Hey everyone. I have to say I'm quite terrified about hearing reports of relapse 😞 I wish you all speedy recovery.
I see there is a lot of information in this topic over 400 pages and it's not so easy to capture what everyone are experiencing and how do they progress over time. Do you think it would be worth of creating a site where we could pool this information together? Would you agree to fill a short anonymous survey to report side-effects that you are experiencing and preferably update the report once your condition significantly change? And report how things went after getting a second shot after experiencing side-effects from the previous one.
I put something together and here are two screenshots of what I'm thinking (NB! Illustrative examples): https://ibb.co/Jst46GB and https://ibb.co/DYF0dV8
I'd like to hear from you whether it would be something that should be done or rather not. If you want to keep the topic clean from this then feel free to drop me a message (sorry, but I can't reply due to low number of posts). Thx!
@redm exactly not like a panic attack that goes away. I’ve been in a constant state of panic with burning tingling sensations for the last 8 days and now pressure in my head with slight tinnitus and no relief! It’s just soul destroying..
@timeandwater I’ll reply with another private message (even though you can’t reply) but I’ll give you my number for WhatsApp
@timeandwater I am in Haringey too! Small post vaccine syndrome world 🙂
I am much much better now at 6 weeks but the doctors were just awful and one even laughed at me! i hope you are working out what helps. For me I recon time and calm were the best healers - weird ear fullness seems to want to stay though.
@kdoyle84 Oh god it's just awful isn't it. I am 6 weeks post my first (and only) jab and am now feeling so much better. Recovery started at around the 4 week mark I think. The first 2 weeks being so, so bad I couldn't work, eat, play with the kids ... worse weeks of my life!
I went crazy on supplements, drank so much water and lots of different healing teas, asprin every day, claritin, lions mane for brain fog... and all the usual suspects. chiropractor actually really helped as well
Day by day it got better, but its not a linear recovery for me, ups and downs but now so many more ups (nearly all ups to be honest!). Time, time, time and an inner belief you will nail this...
good luck
PS. can everyone stop getting all pro vax, anti vax, pro ivermectin, anti FLCCC, pro blah blah - we are here to share experiences and tips on how to get better, to feel part of a group that understand what you are going through. This group got me through my darkest days - please leave politics OUT OF IT and allow it to help new people find comfort/advice. no one needs to feel bad/worse about decisions we have made
peace xxx
@cloudy 10 days after getting the first pfizer vaccine I had the first panic attack of my life. Randomly in the evening. It has now been three days and I am taking Urbanol once or twice a day to cope but it is a scary feeling. Still a problem. How long did it take before this stopped (hopefully) happing to you?
with burning tingling sensations for the last 8 days and now pressure in my head with slight tinnitus and no relief!
The burning tingling sensations that you hare are non-stop?
I have these sensations in my body too, but they show up +-2 hours a day and gone, but this happen every day (obviously started after the vaccine shot).
Does anyone have a similar experience with their eyes? it seems as if my vision is still suffering. I can see, but things are too fast for me when doing something as casually as scrolling on my phone. Or when I am somewhere at a store and it's like vision overload. If so, any tips? Even with my treatment it is still there, better than before..but still there lol
I had my first moderna jab on the 26th of may and my symptoms which were prolonged migraines ,brain fog, dizziness, light headed , tinnitus, headaches, anxiety and panic attacks and it lasted for 7 weeks .My CT scan and MRI results both were fines .I m recovered 80 % and my second jab is due on the 16th of august ,I’m not having this shit again in my body .
@drivenlikesnow thank you for this! Even though I’m fully vaccinated, if we do need boosters I was wondering how I would handle that since I have vestibular neuritis from having had shingles on my head, then immediately getting the vaccine too soon for my poor immune system to tolerate. I will take this advice and see an immunologist if they order boosters later on. Great advice!
@thenystagmus you will recover. Keep it up. These exercises have saved me. I’m 12 weeks out and improving day by day. As suggested by another poster here, if boosters are needed, I would see a immunologist first and get pre planned for my over active immune system just in case.
vestibular therapists are wonderful aren’t they? I love mine.
@emiliec it’s difficult when a vestibular reaction happens after a vaccine (it can happen after any vaccine or virus btw). I’m sorry you are going through this. Please ask a neurologist to give you a referral to a vestibular therapist which I’m sure will help you to recover. This has helped me, with improvement in just the first 10 days. Good luck, hang in there!
@kdoyle84 week 13 for me and nearly all better. No progress at first, but with a good neurologist and referral to a vestibular rehabilitation therapist, I started to recover fast. Still some “weaviness “ by the end of a day, and fatigue, but a lot of that is because I had the worst case of shingles on my head just before I was vaccinated (there needs to be a gap between such infections and any vaccine for sensitive people I think). Don’t give up. Go for 10 minute walks outside, learn the exercises, you will be okay soon. 🤞