@chelsun Hi there. If you don’t mind me asking, what symptoms returned? Did you ever have anxiety? Did that go away if so?
@jaydev55 I did have anxiety and when first diagnoised took ativan, but weaned off it as soon as I could. Anxiety and stress cause our bodies to release a chemical in the blood stream called norepinephrine. People with POTS seem to be very sensitive to this chemical which can cause symptoms like anxiety. In addition, the parasympathetic nervous system which calms us, may also not be functioning normally in POTS.
@sickofthis I had a couple ENT visits in the UK (mentioned in my previous posts) and found them helpful insofar as the ENT explained that inner ear dysfunction - whether viral or directly related to the vaccines - is often caused by inflammation and the vestibular nerve has limited ability to repair itself. Although inner ear dysfunction is lasting and something you always have, the symptoms are not because the body eventually compensates. If the signals from the inner ear are "messed up", over time your brain starts to rely more on proprioception (or the other inner ear if the dysfunction is unilateral) and less on the eyes and gradually the symptoms diminish or disappear over time, which can be many months. Vestibular rehabilitation is designed to speed up that process by forcing the body to retrain the brain and ignore the traditional signals from the eyes.
The view above is actually discussed elsewhere on the VEDA website and in other online links on vestibular compensation and was also expressed to me by two vestibular physiotherapists I've spoken to and who have each been dealing with vestibular problems for 30 years. In my case, time and balance retraining exercises have led to improvements and things are better, although the dizziness/swaying feeling when walking has not completely healed (and neither has the tinnitus). Even unrelated to Covid, there are plenty of people posting online about their symptoms from labyrinthitis and vestibular neuritis and other inner ear problems lasting for many months and even years!
Others on this forum have tried steroids and other drugs prescribed by ENT specialists and others have had full ENG/VNG testing. The ENT I have seen did not think steroids or other drugs were suitable since they mask the symptoms and delay recovery. He also said that scans and ENG/VNG testing would be costly (I'm paying privately rather than going through the NHS given long waiting lists) and would mainly confirm the presence of vestibular dysfunction, something the ENT and physiotherapist I'm seeing figured out during their exams and for a lot less money!
@sickofthis I have been to a couple of different ENT's and really haven't come away with anything. The ENT I saw 2 months after my vaccine diagnosed me with inflammation (because of headaches) and gave me prednisone. That didn't do much. Recently I went to an ENT who specializes in dizziness and he actually diagnosed me with vestibular neuritis (33% weakness in my left ear) 7 years ago. My hearing test was perfect this time around, so they ruled out Menier's Disease and my other tests showed I still have the same weakness in my left ear. So his diagnosis is that I'm dealing with Migranes and that's causing my dizziness, headaches and pressure in and around my eyes. He says this would explain the "flare ups". My friend is also an ENT at the same office, but he thinks I'm dealing with an auto immune response. He's seen a handful of patients come in after getting Covid who are dealing with Tinnitus and he told me he feels that "the autoimmune response is real". Oddly enough my GP just tested me for ANA and inflammation and all was well. So, in regards to your question, an ENT probably won't give you answers, but can definitely rule things out if that's of interest to you.
Do any of you have contact with Bruce Patterson?
I have a few questions:
- he was able to find the spike protein in the Body up to 15 months later, was that the maximum time?
Will we get better without his protocol if we Walt 15 months ?
Hi all.
Got my B-12 results back. Normal range is 200 -1100pg/ml. My B-12 is 350pg/ml. I thought it was ok until I read a lab note stating 5-10% of people with levels of 200-400pg/ml exhibit neurological symptoms. Seems like a basic lab my neuro should have checked, but no. Will start B12 supplementation to see if it helps.
FYI.....folate and Vitamin D are within normal range.
