@jkro I am happy to say for now, I am feeling better each day. There are some times where my symptoms hit me hard but I try to stay calm and relax and know it will pass. Like everybody else, I tend to have relapses of different symptoms each day but I can feel my body slowly started to come out of the worst of it. I know it will take time and I have patience. I don’t want to rush my healing and I am giving my body as much time as it needs. I’m staying faithful to my vitamins and trying to keep a good diet and taking care of my mental health because it has been a hard few months. How have you been feeling?
@sickofthis It’s my pleasure! I’m happy to help in any way I can. If you don’t feel better physically, you can help yourself mentally for now and I hope in the coming days you will start to feel the same progress as many others. We got this!!
@tennyson77 Where did you get the test done, if you dont mind me asking? Did the doctor say that those results meant something?
@jkro I am happy to say for now, I am feeling better each day. There are some times where my symptoms hit me hard but I try to stay calm and relax and know it will pass. Like everybody else, I tend to have relapses of different symptoms each day but I can feel my body slowly started to come out of the worst of it. I know it will take time and I have patience. I don’t want to rush my healing and I am giving my body as much time as it needs. I’m staying faithful to my vitamins and trying to keep a good diet and taking care of my mental health because it has been a hard few months. How have you been feeling?
I am having an okay day today. I just came out of a big relapse but before that I went about 10 days with minimal symptoms
I don’t know if this would help anyone on here but I follow a Dr on Instagram called Dr Mark Ghalili (@drmarkghalili) who helps people who have been vaccine injured, specifically the Covid vaccines. I think he is based in LA. There are quite a few videos on his page of people he has helped. Hope everyone on here makes a full recovery
@chels8957 I had it down at a clinic here in Spain. They shoot hot and cold water into your ears one by one and monitor what your eyes do using computer monitored glasses. They can tell my how your eyes respond how your vestibular system is working. For example hot water simulates a type of movement and the eyes respond to it. The final report said I failed some tests due to spontaneous nystagmus (basically when I close my eyes they don’t stay still and instead start wobbling), and my right side vestibular response was different than the left (so like my brain thinks I am turning when I’m not). Basically it all shows there is an issue.
@tennyson77 That is so interesting - I actually had a similar test. I went to a vestibular chiropractor who did all these tests, a few had me wear googles that recorded my eye movements when I looked at a screen with moving images, was moved around in a chair, etc. It showed that my left eye was extremely delayed, causing me to have dizziness, vertigo, more headaches, eye strain, etc. Separately, I had a lot of nerve pain, tinnitus, etc.
Before getting the vaccine, did you have any other health problems? I ask as there must be a commonality between people who have this problem, because not a single other person I know has this issue, and every other person I know is vaccinated (probably 100+ people?). I have previously had nervous system problems like Epstein Barre and Bells Palsy, and before the vaccine I would occasionally get migraines and vertigo. There just has to be a reason why only some people have these problems.
@tennyson77 That is so interesting - I actually had a similar test. I went to a vestibular chiropractor who did all these tests, a few had me wear googles that recorded my eye movements when I looked at a screen with moving images, was moved around in a chair, etc. It showed that my left eye was extremely delayed, causing me to have dizziness, vertigo, more headaches, eye strain, etc. Separately, I had a lot of nerve pain, tinnitus, etc.
Before getting the vaccine, did you have any other health problems? I ask as there must be a commonality between people who have this problem, because not a single other person I know has this issue, and every other person I know is vaccinated (probably 100+ people?). I have previously had nervous system problems like Epstein Barre and Bells Palsy, and before the vaccine I would occasionally get migraines and vertigo. There just has to be a reason why only some people have these problems.
I have a history of migraines, I’ve had EBV but didn’t know it until after the shot as I wanted that tested. I also had some dizziness one year ago but nothing like this. I also failed all of my hearing tests as a kid and had chronic ear infections and tubes in my ears. I also got my tonsils and adenoids removed. My brother also had terrible ears but he did fine with the J and J
@jkro Interesting - thanks for sharing! Yeah, I never even knew about EBV until I had deep blood work after my reaction. I wonder if that is partially what this is? And yeah I have a history of migraines too - my vestibular therapist said that many of her patients that were doing better came back in to see her again after getting the vax. Her theory is that the vaccine attacks weaker parts of your system, or that maybe theres just some inflammation in the inner ear.
@jkro Interesting - thanks for sharing! Yeah, I never even knew about EBV until I had deep blood work after my reaction. I wonder if that is partially what this is? And yeah I have a history of migraines too - my vestibular therapist said that many of her patients that were doing better came back in to see her again after getting the vax. Her theory is that the vaccine attacks weaker parts of your system, or that maybe theres just some inflammation in the inner ear.
I had that theory too. Or was told by the health department that is attacks your weakest stuff but then why do all of us on here have mostly the same symptoms? It’s crazy
@jkro yeah :/ it really is...have any of your doctors had any hints? I wonder if there is some covid vaccine trials that study people who have side effects like outs.
Docs that I’ve seen are worthless. And there were covid vaccine trial people like us. One person from Utah is named brianne and she was paralyzed. Look her up on the internet. They kicked her out of the trial because it was after her first shot and told her she probably had MS. I’m not sure she has recovered.
@tennyson77 That is so interesting - I actually had a similar test. I went to a vestibular chiropractor who did all these tests, a few had me wear googles that recorded my eye movements when I looked at a screen with moving images, was moved around in a chair, etc. It showed that my left eye was extremely delayed, causing me to have dizziness, vertigo, more headaches, eye strain, etc. Separately, I had a lot of nerve pain, tinnitus, etc.
Before getting the vaccine, did you have any other health problems? I ask as there must be a commonality between people who have this problem, because not a single other person I know has this issue, and every other person I know is vaccinated (probably 100+ people?). I have previously had nervous system problems like Epstein Barre and Bells Palsy, and before the vaccine I would occasionally get migraines and vertigo. There just has to be a reason why only some people have these problems.
Some of this is likely my fault, which is why I’m kicking myself. I had the Johnson and Johnson vaccine in Spain in June, after which I went to Italy and did some hiking for a while. After the hiking I went to Canada for a visit, my first time since before COVID.
When I got there all the media reports were thad J&J wasn’t very good at protecting against delta. All my friends there were like yah J&J sucks so you should get something better while you can. I had to opportunity to get an mRNA shot in canada, and there was an outbreak of delta in Spain that I was about to return to. I did some research and there had been studies combining the two (J&J first shot, Moderna second for example). So I figured it was worth doing. So I had a moderna shot in canada before returning to Spain, about one month after the original J&J
As you can tell by me being here, this didn’t work out for me. You can read my previous posts but it started with fainting spells about one week after that second dose and not long after I was in the hospital for low blood pressure and chest pain.
A couple of interesting things looking back:
1) I remember during that hike in Italy (after J&J) commenting to my friend that my vision seemed different. Like I was seeing but not seeing. I just shrugged it off, but I think that was the start of the vestibular issues. Maybe that would have been the end of it had I not had the second one.
2) a few hours before my first fainting spell I had taken my blood pressure medication, which is an ACE inhibitor. It could be I was about to have an episode anyways, or that my blood pressure was low due to side effects and the pill kicked it even lower and caused the first episode. But the blood pressure medication was an ACE inhibitor, and COVID also works by attacking the ace2 receptors. So I wondered if maybe it mistook the ace inhibitor for the virus or something and caused a massive immune response.