@mina hi was just reading some of your posts about weight loss and muscle loss was wondering how you are doing. iM me when you get a chance. Thanks .
I fought panic attacks the following way. Carry a paper bag for breathing into it when you feel is coming. Accept the fact you are going to get it and tell yourself i am ready to fight this, come and give me the panic attack because i'm ready to have it..........And it didn't come. It's been 8 years since I had the last panic attack and trust me, asking for it and telling myself that i was ready to have it, was the scariest thing to do, but it worked. The mind is very powerful. Good luck
@asanders I agree what you are going through is not anxiety. It's so frustrating to hear doctors say that. I feel many of your same symptoms and although they are not as pronounced as they used to be (except tachycardia has gotten worse now), they seem to last longer.
Please keep us posted and stay strong. We are not alone.
Pfizer #1- 11/27/21
Pfizer #2 - 12/18/21
Ear Fullness on and off (almost like going up and down the back of the ears) I went to urgent care was given amoxicillin
I do have a penicillin allergy and thought I was having a allergic reaction I started having intense swollen lymph nodes in neck, burning top of back, dizziness, numb and tingling in arms and legs, red spots allover body as of 1/31/22
Symptoms I’m feeling as of 1/31/22 Hot upper back, numb weak legs, chest pressure, disorientation, ear fullness
2/4/22 Head pressure on and off, ear fullness, lower leg numbness and throbbing (right)
02/06 right arm weakness, fingers locking, chest heaviness on and off, chest tightness, ear fullness. Right side chest tightness
02/07 numbness tingling right arm, irregular heart pulse, ear fullness come and go
02/08 head fullness on and off, irregular pulse, lightheaded/dizziness, chest heaviness
Symptoms at ER 02/08 head pressure top of head, sharp ear pain bilateral, left arm throbbing,
*sharpness in chest (R) side in intervals
3:55PM - 3:56PMx2 - 4:48PM- 4:51PM-4:52PM-4:57PM-4:59PM-5:10PM-5:14pm-6:34PM-7:34PM @ ER given IV for dehydration.
Head pressure subsided not present at 4:49P
4:50P front of head on and off restarted pressure - 4:52 PM
Pressure slightly front 4:54 PM
Throbbing right lower leg
02/09- 2AM pressure behind head, extreme dizziness when going to bathroom,
6AM numbness in left hand and tingly, numb and tingles return
02/09/- ear fullness subsided (starting water fast today) ALKALINE DINNER 630PM kale, mushroom, mini cucumber and pear.
02/09 symptoms mild (nose and forehead pressure mildy) heart rate settled, heaviness gone. No ear pressure tonight
Weirdly feels like everything is connected… if I suck my chest in I feel pressure in my face/nose and head.
2/10- when moving or pressing left side of chest pressure in head (L) lower leg numb and tingly, tingling on top of back, (L) arm pain throbbing on and off, numb left side of body, pulling in chest left side, cold sensation left arm. Pulling sensation in nose to head almost takes breath away, chest flutters on and off.
Weird symptom: When pressing roof of mouth pressure felt in head, gets short of breath.
i know my symptoms are a lot I feel like they’re literally new ones daily!
they also onset later than others did, has anyone has similar symptoms that started later than most other peoples?
I’m trying to not go crazy!
(I went to 2 urgent cares and ER twice already)
@fortynowmz Hello… I’m also having left sided chest tightness and when I press the left side I can feel pressure in my head and nose.
elevated heart rate on and off but for the most part it’s when I get I stand or walk.
@tennyson77 That's great to hear (that you haven't fully relapsed into your earlier symptoms)! I'm sorry to hear that you're still experiencing annoying side-effects but I hope these don't last too long... Take care!
Read some interesting articles on rosemary effect on inflammation and cytokines and many other things. Even saw an article that it’s being considered as a tool to fight long haul Covid.
@mina hi was just reading some of your posts about weight loss and muscle loss was wondering how you are doing. iM me when you get a chance. Thanks .
Still not able to regain weight😔
It's good that you're already taking alpha lipoic acid.
Milgamma can also be tried for tinnitus, but of course it is more difficult to get relief for tinnitus.
I know that in cases of MCAS, antihistamines can be taken in higher doses.
Have you also tried Cromolyn or Ketotifen or Montelukast?
Personally, I still believe that chelation therapy plays an important role, in some cases. And I had the opportunity to find out the opinion of some doctors who apply chelation in their activity and they said that clay or zeolite are not very effective.
