It's been a while since I've been on here. Any way, February 3 marked 8 months that I continue to have constant lightheadedness, waves of dizziness, pressure in my right ear and head (that increases with every dizzy spell), fatigue, brain fog and ringing in my ears. To recap, I have been to multiple doctors including an ENT specialist and have had multiple blood workups, a CT scan and an MRI. All were normal. The ENT assured me this was not vertigo of any type and he could not explain what was happening. No doctor will admit that it is a reaction to the vaccine! I'm angry and ticked off that even after reporting to VAERS and Moderna manufacturers, I have no answers or relief. I have a good life but I want these issues to stop... I still can't even drive my car because of the dizzy spells. Anyone else still suffering? (Sorry I haven't gone back and read previous posts but wading through the non-vestibular issues got to be overwhelming)
I had my second dose of the pfizer vaccine back in May 2021, that's when all my symptoms started. I had all kinds of tests done with ENT and Neurologist and nothing was found, they never really acknowledged that my problems were caused by the vaccine, they would very "discreetly" mention other patients with the same complaints. I was feeling better during the fall and early winter, I thought all the side effects were fading and disappearing, I would occasionally get a "flare up" that lasted a few days. About two weeks ago my dizziness and "feeling of being in a boat" came back along with muffled ears/ringing and weakness, it is driving me nuts, I hate feeling like this and I don't understand why it came back. Today I went to see my ENT doctor and told him I don't feel good he checked my ears did some hearing tests and said everything looked normal that there was nothing else he could do for me because all my tests from last summer were normal and there was no need to repeat CAT scan, MRI and balance tests. I really wish this will go away someday 😔 I'm having bad anxiety and I cried my eyeballs out today after leaving the doctor's office. Is there hope that this will get better? I found this today while searching about "vaccine long haulers"
@gingerjones I think the symptoms will last longer - hopefully and I pray - that I am wrong.
I have just had in the last five weeks - inability to sleep lying down without feeling like my gastric juices and acidity rises up my eosophagus and brings pain and congestion in my middle chest. Alongside stabbing pain as my bladder fills up at night under my left breast until it is emptied. I have also had sever back pain along my spine - spinal CT showed normal curvature. If I stretch and touch my toes it is worst and I then get needles and pins in my feet and legs. have also experienced almost a carpal tunnel type effect in my arms, hands and fingers which come and go. But most interested in what you are doing for the gastritis?
@lookingforanswers I had same 5 days after my jab. I am now four months after. The gums bleeding for me happened directly when I lifted heavy things (or anything really such as shopping bags or my work bag) or did any fast walking or exerted myself to do some exercise (even fast walking that I would’ve easily been able to do in the past). Ive been to see the doctor and it appears that exercise of varying things, or high sodium food or high sugar foods will raise your blood pressure quite quickly after the jab (in my case), so I have been taking it easy, slowing down, not exercising too much and just sound slow walks - very slow - to slow down the increasing blood pressure which causes the bleeding gums. After 4 months it feels a lot better and doesn’t increase so much - but I think it will take another 6-8 months before I can do kayaking or a short jog or bike riding. Ive also cut out high salt foods and high sugar foods. Not sure if this will help you - but hopefully of use. I also but caffeine so that my heart rate and blood pressure are not triggered. The gums bleeding was very scary and at least that has been less prevalent in the last two months.
@lookingforanswers it will get better - your body will fight the symptoms of this mRNA gone wrong - and will win. Just give it the best chance of doing so ♥️♥️
I’ve found a great paper on how fasting for 18 hours in a 24hr period (and eating for 6) can help your body’s immune system generate new cells and boost your immunity. Given the vaccine is an mRNA - this creation of new cells is a potential positive outcome for my body in the fight to stop the mRNA attacking my organs and presenting as an autoimmune disorder - and inflammatory response. In the least it is a good way to help me stay at a good body weight. 😀😀
@lookingforanswers yes, i have seen a lot of doctors but they don’t want to link it to the vaccine. I pray we will heal with time. Stay strong.
If you look through the many pages, there are numerous people that have had gut issues...seems to be one of the main problems...I myself had them for a good three months...I lost a LOT of weight...my GP gave me a prescription for prilosec for a month...after that, I started on a probiotic and H1/H2 antihistamines...gut health is much, much better...
H2 Famotidine/PepcidAC stabilizes mast cells in the gut as the primary action of it. During the COVID outbreak it was very common to see people with gut issues related to the virus and spike protein and Famotidine was the best course of action for this, even in a hospital setting. Also it was part of the Marik Protocol, which was crucial during the pandemic.
Probiotics are essential in my opinion, a key to both mental and physical health. However many probiotics are histamine triggers so one should be careful and research the strains. In addition, virtually every commercial yogurt we've tested doesn't offer many beneficial bacteria by the time they reach the consumer.
There are only 2 probiotic products I ever recommend;
https://www.amazon.com/gp/product/B003V5EEHQ/
and
https://www.amazon.com/gp/product/B07L8MMCZV/
Both of these are careful to avoid histamine triggers.
Hi, Everyone!
I would like to add some links that show how important this therapeutic approach could be.
Histamine intolerance and mast cell activation syndrome (MCAS) are two types of conditions that some people suffer from, but which often go undiagnosed.
There are many sites that list symptoms that can be induced by mast cell-released mediators (histamine and many other mediators).
Some such symptoms are: vertigo, tinnitus, headache, anxiety, neuropathic pain, paresthesia, difficulty in concentration, forgetfulness, sleeplessness, difficulty in focusing, tremor at rest, tachycardia, muscle pain, bone pain and so on.
