@thenystagmus I'm having these internal vibrations in my chest and tingling in my left ankle. It's very scary because I don't know if it's my heart or just internal vibrations from the muscle. I got my first dose of the fighter vaccine in September and these symptoms started one month later. Are you getting better now please give me some hope?
Hi sol, Sorry it's been a few days since I've been able to post since I broke my phone and needed to put it in the shop to get the screen replaced.
I mainly had prolonged vestibular issues, but my vision and the sensory nerves on one side of my face were affected also. I had a few weird muscle issues, enough to imagine how distressing that would be. It took me a long time and I had a number of disappointing setbacks, but yes! I have gotten so much better. I have very few issues remaining now. I know it's really hard to go through these reactions, but I've been so thankful to have others to do it with. If you're concerned that tests could be helpful to you, I hope you have an opportunity to see a doctor and ask about them. Keep hoping to feel better and I'll bet you will over time!
@mina i went to have an abdominal ct scan and long story short I had a huge problem. Afterwards i was unable to digest anything. I am now taking omeprazole and carafate just to be able to eat bland foods. I have an endoscopy next week. This has been a nightmare.
@thenystagmus Check out Cooksey/Cawthorn link below. It helped me tremendously with all my symptoms 22 years ago. These are for vestibular rehab so if that's your issue, they will help retrain your brain.
A Warning (and I'm not a medical professional of any kind, just someone with a history and diagnosis of Meniere's Disease): Doing these will trigger symptoms, so beware, don't start on these if you're weak (I overdid it last week, so had to take break) or too shaky. These have been around a LONG time and helped me when literally nothing else did. No, I don't know if you have Meniere's, but it does sound like you are having vestibular issues and these will help.
https://dizziness-and-balance.com/treatment/rehab/cawthorne.html
Wishing you the best!
Thanks judes! I just recently "graduated" from over 3 months of weekly therapy sessions with an excellent vestibular physical therapist. I received updated exercises each week from my therapist, tailored to my progress. Along with you, I can heartily recommend doing vestibular therapy. Before I started it, I had plateaued and was relapsing into episodes of my initial severity of symptoms. You're right, doing the vestibular exercises will trigger symptoms, but that's what it took for my brain to learn to compensate for my injury. I'm still injured, but most of the time my brain has learned how to work around it. My vestibular PT told me to assess my level of symptoms, say if I was at 4/10, to not trigger my symptoms to increase more than 2 points, say to 6/10. I did what exercises I could tolerate twice each day. (Ok, I took Sundays off ☺️) I really don't think I would be experiencing the recovery I am without having done that.
Wishing you well also! 😏🙏
@mina i went to have an abdominal ct scan and long story short I had a huge problem. Afterwards i was unable to digest anything. I am now taking omeprazole and carafate just to be able to eat bland foods. I have an endoscopy next week. This has been a nightmare.
I'm sorry to hear that the news is not good. I send you my prayers for recovery. Take care.
I have been feeling the exact same as you! My vision has been kind of blurry the past 3 months, where it is difficult to focus on things. It is like the sharpness of my vision is not there anymore, and it is definitely worse when I step out of the house. It feels like I am not present at all and that I am tipsy or something. It also seems to be worse when I am on the time of the month.
I am planning to book a VEPs test to check the nerves behind the eyes, has anyone else tried that?
I can relate to what you're describing. I had vertigo and nystagmus initially and during some relapses, and occilliscopia, where everything in my visual field vibrated.
Didn't do VEPs, but I did a full battery of other vestibular tests at a rehab hospital. I was told I had VOR (vestibular-ocular reflex) dysfunction and was prescribed vestibular physical therapy. I went to sessions for 3+ months, did prescribed exercises twice daily at home and just recently "graduated". I'm not 100% visually recovered, but it helped me immensely!
@medee I wrote about my experience on the page 374. My whole experience lasted approximately 3 months. When I though that I am already fine, I relapsed. The symptoms that lasted longest were heart palpitations during night. I could not sleep well because of that. But everything slowly went away. Now I am about 3 months without relapse and back to my normal.
