I did my tests on my own since no doctors were willing to investigate my case.
Turns out my D-Dimer and ANA came back positive. So that means I have blood clots and some auto-immune reaction/disease.
But I've noticed whatever tablets I've taken since October has only made my condition worse. I don't know why every tablet I took, left an ongoing side effect in my body.
Took Gabapin back in October - Side effect uncontrollable movements (hypnic jerks), tremors, tingling.
This was prescribed to me since i had nerve pain. Just one tablet made the symptoms worse - tremors and tingling. I was feeling better before taking this tablet atleast when I talk about these 2 symptoms then they got worse and got new side effect - hypnic jerks.
Later in the month of November, went to a Neurologist. That dumb guy gave me an antidepressant - Amitone 10mg. I wasn't planning to take it. When I researched about it, came to know it is also prescribed for nerve pain and
Took just one tablet that night and 2 hrs or so my heart rate shot up. I could hear my heart beats. This hasn't gone back to normal yet.
Side effects listed - palpitations, irregular heart beats. It also says it shouldn't 'be taken by someone having heart issues. I had chesst pain back then which I'd told him about but he still gave me this. And I was unaware of it and took it.
After 5 days went to a cardiologist since my heartbeat didn't come back to normal. He pushed a beta blocker... since then all my symptoms have gotten worse. And developed hell lot of new symptoms.
I have this weird coldness in my chest that I developed in January. My chest turns cold and feel this tightness I can't describe. Feels difficult to breathe especially happens when I'm asleep. My chest area is shaky. After I wakeup, half of the day, I feel difficult to breathe. What is happening to me, I don't even know.
Now I'm scared to take the blood thinners prescribed to me for the blood clots. I don't know what to do.
Also any idea why these medications are leaving their side effects in me? They don't vanish. They've stayed since I took the tablets. I'm scared, I'd die.
Ur situations look like me when i got my first dose in july n 5 days after that i got mild shortness of breath but im good,my mistake i go doctor n that stupid doc give me beta blocker that stupid medicine make my shortness breath worse n got dizziness..now still got it...if i dont eat that beta blocker i dont hv to go this forum sorry for my English...
just entered into my 10th month and updating:
1. had horrible 7th and 8th month when I had strong relapses and in every ~2 weeks. now I think it was due to me trying to be active and exercise. I haven't done anything strenuous for the past 4 weeks and no relapses so far. I'll give another month before going to exercise again (and then starting veeery slowly as well). also, no new symptoms have emerged over the past month as well which is good.
2. started to take H1 antihistamines before bedtime and my sleep improved. as soon as I stopped taking them after 2 weeks, nightmares and bad sleep returned. so, now taking them again and also got H2-antihistamines - will see how they work this time.
3. all in all, many things have improved over the past month and at the moment feeling about 85% recovered. unfortunately tinnitus still here and barely have changed over past 2 months (which sucks a lot). at least got a temporary medical exemption.
I will be 4 months out on the 15th and my dizziness has decreased as well, but it does come and go. But I have been experiencing joint pain lately it comes and goes too. My main issue is stiffness is my neck, back, and muscle spasms… it’s driving me crazy!
I also experience my body feeling heavy like heavy limbs…
Has anyone experienced this??
Hi! How is your stiff neck? Has it resolved itself? I’m 6 months since symptoms began. The only thing I’m left with is a stiff neck and persistent tension headaches. It’s a nightmare.
Hi All,
I am now in my 6th week. Crazily I was yesterday so tired that I slept from early evening till next day morning. I had bad heart palpitaions (around 1 hour), but I ignored them, and then they were gone and I had the really best sleep in weeks. While I sleep I am hapy, because I do not know about my realt-life condition and have normally good dreams.
But when I wake up, then I know sad reality is back.
I have 2 huge problems: I am in nonstop anxiety modus and can not focus on anything else than my Vaccine sideeffects (symptoms) and am not more able to go out, read a book, watch a netflix serial (which I loved to do) or to do anything else which distratcs me from my bad situation and lets the time runs out faster, so the days just do not pass in slowmotion.
I can very very hardly do my job (which is a lot of excel-works, and this is pretty hard to focus on all the numbers, mostly after the job the headache symptoms come back)
But thx God, my eye problems & strange vision problems, which I had in the first 3-4 weeks are gone, else doing my job would be nearly impossible (with so many excel-numbers & data-management/calculations)
The other problem of me is, that I am convinced 24/7 that I am on the deathbed already and there is anyway nothing much else than I can do than to wait and see if my body can manage this problems and heal itself.
That's why I want to ask here in this forum: A really earnest question from me:
Guys do you really think that after 5 weeks there is a high chance to die of the vaccinations sideeffects and the damage done to the body?
Please do not get angry me asking this negative qeustion, it is just 24/7 in my mind and I would like to hear what others think about it.
