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vikiwad
New Member
Joined: 2 months ago
Posts: 1
24/10/2020 4:48 am  

Hello every one.. i am new here!

This topic was modified 2 weeks ago by Cynthia Ryan

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Cynthia Ryan
VeDA Staff
Joined: 10 months ago
Posts: 17
06/11/2020 5:27 pm  

Hi vikiwad - Welcome! We'd love to hear your vestibular story and what you'd like to get out of this forum. 


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Nicola
New Member
Joined: 2 weeks ago
Posts: 2
12/11/2020 6:57 am  

Hello, I'm Nicky from Essex.

 

I have been suffering what I now believe to be vestibular hyperacusis.  I have awful symptoms when in busy areas, and/or where are lots of different sounds at once.

 

This really affects my life 🙁


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Empower3
New Member
Joined: 1 week ago
Posts: 1
16/11/2020 9:24 am  

Good evening everyone,

 

I have joined this evening in a fit of frustration as I find myself struck down with yet another vestibular attack.

I have a non specified vestibular disorder. My consultant thinks it was caused by some surgery I had 6 years ago that caused some crystals to become dislodged. I live with low level dizziness, tinnitus and brain fog daily but every now and again I get a big attack, like now. 

I have had vestibular physio which didn't help much so my next option is surgery which I would prefer to avoid of possible. 

I guess I just feel a bit low that I have to live like this and 6 years feels such a long time. I am a single parent with 4 children so when I get a very bad episode I just have to muddle through. 


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Sonia
New Member
Joined: 5 days ago
Posts: 4
18/11/2020 8:52 am  

Hello Everyone!  I'm Sonia from New York.  My vestibular journey (nightmare) started eight months ago.  One day I woke up and, out of nowhere, my head was spinning.  Since then my days have been filled with doctor's visits (I'm on my fourth neurologist), MRI's, CT scans, x-rays, hospital visits and countless rounds of testing.  All anyone can tell me is that I vaguely have a vestibular disorder.  I completed courses of balance therapy and vision therapy with no luck.

I'm praying for some relief from this disorder that has completely taken over my life.  I'm glad to be here on Veda!


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