Has anyone tried or explored Dr.Bruce Patterson program? I am looking at least to do the blood work and then decide about meeting one of their doctors. The web site is
@cathymason hi! I’m good! Everything has resolved, including my reduced threshold to migraine, except that I still get mild headaches from reading. But they are totally tolerable. I did vestibular rehabilitation therapy and also am doing Botox migraine treatment, and I think those both have helped, but I have also mostly just healed.
I actually just saw an eye dr at Johns Hopkins Wilmer eye institute yesterday for an evaluation, and she confirmed my eyes aren’t working well together with focusing etc., which is what is likely causing the headaches. So I will do a few months of vision therapy and will hopefully be 100% after that.
Now I just have to worry about it all starting again if I get a booster. I’m 37, very fit with no risk factors, and still have decent antibodies (I had them checked), so I am holding off for now.
I’m curious how long it took for your symptoms to subside? Also, I had my antibodies checked after Pfizer shot 1 and my number was 33.8 for antibodies to the spike protein generated by the shot. Is that considered strong?
@andyl89 I have seen one of your posts where you are feeling headaches . I hope and wish you recovered. I have been going thru with this for the past month. I never had a headache in past .. How did you cope with the headache .. as it is impacting my sleep.
@jkro did you use LabCorp or quest? I don’t know much about quest, but I think their scale only goes up to 20, so I’m assuming you did the Roche test, which measures up to 2500. I had heard from a few doctors/scientists that while they don’t know for sure, 250 should be protective against severe outcomes from delta. But the biologist on FB just posted a new update that they seem to need to be higher than that, so I’m not optimistic. To answer your question, on the Roche scale, 33 is not great. Mine were over 600 at 7.5 months and around 500 at 9 months. But if it wasn’t roche/LabCorp, I have no idea!
I just reached out to my OB about whether I could safely try to get pregnant again without a booster, and she said that with monoclonal antibodies and the new pills coming out she thinks it’s fine not to.
I am now 9.5 months from symptom onset. It took about 2 months for the vertigo to stop, one month for the migraine to stop for even a minute, and about 4 months to stop getting migraines. Since July/August I have just had mild headaches, usually from trying to read but also if I don’t sleep enough or drink enough water. I was able to travel to abroad for five weeks over the summer with two small kids and survive :). But I have had plenty of headache and symptom-free moments, especially in the past two months.
I am doing the Botox protocol for migraines, which has helped immensely, and I recently started vision therapy which is helping a lot!
@atp223 I received my only vaccine sept 3 Pfizer. I had really bad symptoms that were all over the place in the beginning. Neurological symptoms were bad too. Lately I have been in a cyclical situation for feeling better. I have 6-7 days I feel 80-90% and then like today I feel worse. Only I have had more of the weird headache I experienced in the very beginning which I haven’t had in weeks. I describe it as a glitch headache. Also, dizziness has increased, and my numbness in my legs and feet are worse again. I also experienced a new symptom. It is either my throat or my heart. It feels like there is a lump in there or something. I’m not sure what lab the university of Iowa uses. I’m in the states. I just know I am so over this. I also confirmed I’ve never had Covid. I’m needing hope that it will subside forever. I’m also 6 months post partum. Neurology at U of I had blown me off chalking it up to anxiety essentially and immunology there has no idea either. I have been in touch with a neuro immunologist at the nih but he hasn’t been a help either. He just said I’m sorry you haven’t gotten adequate care….I’m like well tell me how and where to get it?!
Is anybody here who fainted after first dose, dealt with the neurological symptoms (dizzines, strong vertigo, brain fog, head pressure) and decided to go on with the second shot of vacicne? How was your experience and did you “prepare” yourself with any medication before or after vaccine?
@tabby Tabby, we wish someone really knew. It seems different for every case I see here, after some months of reading.
Anything you can do to get micronutrients (seaweed, fresh organic greens, spirulina, fresh brassicas like broccoli and kale)and any adaptogens (mushroom powders, astragulus, see https://www.healthline.com/health/stress/smart-girls-guide-to-adaptogens) will possibly help.
I am so angry, that folks are having to figure this out on their own. In general, an inflammatory state has been initiated and things that address that will help....I have also heard that literally eating tuna/fish is helping some folks, due to the proteins involved but can't speak to the mechanism there...
Yes, it's been a long road for some here and we've shared and tried many remedies along the way. It's disheartening to see so many newcomers with similar symptoms, I just hope their journey won't be so arduous.
You mention tuna, a source of many nutrients, Omega 3, magnesium, vit b2 (riboflavin) to mention a few and I wonder whether it's helping people with their headaches/migraines, which many people here have reported? All the above are supposed to help prevent migraine.
I've recently read on migraine.com that people who get migraines have had an increase in their frequency since getting the jabs. I'm a migraine sufferer and mine have increased so I started taking vit b2 recently because it's supposed to help with both migraine and the dizziness that accompanies it. The jury is still out on that one for me but it is early days and the body needs a few months to adjust to it apparently.
I tried the above link but it appears to be broken, at least on my device. Thanks.🙏😊
@tedgell78 In the past, when it comes to its effect going to on way about 3 days. Then it reduced to 5-6 hours. Now 1-2 hours. The biggest problem is it maintains too long :'(
@jaydev55 - I am still at 90-95% recovery. I wouldn't say 100% as I still have floaters and get weird vision sometimes. My floaters are becoming lighter, though. I hope it will go in the coming months, or I will simply get used to them :).
@tabby ah thanks here are the adaptogens from that link - this list is simplified as you can see...