Hi, what did you do for the palpitations? Or did you let it subside without medication?
I did not have heart palpitations since last one month. Went to a Neuro who gave tablets for nerve pain/anti depressant... took 1 on Sunday since then I have bad heart palpitations.
Now its little less bit still not gone completely. I'm wondering how is it that one tablet caused it to go crazy for so long. By now I qas hoping it will go back to normal as I stopped taking that tablet. Not sure if the side effect of the tablet is still there or the tablet has really caused some issue in my heart. I'm concerned.
I did not take any medication specifically for the heart palpitations. Only magnesium. I let it subside. I used to wake up in the middle of the night and was not able to fall asleep. I had to wait hour or two while it went away and I was able to fall asleep again. I bought blood pressure monitor and when I felt palpitations I measured my BP and pulse. My BP was normal and pulse rate was only slightly increased. It helped me to calm down a little bit. Then my heart palpitations started to be less frequent and finally went away. Thanks god. 🙏
How long did it take to calm down. Mine began post taking an anti depressant tablet. I have developed chest pain and palpitations too. It has been 4 days still the palpitations haven't subsided. It is almost continuous.
@mtmom Hi, I've had exactly the same. I was fine after first two shots of Astra Zenica but 2 weeks after my booster jab of Pfizer I started feeling dizzy pretty much constantly. I have been to doctors, they did full blood test which all came back normal. It's a horrible and scary sensation. I am going to the doctors again in a weeks time. I am going to ask about the possible side effect of the booster jab.
Here is my simplified scenario relating to the vaccine.
Moderna
Shot 1 - 1/27/21
Shot 2 - 3/1/21
Symptoms
3 weeks after first shot - shortness of breathe for 2 months. Only symptoms through April.
mid April - really bad nausea on and off for about two weeks.
All symptoms April till now (not all at once)-
-tingling in head
-headaches
-hot flashes (also felt like I had a fever that would come and go)
-waking up at night with hot flash/sweating
-ears turning red and hot (usually in afternoon)
-sensitivity to temperature (usually to heat)
-hands and feet clammy
-nausea
-ear fullness
-tinnitus
-thumping in ear
-hearing issues
-vision issues to include new floaters (never had them before)
-sensitivity to light and bright screens
-sore throat/feels like something in throat
-rash on upper chest
-shortness of breath
-coughing up mucus with bits of blood in it
-heart palpitations, fast heartbeat
-GI issues
-numbness/tingling in limbs
-muscle tightness/pain
-muscle twitches
-liver enzymes elevated (returning to normal)
- abdominal discomfort (upper abdomen)
-general Ill feeling
-decreased libido
-brain fog
-probably other symptoms that came and went quickly.
Medical response
-Urgent care x3 - no treatment
-endocrinologist- no issues no changes to medication
-gastroenterologist- endoscopy, minor gastritis, prescribed Prilosec 6 weeks.
-pulmonary specialist- lung test, said I may have mild asthma, given prescription for albuterol inhaler (don’t use it)
-primary care/covid 19/long hauler prescribing physician- ordering cytokine blood panel, advised to take Claritin and pepcid AC to lower histamines in body. Ongoing appointments….
What has helped/worked
-Anti inflammation and low fat diet (think Mediterranean diet), removing simple carbohydrates (bread!)and refined sugars. I would say do this for at least a week to see how you feel. I have been drinking a glass (16oz) of lemon water in the morning and at night. Also drinking celery juice once a day(16oz). Oatmeal with blueberries for breakfast, salad for lunch as much as you can eat (lettuce or spinach, tomatoes, garlic, avocado, blueberries, red onion, a bit of cooked chicken and oil olive), dinner is the same salad or something else anti inflammatory, lots of baked vegetables and maybe some baked salmon.
-eating way more fruits and veggies than you thought you could/needed to.