@jaydev55 Rhodiola Rosea (supplement) has been a godsend for anxiety for me. Also there is an essential oil made by vibrant blue oils called parasympathetic- I rub a bit behind my ears @ bed time- amazing for me. My naturopath dr & acupuncturist has so much that he does for covid patients & vaccine side effect folks like me. Not one has been in hospital, all recovered. He told me he believes the vaccine fires up our immune system bringing into the forefront our weakness in any part of the body. So my head- dizzy ,headaches ( used to have horrid migraines yrs ago) . That’s why all the heart problems now- folks didn’t even realize they had heart problems until vax or virus triggered response- I guess we know what having Covid is like or would be for an individual- many different symptoms depending on your own particular illness or weakness
@sickofthis Hi there.. i have been under ENT since last June and, to be honest, am no further forward. I have had numerous manoeuvres for BPPV performed and none have worked, I have done exercises at home and have seen an audiologist at least 6 times. The consultant just sends me off for a couple of months each time and says nothing different when i go bacjk but the audiologist is determined to find out why nothing will settle down in 9 months.
I have had an MRI on my ears which proved negative and an x-ray on my neck (which is extremely painful) which also came back negative. I have seen a chiropractor which hasnt helped and have new glasses which haven't made much difference to the constant headaches every day and light headedness.
I am now investigating the possibility of something called Binocular vision dysfunction which is a possibility why I am still showing vertigo signs, have a very sore neck, headaches every day, light headedness and brain fog to name but 5 things.
Basically I cant say whether or not visits to ENT will help - I am in the UK so its all covered by the National Health Service - had I been paying, I may have stopped earlier but I dont know. Maybe a couple of visits will show you whether its worth it or not
I hope whatever you do, you get some improvement soon 🙂
Thank you for responding. I have very similar symptoms to you (light headedness, occasional headache, sore neck). Earlier when this all started I would explain my "dizziness" (or light headedness) as feeling if I had a couple drinks of alcohol. Lately, its definitely been more light headedness than dizziness, so I am worried it will get worse if they do any maneuvers on me. Not only do I not want to pay for something that will be useless, I don't want them to cause further symptoms as I think I am very very slowly improving.
Still not sure if I will go to my appointment or not.
UK respiratory physician suffering from "long covid" resorts to having his "blood washed" to remove "micro clots" suspected of causing his long covid symptoms. Could this method help us long vaccine sufferers?
A very good post was made in the present days by Jason Hendrick, about the endothelial lesion, on page 917.
Many data can be found on the internet about the fact that coagulation can occur, on large or small vessels, in some people, after vax.
Endothelial damage, vascular inflammation are factors that can lead to clotting.
Side effects after vax are various, very diverse, but judging by the symptoms or remedies that have been shown to be effective, according to official medical articles, it is understood that the mechanisms that seem to be involved are several: endothelial damage, inflammation, coagulation, histamine problems, autoimmune phenomena, etc.
There are mutual interactions between these kinds of mechanisms, for example, clotting leads to inflammation and inflammation promotes clotting.
Therefore, it is difficult to say which was the first, in such new things, as these side effects post vax.
There were people who noticed the spontaneous appearance of bruises on the legs, it was told on the forum, so this could be a coagulation on smaller vessels.
If D-Dimer is elevated, here too, it may be an indicator of activated clotting.
It is very possible that, if certain side effects occur in vax, remedies that prevent hypercoagulation of the blood may be useful.
Even good hydration is a good element in this regard.
Also physical activity.
Smoking and coagulation-promoting medications, such as estrogen hormones, should be avoided.
There are herbs that are said to help thin the blood, a lot of articles can be found on the internet about these plants (turmeric, ginger, hibiscus sabdariffa, etc.) and, of course, they have an easy action.
There are extracts on the market, so more concentrated products, which can have a stronger effect in this regard. For example, pineapple extract (bromelain).
There is also a German product on the market, made from tomatoes, which also promises an effect of helping to thin the blood.
Because nonsteroidal anti-inflammatory drugs are used by many for painkillers, such as ibuprofen, it must be said, they also have a blood-thinning effect. But these drugs better not be used for a long time.
Low-dose aspirin plays a role in preventing clots, is an antiplatelet agent, and is not the same as an anticoagulant. I know it is prescribed for certain severe side effects confirmed post vax, such as myocarditis.
Although it can be bought without a prescription, it is still a medicine, so it is better to always take it under medical prescription. For example, in asthmatics, in case of ulcer. There is also interference with other drugs, etc.
