that same year and the following two years. I had muscular weakness in legs and severe pain all over as well as debilitating vertigo and migraines which lasted 3.5 years. Am now trying to make decision about getting Pfizer vaccine. Not sure I want to stay in for another two years or so as friends and family are very important to me. I have even lost some friends over my hesitation over it. Dr said there are some people who are just very sensitive to vaccines and I could be one of them. However, she never confirmed it was from the vaccines. I have read all of these posts and am just wondering if people's problems like the vertigo etc. are improving. If so, can you please let me know as this decision is causing me much stress and anxiety. I was told MRNA vaccines are different than the others so maybe they won't cause long term effects.
Hi,
I received the Pfizer vax. I had vertigo after the first shot and recovered quickly. 13 days after the second shot I woke up with severe vertigo and dizziness. I've had it for 8 weeks and I've been at home recovering. I have not driven. They are both better, but still there. I know of many, many people on another forum who have gotten hearing loss, tinnitus, neuro symptoms and vertigo after the shots. Weigh the pros and cons carefully. I'm not sure I would do this again. I had tinnitus, hearing loss and hyperacusis start during the pandemic. I was adjusting, but the vertigo after the shots was debilitating.
My severe vertigo and dizziness started after the second Pfizer shot. It's been 8 weeks and I've been at home, not driving. I'm not sure I would do this again.
twa
Has anyone gotten the second vaccine dose and improved? Yesterday, I spoke with a physician who said that he noticed patient symptoms improving after the second dose. I am starting to feel desperate. I got the first Moderna shot on March 29, 2021. Within an hour, I had heart palpitations, tingling on the left side of my body, numbness in my lips, and difficulty swallowing. Since then, I’ve experienced dizziness, lightheadedness, tinnitus, nausea, headache, vertigo, feeling faint, heart palpitations, blood pressure spikes, and tremors. Doctors don’t believe it’s the vaccine and can’t diagnose or treat me with anything. I am starting to wonder if the second shot might be worth trying. I dunno, this had been so awful and isolating.
Hi,
I can say my severe vertigo and dizziness started after the 2nd vax. I'm going on 8 weeks.
Following. I also have low ferritin (49 ng/ml) and I feel like all the symptoms I have after my first and second shot mirrored that of those with low iron. Heart palpitation, tinnitus, brain fog, etc. I've tried supplementing with iron pills but they have made me sick so I'm looking for other forms of iron.
Please keep us posted!