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Almost 1 Year and No Diagnosis! Help!

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(@oskinslay)
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Joined: 2 years ago
Posts: 1
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I am writing this on behalf of my mother since we are helpless at this point and no one can help. My mother during January 2021 - morning time, was outside taking the clothes off after they dried and suddenly felt a feeling as if someone pierced her index finger on her right hand with a needle (maybe a bite), she thought it was strange but then after nothing of it and continued. After a while, she felt pain and pulsating in the exact finger, she went to the woman she gets her nails done by to take off the nail polish and see what’s disturbing the nail, the woman squeezed the nail and pus came out. First, my mother thought it was an infection of some sort and contacted anyone she could, the GP, they did blood tests - they showed that her analysis is fine. We called the ambulance - they came, all they did was checked her sugar levels and her blood pressure and both of which were pretty much fine (sugar was a little lower than usual), we did other tests which didn’t show anything abnormal. Wherever we went, the tests showed that she is fine but her symptoms just keep getting worse to this day. Painkillers don’t help, she has numbness and itchy feeling inside her finger which kept getting spreading up her arm and now she says her whole body is itching, she can’t sleep at night, has to take lots of sleeping pills to get some rest but the symptoms get worse, she to this moment in time feels that her bones in her finger and the other fingers near it are in pain. She had an MRI before and it showed nothing either, we’ve tried almost EVERYTHING! Symptoms: Pulsating everywhere, Itchy feeling around whole body including heart, numbness, weakness, can’t think properly, feels like she will faint when walking, loss of appetite, loss of weight, no sleep, new symptom she got now is her eye sight is worse. GP is refusing to help, ambulance states “they have other people with worse conditions to attend” so they refuse to send an ambulance, no one wants to investigate! My mother is having suicidal thoughts, she cannot do anything she did before, she has all these negative thoughts because no one has diagnosed her in 6 or so months and she feels helpless. If absolutely anyone out there can help find what this is or give some sort of help, I will be extremely grateful. This forum post is my last hope, I can’t see my mother suffer like this, she’s always lived a healthy life and out of nowhere, some sort of bacteria is killing her slowly.

This topic was modified 2 years ago by Oskin

   
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Jwills
(@jwills1)
Active Member
Joined: 2 years ago
Posts: 32
 
Posted by: @oskinslay

I am writing this on behalf of my mother since we are helpless at this point and no one can help. My mother during January 2021 - morning time, was outside taking the clothes off after they dried and suddenly felt a feeling as if someone pierced her index finger on her right hand with a needle (maybe a bite), she thought it was strange but then after nothing of it and continued. After a while, she felt pain and pulsating in the exact finger, she went to the woman she gets her nails done by to take off the nail polish and see what’s disturbing the nail, the woman squeezed the nail and pus came out. First, my mother thought it was an infection of some sort and contacted anyone she could, the GP, they did blood tests - they showed that her analysis is fine. We called the ambulance - they came, all they did was checked her sugar levels and her blood pressure and both of which were pretty much fine (sugar was a little lower than usual), we did other tests which didn’t show anything abnormal. Wherever we went, the tests showed that she is fine but her symptoms just keep getting worse to this day. Painkillers don’t help, she has numbness and itchy feeling inside her finger which kept getting spreading up her arm and now she says her whole body is itching, she can’t sleep at night, has to take lots of sleeping pills to get some rest but the symptoms get worse, she to this moment in time feels that her bones in her finger and the other fingers near it are in pain. She had an MRI before and it showed nothing either, we’ve tried almost EVERYTHING! Symptoms: Pulsating everywhere, Itchy feeling around whole body including heart, numbness, weakness, can’t think properly, feels like she will faint when walking, loss of appetite, loss of weight, no sleep, new symptom she got now is her eye sight is worse. GP is refusing to help, ambulance states “they have other people with worse conditions to attend” so they refuse to send an ambulance, no one wants to investigate! My mother is having suicidal thoughts, she cannot do anything she did before, she has all these negative thoughts because no one has diagnosed her in 6 or so months and she feels helpless. If absolutely anyone out there can help find what this is or give some sort of help, I will be extremely grateful. This forum post is my last hope, I can’t see my mother suffer like this, she’s always lived a healthy life and out of nowhere, some sort of bacteria is killing her slowly.

Hi there. Sorry to hear about your mum. I’d encourage you to read through other posts which may provide clues to your mothers condition. 

I cannot relate to the pus in the finger however some of her other symptoms sound familiar. Prickly pain and numbness is a sign of neuropathy (nerve inflammmation), feeling like she wants to faint is a sign of POTS (postural tachycardia) and cognitive impairment is a sign of brain fog. Has your mother suffered from Covid, recently had the vaccine or any other infection in the past year? Conventional drs may not help and you’ll have to go private to seek the right blood tests. You should do a full autoimmune screening on her and make sure to include auto antibodies, cancer screening, sugar, a vitamin panel and the most common bacterial and viral infections.  Secondly, has your mother attempted any treatments? Make she drinks 3l of water a day, eats an anti inflammatory diet, and takes a vitamin b complex. To treat nerve pain she can take pregabalin or gabapentin. Traditional pain killers may make things worse, id cautiously suggest low dose aspirin as opposed to paracetamol however this may not be appropriate if your mother has a bleeding disorder. Invest in a blood pressure monitor, oximeter and blood sugar device you can use at home to monitor her condition and give her all the reassurance that she will recover. If I’m not mistaken it sounds like she is dealing with an immune related condition such that is inflammatory. Steroids, antihistamines, anticoagulants and vitamins may calm this down but only do patch work and don’t necessarily fix the cause. 


   
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