Hi Susie,
sorry for answering you here. But since I have not posted much, I am still not allowed to send you a private message. Well my symptoms since week 3 which have really improved are
that my insomnia is (thankfully) gone. I had horrible insomina directly since the vaccine. I could not sleep a single hour a night. So I took few times some sleeping medication, which have bad sideeffects(like yo are still super down the next day and muscle weakness), but they helped to sleep few days. I took them only every 2-3 days (aound 5 times all in all).
BUt since my insomnia is gone, I do not take any sleeping medicaments anymore.
The only problem since 3 days are again, (which were gone for few days and is back again now) are hot flashes and burning sensations in body and skin) which wake me up during the night.
And I have no idea what to do with this symptoms and why they alway start nights. My only guess is, that the vaccine has also damaged the body's natural autonomic nevous system (which is also regulating together with thyroid hormons) the body temperature and the balance of the whole body temperature process.
This is very unpleasant, but my only hope is that this will stop on its own, when the body's autonomic nevous system and the body hormones are again in balance.
And as you write, "My Anxiety and restlessness" this are also for me both my biggest problems and I have no clue how to handle them in the coming weeks.
Without Anxiety and restlessness, I could easily watch a netflix serial and then go to bed and my Life would be much easier. But with them on board, it is a nightmare, till I get tired enough to go to bed.
So my days are at the moment to somehow get through the day and as soon as I am tired to go to bed. A very sad Life.
@nickpaul Thanks for the details – very helpful and they seem to confirm what my ENT told me on several fronts. First, scans are not necessarily useful since they only measure a tiny cross-section of a very small area and do not provide much detail on actual damage. Second, the costs for going private in the UK are high and he suggested they would be more than GBP 1,000 so perhaps your cost (excluding MRI) was a cheaper rate for insurance companies.
Oddly, being self-funding may have helped me insofar as the ENT read my description of symptoms and “case history” before my first appointment and then conducted a full office exam (Romberg’s test, Unterberger’s test, examination of the eyes and ears, etc). I also had audiometric and tympanometry tests. He seemed almost certain of my diagnosis from the outset. My ENT said “the vaccine really whacked your inner ear” and seemed to have little doubt that was the cause of my problem. Even my GP thought that vaccine inflammation caused the problem so I haven’t faced medical denial or being told "it's just anxiety".
My ENT explained why spending a lot of money on scans and even VNG and similar testing would be costly and would mainly confirm his diagnosis, which he said was “likely left-sided vestibular hypofunction” along with non-pulsatile tinnitus. He told me steroids were not needed and that drugs only masked symptoms without dealing with the underlying problem. He told me at my second appointment that he specifically thought I had Vestibular Neuritis and that the improvements I had experienced thus far were due to compensation.
My ENT and the two vestibular physiotherapists I have dealt with (the first was via phone/email, the second in person) all more or less said that vestibular dysfunction is permanent since the inner ear does not usually repair itself after inflammation or other damage, but that you learn to cope with symptoms through compensation. Even tinnitus doesn’t often go away, but people learn to “tune out” the sound as they habituate.
I’m certainly no expert even though I’ve learned far more about this subject over the past year than I ever would have liked [!], but I think the 22% figure you were given indeed confirms the level of weakness or damage you have. I’m going to ask my vestibular physiotherapist on Monday about the second part of your question on the degree to which these numbers translate into the restoration of normal balance function since I had the same question.
I suspect there may be a general correlation between a higher level of vestibular dysfunction and how quickly someone recovers, but my hunch is that you are correct that each individual differs and there are many variables at play. My physiotherapist has said that some people compensate quicker than others and that age/brain plasticity have an impact on recovery. She also said that some people naturally rely more on proprioception for movement than others who are more dependent on their eyes, which create confusing signals for the brain to decipher, etc.
Anyone have persistent back pain ? Have had for approximately month . Doctor set up xray of back to see if anything. It is not always there and isn't debilitating . But is consistent and wondering if anyone has any relief ? Have taken Advil but can't take forever. Please anyone. Advil did help buy can only take short-term.
Horrible backache started one week after my Pfizer jab. It lasted about 3 months then slowly went away. Using a hot water bottle on it helped with the pain.
What other symptoms did you have and are you any better ? How long has your journey been so far ?
Hi again.
I had a whole heap of other symptoms that began just an hour after my first Pfizer jab.
Main symptoms were brain fog, pins and needles, dizziness, eye problems, tinnitus and uncontrollable muscle tremors.
While some issues have cleared up including my back/spine ache I'm still battling eye problems and pins and needles/nerve problems.
I'm about 7.5 months out from my jab. I have improved since the early days/months after my symptoms were at their worst. Most days I feel about 75% recovered. I find the cold weather makes my nerve problems worse. If the peripheral neuropathy would resolve I would be 95% better and could live with the other stuff.
@asanders how are you doing? Are you losing weight too???
thanks for asking...but I'm not good actually. First 6-7 months I had mainly neurological symtoms, tinnutus, eye pain, dizziness and some very strange feelings in my veins. But right now I have so much bone pain I dont know what to do. I feel like this thing is killing my bones. So two days ago I had bone syntigrafy test to see amount of damage. I am waiting for the results of syntigrafy.
