I have an appointment with an ENT in two days, but I am unsure if I want to keep the appointment. I do not want to pay a fairly large amount money for an appointment that will either not find anything, or find something that will "go away on its own". It would be nice to have answers, but I'm not sure exactly what they would find or do for me. It seems like everyone that has gone to the ENT on here has either had everything be normal, or come back with a vestibular neuritis diagnosis. Even if I had vestibular neuritis wouldn't is "normally" go away on its own over time?
Has anyone had a positive and impactful visit to an ENT?
I have an appointment with an ENT in two days, but I am unsure if I want to keep the appointment. I do not want to pay a fairly large amount money for an appointment that will either not find anything, or find something that will "go away on its own". It would be nice to have answers, but I'm not sure exactly what they would find or do for me. It seems like everyone that has gone to the ENT on here has either had everything be normal, or come back with a vestibular neuritis diagnosis. Even if I had vestibular neuritis wouldn't is "normally" go away on its own over time?
Has anyone had a positive and impactful visit to an ENT?
@sickofthis Hi there.. i have been under ENT since last June and, to be honest, am no further forward. I have had numerous manoeuvres for BPPV performed and none have worked, I have done exercises at home and have seen an audiologist at least 6 times. The consultant just sends me off for a couple of months each time and says nothing different when i go bacjk but the audiologist is determined to find out why nothing will settle down in 9 months.
I have had an MRI on my ears which proved negative and an x-ray on my neck (which is extremely painful) which also came back negative. I have seen a chiropractor which hasnt helped and have new glasses which haven't made much difference to the constant headaches every day and light headedness.
I am now investigating the possibility of something called Binocular vision dysfunction which is a possibility why I am still showing vertigo signs, have a very sore neck, headaches every day, light headedness and brain fog to name but 5 things.
Basically I cant say whether or not visits to ENT will help - I am in the UK so its all covered by the National Health Service - had I been paying, I may have stopped earlier but I dont know. Maybe a couple of visits will show you whether its worth it or not
I hope whatever you do, you get some improvement soon 🙂
@sickofthis seeing the ENT was helpful for me because he did some thing called a VNG which showed the damage was to my left vestibular system and qualified me for vestibular rehabilitation therapy. I think I may have improved on my own anyway, but the exercises helped and my balance is back to normal now. The vestibular physical therapist also identified issues with my eyes that prompted me to have them evaluated by a neuro ophthalmologist which got me into vision therapy, which has substantially helped my headaches.
my ENT also runs a cosmetic Botox side hustle and he talked me into Botox in my forehead which also helped my headaches immeasurably last spring.
I am not sure if all ENT visits would be as beneficial as mine was, but without him I never would’ve done the Botox for my headaches which is what helped me survive 2021, or figured out the vision therapy thing which has been the most important part of my recovery.
@sickofthis seeing the ENT was helpful for me because he did some thing called a VNG which showed the damage was to my left vestibular system and qualified me for vestibular rehabilitation therapy. I think I may have improved on my own anyway, but the exercises helped and my balance is back to normal now. The vestibular physical therapist also identified issues with my eyes that prompted me to have them evaluated by a neuro ophthalmologist which got me into vision therapy, which has substantially helped my headaches.
my ENT also runs a cosmetic Botox side hustle and he talked me into Botox in my forehead which also helped my headaches immeasurably last spring.
I am not sure if all ENT visits would be as beneficial as mine was, but without him I never would’ve done the Botox for my headaches which is what helped me survive 2021, or figured out the vision therapy thing which has been the most important part of my recovery.
After several visits to ENTs with no consensus on diagnosis, (BPPV, Labyrinthitis etc), I went to a "neuro-otologist" who ordered VNG and caloric testing. The test did reveal 30% damage to my right inner ear. (I had 7 mos of vertigo after J&J among other side effects). At least this test showed definitive damage. I had gone to vestibular therapy throughout the ordeal (of some very debilitating vertigo) but ultimately, I think it was time that was most restorative. My tinnitus is louder than ever and I don't expect that to ever go away. I wish you the very best of luck!
@bowie I was symptomatic fro 6-7 months, improving over time. Had 3 months of feeling great, but recently have had a flair-up. I think the flair-up is being caused by extreme stress and not following the regime I had myself on to get better. So now, I'm back to monitoring my hydration, being sure to get 2 to 3 liters of water in, Zinc, B12 and using my rowing machine.
I do think many have improved and dropped off this forum, so there is hope you will improve, you just need to find out what works for you follow that regime religously.