I knew about the treatment with suction cups, only for colds, pneumonia.
I'm glad that it is effective in such situations.
The treatment to be tried, of course, is made up of trials.
Didn't the neurologists offer any suggestions for treating the fasciculations?
At least magnesium or alkalisation of the body?
I would like to say that articles about myocarditis, as an adverse reaction, show that especially troponin and magnetic resonance imaging have shown changes, compared to other investigations.
Especially troponin, should be easy to control, anywhere.
here is an article on Rosemary benefits
https://www.frontiersin.org/articles/10.3389/fphar.2020.00153/full
I have veins all over my body. i have problems with palpitations shortness of breath
@plandistry what are your thoughts on fluvoxamine? I heard it has effect on mast cells.
@plandistry what are your thoughts on fluvoxamine? I heard it has effect on mast cells.
This is one of the best papers I've found on Mast Cell - it seems to cover all of the bases.
https://www.legalnomads.com/mast-cells/
I am now convinced my wife and her issues post vaccination are entirely a result of mast cell degranulation. We're also becoming convinced she has had undiagnosed MCAS off and on for most of her adult life, and she kept it largely attenuated over the long term with supplements that addressed it. Our issue right now in her cases is she is on so many prescriptions from doctors, and so many potential interactions that our course of action is going to take longer to implement. She is going `to start tapering off the prescription drugs over the next weeks/months, and then slowly adding in Mast Cell Stabilizers. After interviewing a half dozen people with post-Vaccination issues - everything is starting to point to an inflammatory response triggered by Mast Cell Degranulation Syndrome. One thing that stands out - most of the folks I have discussed this with have worsening symptoms at night late, causing insomnia, and progressively worsening with the morning often being bad. If you research mast cell degranulation you will find that it is often at the worst between 1AM-6AM, and mornings can be 'rough' for most MCAS sufferers. This is the case with my wife - her mornings are not easy.
Cromolyn Sodium appears to not have any interactions with anything. So we're likely going to start on that first. (NasalCrom)
Here's the protocol I have developed for my wife we are beginning to implement - but as noted, she's on so many prescriptions from specialists - we're going to carefully integrate these.
1) Begin Cromolyn Sodium Immediately. (3-4X per day)
2) Begin an extended release, pH Neutral Vitamin C Supplement. The reason I want ER is I want this taken at night, then released over the night and into the morning to help attenuate mast cell degranulation over that period. Also it is critical that it isn't an acidic version of Vitamin C because the vaccine mast cell issues have caused gastro-intestinal issues with her and we don't want to flare that up.
https://www.amazon.com/gp/product/B072KCDJJP/
3) Begin ZEOLITE supplementation. I've mentioned it here multipole times, and perhaps the first person in the country to discover this as a potential post-vaccination therapy. However the mechanism of action may be that ZEOLITE attenuates histamine: Zeolite: Functional medicine doctors believe that zeolite can help clear histamine from the body because it acts as a binder for the histamine itself. Zeolite is also used as a binder for metals for some.
3) Integrate my anti-inflammatory protocol in - this contains the following;
Chlorogenic Acid, Quercetin, Myricetin along with the Vitamin C. (I believe this combination may be the most potent mast cell stabilization protocol) A note on Myricetin - after COVID came around, all local sellers of it started having their stock sell out, with no replenishment. The largest producer of it - Source Naturals stopped manufacturing it. Nobody knows why - suspicion being - this may actually be a major factor in post-vaccination recovery. GOOD concentrations of it are in Muscadine Grape Skins. Fortunately for my wife, I purchased a 1 year supply of pure Myricetin when I saw it disappearing so we have that in stock.
Quercetin is very good. Taxifolin (Dihydroquercetin) is largely believed to be better. I have a solid selection of Taxifolin, purchased from Russia as Siberian Larch is in my opinion one of the best sources of it. However it is still available elsewhere. It may be worth MIXING Quercetin WITH Taxifolin to get both forms at once to improve the genesis of it in the body.
At this stage we will evaluate her symptoms and progression, and determine next steps.
After several weeks on this protocol and we see improvements we will simply keep this up for the next 6-12 months - which should be enough time to attenuate the Mast Cell Degranulation, and allow the inflammatory condition to subside.
If she still has issues, I will examine other medications, such as; Histidine, ketotifen, PEA, DAO, Palmitoylethanolamide and others and proceed accordingly until we get full attenuation of the Mast Cells.