Doctors tell me it probably is not arthritis because all blood test results came back negative except ANA. So I had another series of tests. This time ANA test came back negative but my blood test showed severe inflammation. Since second ANA came back negative now they tell me it probably is not lupus. Funny thing is I have like 5 rounds of blood tests and only 2 of them showed severe inflammation but 3 other was completely normal. So the timing of blood tests is extremely important.
I also started to feel chest/lung pain so I had an X-ray and it was normal. It was a relief.
I also had an EKG and as expected it showed tachcardia and the results also showed that I probably had a Possible Inferior infarct , age undetermined which is possibly another name for myocarditis. I did not even bother to ask the doctors what it means.
Only thing that works for the bone pain is prednisolone and thermo ice packs. Convetional pain killers do not work and sometimes they make the pain worse. One of my doctors told me to stop using prednisone but the other one told me that my dosage is too low so he prescribed high dose IV cortizone. So confusing, I cant decide if I should take the IV or not. But since nothing seems to work for me I think I am gonna take the IV cortizone shot.
Up until now I saw an immunologist, an orthopedist, 3 different neurologists, 1 internal med specialist. I had ozone therapy, bioresonance therapy, cupping therapy from a naturalist doctor. Nothing works.
In the first few months after taking the vaccine, I knew something was wrong but I had hope because I had some good weeks/days. Then I started to have only good days. Now I only have a few good symptom free hours after taking a cortisone pill. thats what it is right now.
I do lose wieght but I dont eat anything since eating makes my symtoms worse. So my weight loss is expected.
@jtrangerhave you stopped losing weight and are able to put weight back on??? Did you have GI issues that cost you to lose weight? I was just WIRED for months like adrenaline rushes it was awful. Has calmed down a lot but the Anxiety is still through the roof.
ONe question, maybe someone knows the answer:
the Covid vaccines, are believed (done by a German report) to be behind an unprecedented accumulation of lymphocytes found in the hearts, kidneys, livers and spleens.
Anyone know if the lymphocytes numbers can be measured by a Blood test? And when not, can they be measured in any other way?
Actually: lymphocytes are a subgroup of the leukocytes. So did the lymphocytes also get automatically measured in the blood test, when they do the measurement for the leukocytes (sorry for my bad knowledge)
Because leukocytres numbers i can see in my last blood test and they were fine.
I am asking, because I would like to know, how to find out if someone has an accumulation of lymphocytes found in the hearts, kidneys, livers and spleens.
Many thanks fpr your answers and help. And sorry for asking too much questions.
Hello,
Have you had H.pylori after the second dose?
I just got a call from my doctor that they found H.pylori in my stomach and have to start immediately on 3 antibiotics treatment.
So I have been wondering if anyone else experienced the same problem. I had my second Physer dose on November, 2021 and since than, I have been with a pain above my stomach and under my chest. The pain was very strong the first couple of days and get lighter with the time. So I am wondering if anyone eles has had the same issue?
Thanks,
Zlatka
I had H.Pylori about ten years ago. I suspect I picked it up on holiday drinking the tap water. It's nothing to worry about antibiotics son clear it up. I remember the pain well it only went away for a while when I ate something. I remember it used to make me burp alot as well which was irritating. I haven't had it since I finished my antibiotics. I did read much earlier on the VeDa forum someone else talking about I after their jab. If you type H.Pylori in the search bar and click search it will bring up all the previous posts that mention it.
just entered into my 10th month and updating:
1. had horrible 7th and 8th month when I had strong relapses and in every ~2 weeks. now I think it was due to me trying to be active and exercise. I haven't done anything strenuous for the past 4 weeks and no relapses so far. I'll give another month before going to exercise again (and then starting veeery slowly as well). also, no new symptoms have emerged over the past month as well which is good.
2. started to take H1 antihistamines before bedtime and my sleep improved. as soon as I stopped taking them after 2 weeks, nightmares and bad sleep returned. so, now taking them again and also got H2-antihistamines - will see how they work this time.
3. all in all, many things have improved over the past month and at the moment feeling about 85% recovered. unfortunately tinnitus still here and barely have changed over past 2 months (which sucks a lot). at least got a temporary medical exemption.
May I ask what H1 you take before bed? And which H2 ..do youbtake them together. What were your symptoms ? What cleared up for you and what was your time frame . Any Stomach issues?
I will be 4 months out on the 15th and my dizziness has decreased as well, but it does come and go. But I have been experiencing joint pain lately it comes and goes too. My main issue is stiffness is my neck, back, and muscle spasms… it’s driving me crazy!
I also experience my body feeling heavy like heavy limbs…
Has anyone experienced this??
Hi! How is your stiff neck? Has it resolved itself? I’m 6 months since symptoms began. The only thing I’m left with is a stiff neck and persistent tension headaches. It’s a nightmare.
What symptoms did you have and how long before they subsided ? Did yiu take anything or do anything?