Vesties’ Village

Notifications
Clear all

January 21, 2006, the start of hell

2 Posts
2 Users
0 Likes
778 Views
(@kluey)
New Member
Joined: 2 years ago
Posts: 1
Topic starter  

We had gone out for my husband's birthday Friday, January 20, 2006. I had 1 drink. The next morning when I got out of bed it felt like the floor moved, like I stepped onto a surfboard that was on water. This was the start of my "adventure" into hell. I walked and I felt like I was falling to the right, and walking gave me the sensation of ice skating. Sitting felt like I was swinging high on a swing, the sensation of up and down. If my legs were out of view (under a table, for example), it felt like my feet/legs were making circles ... I would keep looking under the table and they weren't moving. When I was sitting or standing I had the constant sensation of movement. When I would go to pick something up I couldn't judge how much strength I needed to use ... I would bounce the milk jug off the shelf above because I used too much strength, or dropped the item because I didn't use enough. I didn't know where my legs were in relation to having them out of the way when I opened a desk drawer, or opened a door, I was constantly hitting me legs and feet with the drawer or the door. I couldn't drive because I could not tell, without looking at my feet, where they were, if they were on the correct pedal. Eventually the constant motion caused nausea ... I spent a lot of time lying down. I am fortunate enough to work from home, and I was allowed to drop to part-time because I just could not put in the full 40 hours per week. I went to my general practitioner who sent me to a neurologist. That neurologist was a jerk! He insinuated that I was faking my symptoms. When he used the tool (looked like a letter opener) to check my plantar reflexes he dug it so hard into my foot that he actually left a scratch that drew blood. When I asked him if he would do an MRI he laughed, but did order the test. I went back to him one more time just to get the results of the MRI, then went to my GP and requested an appointment with a different neurologist. They second neurologist had no explanation for my symptoms but sent me to a neurosurgeon because of what looked like a cavernous angioma on the MRI. The neurosurgeon determined that to be a normal variant, and he too had no explanation for the symptoms I was experiencing. I was sent to a hematologist for what turned out to be thrombocytosis, but he too had no explanation. I was sent to a cardiologist and he asked why I was there. I explained that I had a constant sensation of motion, which apparently he saw in my chart because he interrupted me and in a mocking voice started reading my symptoms from the chart. I got up and walked out of the appointment (I am a medical transcriptionist for a university hospital, and a few years later I transcribed a note on this same cardiologist and he had since developed multiple sclerosis ... it felt like karma). To make this long story a little shorter, I was still having these symptoms 2 years later. I felt it was never going to get better. My family was sick of hearing about it, so I was contemplating checking out. I voluntarily signed myself into a psych unit and learned some coping skills. I know the date the abnormal motion started, but can't tell you when it stopped. It was gradual. I think I just got used to it (I had to). 


   
Quote
 Sand
(@sandstorm)
Joined: 3 years ago
Posts: 37
 

Have  you seen a vestibular and balance specialist in your area? 


   
ReplyQuote