Wishing you much improvement!
@windsor I was diagnoised with POTS and did the following: Compression socks, increase hydration and sodium intake. Multi-vitamin that has Zinc, B12 and D3, I also drink half a bottle of Pedilyte for the electrolytes daily, and use a rowing machine to get circulation going without the need to stand. It took 6-7 months, but I did improve.
@simplicisimus Hi there, reading your post i somehow feel we are in the same country. By any chance are you based in the uae?
I think time, great supplements- Alpha lipoid acid for nerve damage, AR-Encap by Thorne for inflammation , vitamin D & C, rest- Glycine helps with sleep & exercise with fresh air helped me the most. I can finally feel the” curtain lifting” so to speak as the side effects have slowly gone away- took 10 months. I am glad I did not see an ENT- would not have suggested diet or supplements , just run a barage of tests & probably- from what I have seen from this blog, not much in the way of solutions. I am all for ANY type of physical therapy - has always helped me the most with physical injuries in the past- broken knee then a few yrs later broken shoulder. I am a klutz that always had to move too fast- not anymore- I take my time...
@chelsun Hi there. If you don’t mind me asking, what symptoms returned? Did you ever have anxiety? Did that go away if so?
@jaydev55 I did have anxiety and when first diagnoised took ativan, but weaned off it as soon as I could. Anxiety and stress cause our bodies to release a chemical in the blood stream called norepinephrine. People with POTS seem to be very sensitive to this chemical which can cause symptoms like anxiety. In addition, the parasympathetic nervous system which calms us, may also not be functioning normally in POTS.
@sickofthis I had a couple ENT visits in the UK (mentioned in my previous posts) and found them helpful insofar as the ENT explained that inner ear dysfunction - whether viral or directly related to the vaccines - is often caused by inflammation and the vestibular nerve has limited ability to repair itself. Although inner ear dysfunction is lasting and something you always have, the symptoms are not because the body eventually compensates. If the signals from the inner ear are "messed up", over time your brain starts to rely more on proprioception (or the other inner ear if the dysfunction is unilateral) and less on the eyes and gradually the symptoms diminish or disappear over time, which can be many months. Vestibular rehabilitation is designed to speed up that process by forcing the body to retrain the brain and ignore the traditional signals from the eyes.
The view above is actually discussed elsewhere on the VEDA website and in other online links on vestibular compensation and was also expressed to me by two vestibular physiotherapists I've spoken to and who have each been dealing with vestibular problems for 30 years. In my case, time and balance retraining exercises have led to improvements and things are better, although the dizziness/swaying feeling when walking has not completely healed (and neither has the tinnitus). Even unrelated to Covid, there are plenty of people posting online about their symptoms from labyrinthitis and vestibular neuritis and other inner ear problems lasting for many months and even years!
Others on this forum have tried steroids and other drugs prescribed by ENT specialists and others have had full ENG/VNG testing. The ENT I have seen did not think steroids or other drugs were suitable since they mask the symptoms and delay recovery. He also said that scans and ENG/VNG testing would be costly (I'm paying privately rather than going through the NHS given long waiting lists) and would mainly confirm the presence of vestibular dysfunction, something the ENT and physiotherapist I'm seeing figured out during their exams and for a lot less money!
@sickofthis I have been to a couple of different ENT's and really haven't come away with anything. The ENT I saw 2 months after my vaccine diagnosed me with inflammation (because of headaches) and gave me prednisone. That didn't do much. Recently I went to an ENT who specializes in dizziness and he actually diagnosed me with vestibular neuritis (33% weakness in my left ear) 7 years ago. My hearing test was perfect this time around, so they ruled out Menier's Disease and my other tests showed I still have the same weakness in my left ear. So his diagnosis is that I'm dealing with Migranes and that's causing my dizziness, headaches and pressure in and around my eyes. He says this would explain the "flare ups". My friend is also an ENT at the same office, but he thinks I'm dealing with an auto immune response. He's seen a handful of patients come in after getting Covid who are dealing with Tinnitus and he told me he feels that "the autoimmune response is real". Oddly enough my GP just tested me for ANA and inflammation and all was well. So, in regards to your question, an ENT probably won't give you answers, but can definitely rule things out if that's of interest to you.
Do any of you have contact with Bruce Patterson?
I have a few questions:
- he was able to find the spike protein in the Body up to 15 months later, was that the maximum time?
Will we get better without his protocol if we Walt 15 months ?