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Feeling so unwell


Rachie
(@rachie)
Estimable Member
Joined: 4 months ago
Posts: 178
Topic starter  

I am feeling so unwell with all the dizziness, unsteady walking, tight head and sinus, ears, the feeling of disorientation, numbness and pins/ needles in arms legs and feet. I don't think I can take anymore. I've seen Dr's, had paramedics check me over and all  say physically I'm fine except slightly high blood pressure and blood tests showed viral markers slightly raised. I am sitting here crying as want my life back. It has been a living hell since I had the 2nd ofizer vaccine on 6th May. Dr's are no help, have been told its all in my head and to pull myself together.  I feel so desperate right now. 


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Scooter
(@satcoop3903)
Active Member
Joined: 4 months ago
Posts: 15
 

I'm so sorry and can relate to your situation. I hope you have people who can help you, with the daily living. eating. Getting to the bathroom things like that. Is the vaccine for the covid virus? There is something called otoxicity the drugs can cause problems with your inner ear Its hard when doctors don't listen to you . I have the same problem I even had one write in a medical record I was delusional. hang in there try taking Dramamine. 


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linsay
(@linsay)
Active Member
Joined: 4 months ago
Posts: 5
 

Hi, the doctor mentioned it could be a vestibular problem? Like vestibular neuritis


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 6 months ago
Posts: 799
 

Hi @linsay - are you aware that there's another thread here on the VEDA forum that's titled COVID-19 VACCINE SIDE EFFECTS ? There's over 200 pages of posts there with a lot of others going through things similar to what you're sharing ...with lots of different responses & ideas for going through this. You're not alone in this and sometimes it helps just to know you're not alone... 


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 6 months ago
Posts: 799
 
Posted by: @rachie

I am feeling so unwell with all the dizziness, unsteady walking, tight head and sinus, ears, the feeling of disorientation, numbness and pins/ needles in arms legs and feet. I don't think I can take anymore. I've seen Dr's, had paramedics check me over and all  say physically I'm fine except slightly high blood pressure and blood tests showed viral markers slightly raised. I am sitting here crying as want my life back. It has been a living hell since I had the 2nd ofizer vaccine on 6th May. Dr's are no help, have been told its all in my head and to pull myself together.  I feel so desperate right now. 

Hi rachie, I've been feeling pretty low also. This has been going on for me since early March and I'm bone weary of it. I did have some improvement initially, but then I've plateaued at a level that is very hard to live with. I've been waiting for the last month to do the test that my ENT ordered, without with he won't do anything. In the meantime i feel like I've been dog paddling trying to keep my head above water mentally and emotionally.

You say you've seen more than one doctor. Is one of them a primary doctor for you that can continue to follow you? If you don't have one it might be important for you to find one. Emergency care can only go so far ...just basically being designed for getting us through life-threatening situations. Also, have you been seen by any specialists - for instance an ENT or a neurologist? As you may already know, these are some of the doctors that can help with these sort of symptoms. Your answers to these questions may be all yes and you're just hitting brick walls with them.

I finally worked up my courage today to call and ask for a follow-up appointment with the ENT I've one time, so far. The notes on my case said they only wanted to call me after my upcoming testing, so the scheduler left me on hold over and over before she could get someone to agree to schedule me to come back for another appointment, but I kept explaining that I need one and finally got one. It wasn't easy, but I'm relieved I did. I have another 2 week wait until then, but that's gives me something I can hope for.

Even if my suggestions are things you didn't need to consider because you're already doing them, I just wanted to let you know I care about how you're feeling and I hope that you can find some medical care that doesn't leave you just feeling dismissed. You know it's not just in your head, and I do, too ...I'm going through enough of the same symptoms that I know that's not true!


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Rachie
(@rachie)
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Joined: 4 months ago
Posts: 178
Topic starter  

@thenystagmusthank you, I'm in UK.so need referral for ENT, Neurologist etc and gp won't refer. It's nice to know I'm not alone but truly awful that we are all suffering so much because we took the vaccine think g it was the right thing to do and now Dr's leaving us without support. Thank you for reaching out it means a lot to know that people do care x


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 6 months ago
Posts: 799
 

Hi @rachie - I'm in the US and have been reading my eyeballs red, once again! My usual nighttime thing these days. Trying to sort all this through, but you know how that goes... Thanks for writing back.

One more question - there in the UK is there any way you can change to a new GP? Or get a second opinion? Just my first thoughts... I changed my insurance, clinic, and primary care physician after I got into this. I'm retired and had original Medicare and was able to switch to a private Medicare Advantage plan. That put some limits on my costs, but then I started feeling the pinch of having to stay in the HMO's network and got booted out of the vestibular rehab therapy I'd started. I know it will somehow work out for good, because I know there's One in charge that's always working things out! Yup, I 🙏 !

Best wishes your way!


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Rachie
(@rachie)
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Joined: 4 months ago
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Thank you scooter x


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Rachie
(@rachie)
Estimable Member
Joined: 4 months ago
Posts: 178
Topic starter  

@satcoop3903 thank you x 


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Lacey
(@lacey)
New Member
Joined: 4 months ago
Posts: 2
 

Sorry you are feeling this way.  What about seeing a naturopath or trying acupuncture or Physiotherapy? I’m going to be exploring these for myself.  My symptoms are not too bad but my doctor basically told me to ‘drink more water.’ 


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Scooter
(@satcoop3903)
Active Member
Joined: 4 months ago
Posts: 15
 

Hi. I wish there was something I could do to make things better. Sometimes I use a ice cube in a wet wash cloth and put it on my eye and let it sit there. I do both eyes and it helps with the pain. Yesterday was so bad for me I couldn't even look at light. Just lay in darkness all day. hope this helps. Scott


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