Another observation that can be made: in discussions about the treatment of severe covid, some have argued that low-dose aspirin is not enough and a big step forward in treating severe forms of covid, was the introduction of anticoagulants, when it was understood that vascular distress, associated with the risk of clotting, is a mechanism involved.
@sickofthis seeing the ENT was helpful for me because he did some thing called a VNG which showed the damage was to my left vestibular system and qualified me for vestibular rehabilitation therapy. I think I may have improved on my own anyway, but the exercises helped and my balance is back to normal now. The vestibular physical therapist also identified issues with my eyes that prompted me to have them evaluated by a neuro ophthalmologist which got me into vision therapy, which has substantially helped my headaches.
my ENT also runs a cosmetic Botox side hustle and he talked me into Botox in my forehead which also helped my headaches immeasurably last spring.
I am not sure if all ENT visits would be as beneficial as mine was, but without him I never would’ve done the Botox for my headaches which is what helped me survive 2021, or figured out the vision therapy thing which has been the most important part of my recovery.
That is great that they were helpful!! I see the benefits to doing vestibular rehab but again that would cost more money with no guaranteed result. I have also had my eyes examined and all was normal. Was your dizziness intense or debilitating? I am 4 months out and I think I am very very slowly improving, but its more of a constant light headed feeling now and less of dizziness. Before it was as if I had a few alcoholic drinks and things were just moving slowly and a little blurry.
@mina Ever since I got the 2nd Pfizer vac in July I have lost weight and I eat constantly but can’t put any back on. And also lost muscle mass. Have you experienced that or insomnia and dry mouth?
UK respiratory physician suffering from "long covid" resorts to having his "blood washed" to remove "micro clots" suspected of causing his long covid symptoms. Could this method help us long vaccine sufferers?
A very good post was made in the present days by Jason Hendrick, about the endothelial lesion, on page 917.
Many data can be found on the internet about the fact that coagulation can occur, on large or small vessels, in some people, after vax.
Endothelial damage, vascular inflammation are factors that can lead to clotting.
Side effects after vax are various, very diverse, but judging by the symptoms or remedies that have been shown to be effective, according to official medical articles, it is understood that the mechanisms that seem to be involved are several: endothelial damage, inflammation, coagulation, histamine problems, autoimmune phenomena, etc.
There are mutual interactions between these kinds of mechanisms, for example, clotting leads to inflammation and inflammation promotes clotting.
Therefore, it is difficult to say which was the first, in such new things, as these side effects post vax.
There were people who noticed the spontaneous appearance of bruises on the legs, it was told on the forum, so this could be a coagulation on smaller vessels.
If D-Dimer is elevated, here too, it may be an indicator of activated clotting.
It is very possible that, if certain side effects occur in vax, remedies that prevent hypercoagulation of the blood may be useful.
Even good hydration is a good element in this regard.
Also physical activity.
Smoking and coagulation-promoting medications, such as estrogen hormones, should be avoided.
There are herbs that are said to help thin the blood, a lot of articles can be found on the internet about these plants (turmeric, ginger, hibiscus sabdariffa, etc.) and, of course, they have an easy action.
There are extracts on the market, so more concentrated products, which can have a stronger effect in this regard. For example, pineapple extract (bromelain).
There is also a German product on the market, made from tomatoes, which also promises an effect of helping to thin the blood.
Because nonsteroidal anti-inflammatory drugs are used by many for painkillers, such as ibuprofen, it must be said, they also have a blood-thinning effect. But these drugs better not be used for a long time.
Low-dose aspirin plays a role in preventing clots, is an antiplatelet agent, and is not the same as an anticoagulant. I know it is prescribed for certain severe side effects confirmed post vax, such as myocarditis.
Although it can be bought without a prescription, it is still a medicine, so it is better to always take it under medical prescription. For example, in asthmatics, in case of ulcer. There is also interference with other drugs, etc.
Another observation that can be made: in discussions about the treatment of severe covid, some have argued that low-dose aspirin is not enough and a big step forward in treating severe forms of covid, was the introduction of anticoagulants, when it was understood that vascular distress, associated with the risk of clotting, is a mechanism involved.