A complete list of symptoms, for example:
https://www.mastzellaktivierung.info/en/symptoms.html
Other links:
Dr. Lawrence Afrin discusses with Dr. Mobeen about MCAS:
https://www.youtube.com/watch?v=cX6uZKInI7c
Mast cell activation disease: an underappreciated cause of neurologic and psychiatric symptoms and diseases:
https://pubmed.ncbi.nlm.nih.gov/26162709/
Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome:
https://pubmed.ncbi.nlm.nih.gov/32920235/
MCAS can be investigated in the laboratory, so it can provide objective diagnostic elements.
The treatment is very individual and is therefore based on the diet of low histamine, antihistamines H1 and H2, cromolyn, vitamin C with prolonged release and others.
One detail that I think is well known, but it is good to remember, is that anti H1 antihistamines can affect the ability to drive a car.
Another interesting link is about a dietary supplement called luteolin, not very expensive, which can be effective in brain fog (luteolin is something different from lutein, that well-known supplement that helps eyesight):
https://iubmb.onlinelibrary.wiley.com/doi/full/10.1002/biof.1726
Lyme disease is also referred to as MCAS, as it is associated with chronic multi-systemic inflammation.
@lynne I’m sorry to hear that you have the teeth issues. I have bleeding gums. Did you ever have that? I’m very worried. Who do I call , the doctor or the dentist?
I know of quite a few people who have been experiencing teeth and gum problems since their jabs. Go to the dentist and they can give you a letter for your GP if they feel you need further investigation such as blood tests. Don't stress it's more common after the jabs then you would believe, the inflammation caused by the immune response can cause the delicate gums to bleed with inflammation. A visit to the dentist can put your mind at ease.
Maybe some lab tests would be useful if these bleedings occur: platelet counts, anti-PF4 antibodies, fibrinogen and so on, coagulation assays.
I remember reading that anti-PF4 antibodies were only detected for a short time, in a few people, after vax.
Hi everyone. I am a 44 year old male. I received 2 jabs of pfizer vaccine on june and august. And like most of you I was very healthy before jabs. I started to experience several symptoms just 2 days after the second jab including: (tried to sort by onset time of each symptom)
- random jerks and twitching of arms.
- involuntary movements of fingers, toes and even limbs
- facial palsy like spasms and twitches on my face
- numbness and sensitivity changes mainly on my face but also all over my body. (I no longer feel numbness or sensitivity changes)
- Muscle spasms (but they improved now I dont have many spasms)
- random fasciculations all over the body. Especially in horizontal positions. Everything is better when I am standing or walking. I also feel major increase in fasciculations after yawning or sneezing. Also, I can no longer exercise but only walk.
- fatigue and insomnia
- bladder problems.
- unexplained sudden diarrhea coming and going.
- unexplained significant weight loss. But later I gained all my weight and more back.
- prickling and tingling and burning sensations moving all over the body.
- two times I had major electric shock feeling from hip to toes; later smaller electric shocks moving all over the body mostly in my brain.
- redness and pain on several joints but mostly on my knees and my hip.
- tachycardia and feeling of pulse all over the body.
- strange bubbling or popcorn like feelings in my veins.
- blood / metallic taste in my mouth. not have gum problems yet.
- feeling of sudden pain in internal organs. And I sometimes feel like my internal organs are moving inside or twitching. I also feel heat/burning in my kidneys and liver/pancreas not sure.
- Metallic pain in the right eye and right side of the face. No sight problems yet.
- and the most irritating one tinnitus. First it was a feeling like a flapping of bird wings. it diminished. But now it is like a constant metallic sound which reminds me I'm sick even when I dont feel other symptoms. I guess Its stregth changes between a 3-8 on suicide level. So sometımes I dont hear it but when it is bedtime it is hard to ignore.
- and I guess several other symptoms I forgot.
there are remissions and flares. There are changes on the strength of the symptoms. And each flare adds new symptoms to my list of symptoms. There was even a 15-20day period of remission when I thought it went away. But that was a huge mistake. It always came back stronger. Up to now I had 3-4 major remission periods. First remissions were nearly symptom free but later on, even on remission times I felt muscle twitches and bubbling in my veins.
When these symptoms started my initial self-diagnosis was a neurological disease like ALS, CIDP or MS and I was very afraid. I started to read online scientific research, forums, even health books. Now I am pretty sure what I am having is either smoldering or aggressive form of systemic mastocytosis without skin involvement or aggresive MCAS. I really hoped it to be a mild form of MCAS but my condition is really getting worse and worse. The reason for this is that I now feel my internal organs are involved (kidney and liver problems)
I used so many stuff including but not limited to colchicin, statins, ivermectin, antihistamins type 1 and 2, aspirin, d3k2, NAC, quercetin+zinc, L-glutathion.....Rıght now I use prednizone, several antihistamines. I use known drugs for tinnutus. Once a month cupping with bloood to remove some of the toxins from my blood. Only thing that helped is prednisone and cupping.
Altough my doctors tell me this is anxiety only, I know it is not anxiety and it is slowly killing me (according to many medical sites it wont be so slow and probably be faster than ALS). I am worried that if it progresses at this rate I have less than a year. I know aggresive mastocytosis/mcas survival time is about 2 years but I have already used 6 months.
I've had constant vertigo since last summer, going on 7 months.
Never had vertigo before. Can barely walk straight or do simple tasks. Csnt drive or go out at all.
I had both Pfizer shots in April of 2021 and several weeks later the vertigo came on.
I've had VT and no relief.
I hope your symptoms have cleared up.