Maybe you already searched articles on adaptogens for stress, there are many articles..mushroom mycelia is also prized for its adaptogenic props, and I do take a blend of that in powder form called Stamets 7; it has about 4 kinds of mycelia (mushroom roots as opposed to the above ground fruit)
| American ginseng (Panax quinquefolius) | Boosts working memory, reaction time, calmness, and immune system |
| Ashwagandha (Withania somnifera) | Reduces stress and anxiety |
| Astragalus (Astragalus membranaceus) | Combats fatigueTrusted Source |
| Cordyceps (Cordyceps militaris) | Boosts stamina |
| Goji berry (Lycium barbarum) | Boosts energy, physical and mental performance, calmness, and sense of well-being, and can also improve sleep |
| Eluethero root (Eleutherococcus senticosus) | Improves focus and staves off mental fatigue |
| Jiaogulan (Gynostemma Pentaphyllum) | Reduces stress and boosts endurance |
| Licorice root (Glycyrrhiza glabra) | Reduces stress |
| Rhodiola rosea (R. rosea) | Staves off physical and mental fatigueTrusted Source |
| Schisandra berry/Magnolia berry (Schisandra chinensis) | Boosts endurance, mental performance, and working capacity |
| Tulsi/Holy basil (Ocimum sanctum) | Reduces physical and mental stress, stress-related anxiety, and depression |
| Turmeric (Curcuma longa) | Boosts brain function and reduces depression |
@tabby ah thanks here are the adaptogens from that link - this list is simplified as you can see...
Maybe you already searched articles on adaptogens for stress, there are many articles..mushroom mycelia is also prized for its adaptogenic props, and I do take a blend of that in powder form called Stamets 7; it has about 4 kinds of mycelia (mushroom roots as opposed to the above ground fruit)
American ginseng (Panax quinquefolius) Boosts working memory, reaction time, calmness, and immune system Ashwagandha (Withania somnifera) Reduces stress and anxiety Astragalus (Astragalus membranaceus) Combats fatigueTrusted Source Cordyceps (Cordyceps militaris) Boosts stamina Goji berry (Lycium barbarum) Boosts energy, physical and mental performance, calmness, and sense of well-being, and can also improve sleep Eluethero root (Eleutherococcus senticosus) Improves focus and staves off mental fatigue Jiaogulan (Gynostemma Pentaphyllum) Reduces stress and boosts endurance Licorice root (Glycyrrhiza glabra) Reduces stress Rhodiola rosea (R. rosea) Staves off physical and mental fatigueTrusted Source Schisandra berry/Magnolia berry (Schisandra chinensis) Boosts endurance, mental performance, and working capacity Tulsi/Holy basil (Ocimum sanctum) Reduces physical and mental stress, stress-related anxiety, and depression Turmeric (Curcuma longa) Boosts brain function and reduces depression
Wow, that's a lot of information. Some of the above I am familiar with but I'll have to take a closer look. Many thanks.👍👍
@tabby Tabby, we wish someone really knew. It seems different for every case I see here, after some months of reading.
Anything you can do to get micronutrients (seaweed, fresh organic greens, spirulina, fresh brassicas like broccoli and kale)and any adaptogens (mushroom powders, astragulus, see https://www.healthline.com/health/stress/smart-girls-guide-to-adaptogens) will possibly help.
I am so angry, that folks are having to figure this out on their own. In general, an inflammatory state has been initiated and things that address that will help....I have also heard that literally eating tuna/fish is helping some folks, due to the proteins involved but can't speak to the mechanism there...
Yes, it's been a long road for some here and we've shared and tried many remedies along the way. It's disheartening to see so many newcomers with similar symptoms, I just hope their journey won't be so arduous.
You mention tuna, a source of many nutrients, Omega 3, magnesium, vit b2 (riboflavin) to mention a few and I wonder whether it's helping people with their headaches/migraines, which many people here have reported? All the above are supposed to help prevent migraine.
I've recently read on migraine.com that people who get migraines have had an increase in their frequency since getting the jabs. I'm a migraine sufferer and mine have increased so I started taking vit b2 recently because it's supposed to help with both migraine and the dizziness that accompanies it. The jury is still out on that one for me but it is early days and the body needs a few months to adjust to it apparently.
I tried the above link but it appears to be broken, at least on my device. Thanks.🙏😊
I have been a migraine sufferer since a child. I'm sensitive to so much stuff that sets me off, from walking past a perfume shop, scented candles, too much caffeine, dehydration, blue cheese, hormones PMS, food colouring etc
I've learnt to manage my triggers over the years but since my first Pfizer vaccine 4 months ago I have had a non stop low grade headache for a month that I just can't shift. It's not bad enough to need any form of pain relief so I generally just put up with it but having a headache this long is worrying. I'm waiting to see a neurologist.
I feel like pineapple juice has been helping a tiny bit as it is supposed to be anti inflammatory. I'm also taking turmeric and omega 3. I will up my intake of greens to see if it helps.
There was an article in the UK daily mail online a few days ago about a man who had suffered from chronic migraines for over 12 years. He cured them in three months by switching to a diet of leafy greens including kale, spinach, broccoli etc.
@saba That’s good to hear you are 90% recovered! And I hope I’m close as I’m at just over 4 months now.. This insomnia is really a nightmare! Are you getting the same amount of hours of sleep now that you were before you took the vaccine? I really hope this insomnia goes away soon!
@jacquelynsauriol Good to hear the wavy vision subsided for your partner! I have the visual snow and also so many weird dots flashing kind of sparkling when I look at the sky when it’s sunny or anything white. Along with a migraine. My eyes have been checked and are fine so I’m sure it’s neurological. It’s horrible and I hope it goes away. Thanks for the links also! The pdf with the covid treatments is very useful. I will show it to my doctor
@lmkk I have the static too and so many of these flashing dots kind of sparkling when I look at the sky when it’s sunny or anything white. I think I also have a migraine coz the headache is mainly on the left side of my head. Currently waiting to see a neurologist as well.