@susanfeuerstein thank you Susan. I’ll give the Rhodiola a shot. I seem to only have anxiety at night when I’m sleeping. It wakes me up.
After several visits to ENTs with no consensus on diagnosis, (BPPV, Labyrinthitis etc), I went to a "neuro-otologist" who ordered VNG and caloric testing. The test did reveal 30% damage to my right inner ear. (I had 7 mos of vertigo after J&J among other side effects). At least this test showed definitive damage. I had gone to vestibular therapy throughout the ordeal (of some very debilitating vertigo) but ultimately, I think it was time that was most restorative. My tinnitus is louder than ever and I don't expect that to ever go away. I wish you the very best of luck!
Thank you for your reply. Has your dizziness completely gone away? I have not had debilitating vertigo, just what I would describe now as light headedness. I have had tinnitus to some extent for several years now (I'm only 31) due to family genes and loud noise damage, so I do not expect that to go away but I can live with that. I just need the light headedness, head pressure, and brain fog to go away.
UK respiratory physician suffering from "long covid" resorts to having his "blood washed" to remove "micro clots" suspected of causing his long covid symptoms. Could this method help us long vaccine sufferers?
A very good post was made in the present days by Jason Hendrick, about the endothelial lesion, on page 917.
Many data can be found on the internet about the fact that coagulation can occur, on large or small vessels, in some people, after vax.
Endothelial damage, vascular inflammation are factors that can lead to clotting.
Side effects after vax are various, very diverse, but judging by the symptoms or remedies that have been shown to be effective, according to official medical articles, it is understood that the mechanisms that seem to be involved are several: endothelial damage, inflammation, coagulation, histamine problems, autoimmune phenomena, etc.
There are mutual interactions between these kinds of mechanisms, for example, clotting leads to inflammation and inflammation promotes clotting.
Therefore, it is difficult to say which was the first, in such new things, as these side effects post vax.
There were people who noticed the spontaneous appearance of bruises on the legs, it was told on the forum, so this could be a coagulation on smaller vessels.
If D-Dimer is elevated, here too, it may be an indicator of activated clotting.
It is very possible that, if certain side effects occur in vax, remedies that prevent hypercoagulation of the blood may be useful.
Even good hydration is a good element in this regard.
Also physical activity.
Smoking and coagulation-promoting medications, such as estrogen hormones, should be avoided.
There are herbs that are said to help thin the blood, a lot of articles can be found on the internet about these plants (turmeric, ginger, hibiscus sabdariffa, etc.) and, of course, they have an easy action.
There are extracts on the market, so more concentrated products, which can have a stronger effect in this regard. For example, pineapple extract (bromelain).
There is also a German product on the market, made from tomatoes, which also promises an effect of helping to thin the blood.
Because nonsteroidal anti-inflammatory drugs are used by many for painkillers, such as ibuprofen, it must be said, they also have a blood-thinning effect. But these drugs better not be used for a long time.
Low-dose aspirin plays a role in preventing clots, is an antiplatelet agent, and is not the same as an anticoagulant. I know it is prescribed for certain severe side effects confirmed post vax, such as myocarditis.
Although it can be bought without a prescription, it is still a medicine, so it is better to always take it under medical prescription. For example, in asthmatics, in case of ulcer. There is also interference with other drugs, etc.
Another observation that can be made: in discussions about the treatment of severe covid, some have argued that low-dose aspirin is not enough and a big step forward in treating severe forms of covid, was the introduction of anticoagulants, when it was understood that vascular distress, associated with the risk of clotting, is a mechanism involved.
Thanks for the information. I have always believed that in order to treat this effectively we need to know what is occurring first. However, that is extremely hard to do and there are a lot of theories out there as to what is happening/causing the issues. Some that I have heard are: inflammation, clotting issues, the spike protein is attacking things, the antibody theory, and the list goes on.
I am starting to think it is inflammation or clotting as well. I am going on month 4 of this and have reached the mentality that this has happened to me because of a decision I made and I have to deal with it. I am in that acceptance phase, so now I am past the point of trying to understand what is happening or getting a diagnosis and more about trying to find things that marginally help my symptoms.