@jaydev55 I see. Did you notice any improvement with your dizzy symptoms from the beta blockers? One of my doctors prescribed them to me for whenever a trigger food makes my symptoms worse (that "episode" lasts about 24 hours before I'm back to my baseline dizziness). My friend, who is also going through this ordeal, said the beta blockers made her dizziness much worse, so she stopped them right away.
I wasn't diagnosed with Meniere's; my ENT is a Meniere's specialist so she gave me some materials that helps her patients deal with vertigo. I do have ear popping but it's been diagnosed as dysfunction of right eustachian tube and I was told it's anatomically separated from what's causing my constant dizziness.
@dizzydame it made my head pressure worse as well as dizziness. Reason I was told is that beta blockers reduce adrenaline which helps clear sinuses. I was also told that you were either in them or off them. They are not something you take as needed. When you come off of them, you have to wean off of them.
For you ear, were you told it's from the inflammation? Will it regress?
@amychi Hi! After a lot of hesitation I took the shots, Pfizer. I was pretty scared but to be honest I got more and more afraid to become seriously ill with Covid. I feel fine! I got some pain in the arm and felt like getting a cold for a couple of hours but that was it! I feel so relieved! I would lie if I said it was an easy decision (I have been quite badly treated by doctors throughout the years) but now I feel it was the right decision for me. I hope everything works out for the best for you!
@happyhourglass Oh, I am so happy for you! Thank you for responding, and take care!
@jaydev55 I’ve recently started taking beta blockers I’m on day 4 and it’s caused me crazy dizziness is this the same as you? When you stopped taking them did the dizziness get less as intense?
@nath7 yes. The head pressure and dizziness reduced. Did not go away though. Just not as bad.
@delainekylynn I know it is hell! I tried RX sleep meds and initially, they wouldn't work either. I tried otc sleeping aids and of course they didn't help. Ashwagandha seemed to help later on but it made my sound sensitivity worse so I stopped taking it. So I literally continued to suffer. I didn't want to take sleep meds for too long. Dr. prescribed mirtazapine around 4th month, but I decided to tough it out. I started taking calcium, magnesium, zinc at bedtime and added glycine powder mixed in water right before bedtime. Though it may just have been the timing that I started seeing gradual improvement between the 4th and 5th months. Do see your PCP if it is really bad and see if they can prescribe something to get through the worse, instead of suffering. So sorry that you are going through the same hell.
@psargie I've also been diagnosed with autoimmune arthritis after the vaccine, and my rheumatologist actually thinks it was triggered by the vaccine. The joint pain makes it harder to deal with the constant dizziness. I feel like it requires super human mental strength to get through this.
Quick update: The constant swaying dizziness/vertigo continues (started first week of July), along with increased tinnitus, fullness, etc. And I'm having episodes where it's actually much worse for a few hours at a time. I'm trying to identify a trigger for those - it may be a supplement I'm taking.
I finally saw the ENT who said my MRI looks completely normal and there's nothing he can treat. He referred me to the dizziness clinic at UCSF for vestib testing and to consult a neuro-ENT. He suspects this is a vestibular migraine reaction of some kind.
@eileenwh There was quite the debate over dosage. It’s prednisone and I end up going with my Boston doctor and doing the more aggressive treatment. Because I do not want to have what happen to me happen again. So I did 40 MG for three days, 30 mg for 3 days and 20 mg for 3 days. I will see how I feel on the three days of 20. And if I have any side effects at all whatsoever. I will stay on 20 for a while. And if I need to I’ll go back up to 30. So I’m basically playing it by ear. I’m also taking an antihistamine. Zyrtec every morning and Benadryl at night if needed. If I’m symptomatic. My symptoms today are headache, cold, sore throat, runny nose, fatigue, tired. But bearable and manageable.
@sandram OMG I have had vertigo since the end of May, I wondered if it was related to the vaccine (got it a few days after 2nd dose) but I couldn't find anything on it. I had to start taking a vertigo supplement just to function. If I miss doses it starts coming back.
Hi, sorry to hear you've had vertigo since end of May, that's horrendous. Have you found anything that actually gives you any relief? I get dizziness a lot and headaches but not vertigo, the room spinning sensation. I've tried prochlorperazine, antihistamines, quercentin, zinc, glutathione, ivermectin, magnesium over the past 7 months and the only thing that gave me relief for the week I took it was ivermectin. Still looking for that magic potion.😏
@jennscout1 So you have had your second now? That's great. Please update on your progress. I am going to ask my doctor if i can do the prednisone/ antihistamines as well.
@yoki Thankyou for the update. Please post again. I am glad it's going so well for you. Hopefully I get as lucky.
@jaydev55 That's really helpful to hear about the beta blockers. One of my neurologists, who believes it's vestibular migraine, made it seem like I needed to get on them in order to return to normal. However, my other neurologist, who is a specialist in vestibular migraines, says that my symptoms don't follow the patterns of vestibular migraines and so she was reluctant to put me on beta blockers.
I will say that when I get these trigger episodes, they're not as acute as they were before. Which gives me some hope. Also, despite the food allergies, I have been ordering the same salad from sweetgreen (couldn't give that up) which was initially a trigger but over repeated exposure it is not anymore. Which also gives me hope.
As for the ear, my ENT believes it's vestibular neuritis and according to her it's a "normal type" of VN. She says it just takes a really long time to get over. Personally I think it could be VN because my imbalance feels concentrated around my right ear. She put me on the diet to help me identify triggers and manage symptoms. As the weeks go by, it feels like someone is turning the dial down on the constant dizziness (that is, when I'm not experiencing a trigger episode). My ENT says that vestibular rehab will help increase my threshold for the food allergies. If not, then she suggested I work with a food allergist to figure out how to reintroduce food.
P.S. I also noticed that my double vision is contributing to my imbalance, so I asked my PT to add some convergence exercises.