-no alcohol
-probiotics, kombucha once a day and sauerkraut added to most foods or by itself
-working out and moving, prior to getting the vaccine I was running 6-8 miles a week and doing P90x 3-4 times a week. It was very hard to keep that regimen up during this time but getting out and moving has helped immensely. With that said, my doctor has stated that long haulers seem to activate their symptoms more when they work out. For the most part since starting to move again I have not noticed that and feel better when I do get out and move.
-A friend recommended listening to the “medical medium” podcast. I have learned quite a bit about healing the body through food and have incorporated a lot of his advice to flush the body of toxins and inflammation which has helped.-supplements
-liposomal glutathione x2 a day (750mg)
-zinc quercetin x2 a day (400mg quercetin and 22mg zinc), I split the recommended dose so I can have it in my system the whole day. Recommended dose is x1 for whole dose of 800mg and 44mg.
-men’s one multivitamin (rainbow light)
-vitamin C x1 a day (1000mg)
-vitamin D x 1 a day (4000 iu)
-Zyrtec x 1 a day
-Prilosec x1 a day (40mg) for GI
How I feel now (5 months after first shot)
- starting to feel normal, I still have some odd side effects that come and go. Most of the debilitating symptoms have subsided but I still have some muscle twitches, tinnitus (on and off), numbness, discomfort. When I am asleep some of my normal positions seem to cause my limbs to fall asleep faster than they normally would have. But overall I feel that I am healing.
What I have learned in all of this is that I have to learn more about self healing as most of the doctors I have encountered will only treat symptoms and not the root cause of the pain/discomfort. I have also learned that food can heal more than some medicine can.
I would encourage everyone dealing with debilitating symptoms to start changing at least one meal a day to something that is anti inflammatory and progress from there. If anyone has questions, let me know. I am still learning but would be happy to help if I have can.
How are you feeling now?
I received both Pfizer vaccines in March, both with very uncomfortable (flu-like) side effects. After they passed (one week) I was left with daily hot flashes (all day and night). My doctor thinks I'm just naturally going through menopause but before the vaccines, I was menstruating normally and never had a hot flash. As of three days ago, the hot flashes have stopped. That makes me think that they WERE Covid-vaccine related and that they possibly have run their course. Has anyone else had the same experience?
How are you feeling now?
Hi everyone,
Just watched this very interesting interview from a former nurse and now a medical researcher that has suffered a lot of the same symptoms as all of us. Sharing the link. Worth the watch!
Thank you for posting this. Interesting that the nurse/researcher was trying to find "objective" data - test results - that supported his symptoms, as he said MDs tend to focus on the objective data and may not pay much attention to patients' "subjective" descriptions of what they are experiencing.
It is also good to think that kind and intelligent people are trying to figure out what is going on with these reactions.
Hi all,
did some of you guys get vision problems like visual snow after the jab? I have massive vision problems since my first Pfizer jab 6 months ago. All eye tests came back normal. Visual snow fits most to my symptoms. Also I have photosensitivity. I am so frustrated. Did someone get rid of this after a while?
@medee I had Covid 19 Delta Variant Pnemonia in August 30th... Start eating really healthy and felt better than I did before covid. Then I got the 1st dose of Pfizer vaccine 4 weeks after end of symptoms on Oct 15th. Start having what felt like a terrible bladder infection only to find out my whole body had an autoimmune flare. Then came the dizziness and nausea and fatigue. Now the dizziness and nausea is really strong after 5 weeks from the vaccine. Needless to say my doctor confirmed these are residual effects from the vaccine. She said her severe covid patients all are having terrible issue after receiving it. Thanks for posting, I now feel I have some hope and am not going crazy! I have ordered the vitamins you have taken and have followed the anti inflammatory diet you have also. Thank you!
Hello. Does anyone still have insomnia after 4 months? Also is anyone here experiencing neurological and visual issues like visual snow and migraine aura? I am just hoping it will go away with time.