@nachtzehrer Moderna was listed in a British/Swedish study as having fewer side effects... But that was only one study, but it is a recent study.
@sickofthis I had a couple ENT visits in the UK (mentioned in my previous posts) and found them helpful insofar as the ENT explained that inner ear dysfunction - whether viral or directly related to the vaccines - is often caused by inflammation and the vestibular nerve has limited ability to repair itself. Although inner ear dysfunction is lasting and something you always have, the symptoms are not because the body eventually compensates. If the signals from the inner ear are "messed up", over time your brain starts to rely more on proprioception (or the other inner ear if the dysfunction is unilateral) and less on the eyes and gradually the symptoms diminish or disappear over time, which can be many months. Vestibular rehabilitation is designed to speed up that process by forcing the body to retrain the brain and ignore the traditional signals from the eyes.
The view above is actually discussed elsewhere on the VEDA website and in other online links on vestibular compensation and was also expressed to me by two vestibular physiotherapists I've spoken to and who have each been dealing with vestibular problems for 30 years. In my case, time and balance retraining exercises have led to improvements and things are better, although the dizziness/swaying feeling when walking has not completely healed (and neither has the tinnitus). Even unrelated to Covid, there are plenty of people posting online about their symptoms from labyrinthitis and vestibular neuritis and other inner ear problems lasting for many months and even years!
Others on this forum have tried steroids and other drugs prescribed by ENT specialists and others have had full ENG/VNG testing. The ENT I have seen did not think steroids or other drugs were suitable since they mask the symptoms and delay recovery. He also said that scans and ENG/VNG testing would be costly (I'm paying privately rather than going through the NHS given long waiting lists) and would mainly confirm the presence of vestibular dysfunction, something the ENT and physiotherapist I'm seeing figured out during their exams and for a lot less money!
Thank you for replying. At this point, I understand that inner ear problems may never completely heal themselves, but I want the compensation to kick in so I can "forget" that it is there. Was your dizziness pretty intense when you had it? Mine is almost more like being light headed, so it is hard to know if it is a vestibular issue or something else. I have ruled out an eye problem so I am unsure now.
@saba How is your sleep now? Insomnia is my worst problem besides the dry mouth. I hope yours is better. I fall asleep and faithfully wake up every 2 hours . 😞
Has anyone had to get the booster? I suffered from severe vertigo following the second dose. I am a healthcare worker and required to get the booster by the end of the month or else lose my job. I am going to my primary to see if I can be exempt. If she doesn’t, I don’t think I can go through that again.
@emmak Hello, I have a question. I'm researching positive ANAs. I'm a teenager. I recently had a positive test of 1:80, since they sent me to do that test because I had various side effects such as numbness in my legs and palpitations, but over time it It disappeared completely and now I feel very well, it's just that the fact that it has tested positive has me worried since it may be some autoimmune disease, but I just saw your comment where it says that you contacted a specialist and you say that it is very common that Antinuclear antibodies are raised positively by the vaccine, right? (mine is pfizer by the way)
@jaydev55 Hi, this is Thelma Ponce, and I had posted that I suffered from mild peanut allergy to a very severe allergy after the vaccine. I did suffer very extreme anxiety but just for one month, thank God. Now after the vaccine I am allergy free even from penicillin, pork and other allergies that I had. In the past I suffered mild anxiety when flying, but after the one month with severe anxiety due to Pfizer vaccine, I am anxiety free even when flying. Weird right?
My take on this is that the vaccine brings to the surface problems that we were prone to suffer from but that were under control. In my case I can travel from one country to another without being medicated any more.
Regarding the booster I WILL NOT HAVE IT. Enough is enough.
@bowie it is interesting, I would to know about this.. do you have more information about this?
Hello everyone!
I’ve been taking a bit of a break from online forums etc as I felt like it was making my anxiety worse.
I wanted to post here and share how I’m doing now that I’ve passed the 3 month mark on my second Pfizer jab. I’ve been on colchicine for my pericarditis for the last almost three weeks and have noticed a considerable difference. Like many others, I too tried every new remedy I came across and never really saw much of a difference. I ended up stopping everything except for: Vit D, Magnesium, Vit B12, Fish Oil and Curcumin (I have to stop this also, as a type 2 diabetic it’s plummeting my blood sugar which I already have controlled with diet and exercise). These things have, I feel, helped with my previous side effects of: all over paraesthesia, brain fog, tremors, dizziness etc.
I did start getting new symptoms which align with POTS. They’re frustrating but nowhere near as debilitating as the previous ones. Heart rate is fine when sitting/laying and jumps by 30+ getting up and walking around. I have what feels like sunburn on my face but no temperature or real hotness. Body aches! My shoulders, back, legs, you name it they are all aching at different times. I was prescribed medicinal cannabis (flower) which has helped a lot with these symptoms. I was referred to an endo and neurologist, I’ve an appointment with the endo in April and I haven’t been able to get into the neuro yet.
I hope this somewhat positive post helps someone and that you are all taking care of yourselves!
@lukenick What has tylenol and zyrtec cause? Is there a problem with both of them together?
@bowie I did see Dr Patterson as a guest on Dr. Bean channel on YouTube. Very impressive, especially his diagrams of what he feels as the problem. He also as a protocol for treatment.
He's based in Northern California and I would see him if I could travel. I hope he gets more coverage. His research lab sounds fascinating. If you do see him, I'd be interested in your opinion.
In case this is helpful in managing pain. Just starting to look into it but it seems like there are resources on how to retrain the brain in dealing with pain (especially when tests, come back negative, etc.)
@sickofthis I was “lucky” that my dizziness has not been intense and there has been no room spinning vertigo symptoms. My dizziness has been more of a light-headed, swaying sensation noticeable only when walking, but not when stationary. It can feel like I’ve had a few beers or like walking on the deck of a lightly rocking boat. I also have tinnitus in the left ear, although I am like some others on this forum in being able to live with that if the balance issues are sorted out.
I suspect that time along with physical activity are the things that help the most, although the timeline can vary for different people. I was queasy for 3 months, but at least that gradually went away. The balance retraining exercises have helped diminish the symptoms, although I only had contact via email with a vestibular physiotherapist for the first few months and his view was “try any exercises that keep you moving”. That helped to some extent, although progress is not linear and it can feel like a case of 2 steps forward, 3 steps back with better days followed by worse days (particularly if you are tired).
I am now seeing a vestibular physiotherapist in person and that has helped since she did a detailed assessment in person rather than online. (The ENT specialist also conducted an office-based assessment when I first saw him). She thinks I am a “visual” person who relies mainly on the eyes for balance and movement, whereas some people naturally rely more on proprioception without them knowing it. The exercises I’m now concentrating on involve optokinetic videos, balancing on one leg, and using a wobble cushion.
One advantage of seeing an ENT is that they should be able to figure out whether your problem is vestibular and related to the inner ears. Others have different views, but I was not desperate for any formal diagnosis since I was almost certain I knew what the problem was based on my symptoms so being told I had “unilateral vestibular hypofunction” or “vestibular neuritis” weren’t as helpful to me as being advised to stay away from drugs that masked symptoms and delayed the process of natural recovery over time. Incidentally, my GP, the ENT specialist, and both vestibular physiotherapists all thought there was little doubt my problems were caused by my body's inflammatory reaction to the vaccine and they have all seen many cases of people with such problems so at least I haven't faced denial from medical staff!