Nothing really changed in my situation
I still feel sudden frostbite sensation in my legs after long period of sitting.
But i get used to it.. Day by day, I start accepting my new life with a buzzing sensation in the feet during a long walk.
No solid improvements were noticed Even after supplements.
@nawwaf let’s hope time helps, I got my booster at the end January and symptoms started may for me, tingling loss of apetite burning racing heartbeat, I’m ok propranolol for the tachycardia
It’s been seven months now. I continue to get better, but I still suffer most from internal tremors which are terrible and life changing.
I found this article and podcast which helped me feel seen. Technically, it’s about people who contracted the virus, rather than by vaccination.
https://insights.som.yale.edu/insights/heath-veritas-long-covid-ep-12
https://www.shape.com/lifestyle/mind-and-body/vibration-buzzing-covid-19-symptom
@seatempest let’s hope time will help us, I took a vaccination antibody level blood test and found out I have more than 8600 units! That’s almost 6 months from my moderna booster, I’m wondering if having so many antibodies can be related to symptoms
@pepms My symptoms are the same - feet feel numbness inside and tightness in ankles with occasional tingling in hands, legs, face, back. Also occasional burning in feet. I had a test for small fiber neuropathy last week and awaiting results - will post when I get results. There is some new literature about SFN triggered by Covid/ vaccine. SFN can widely affect nerve systems.
Interesting to hear about your high antibody test. Have you consulted anyone about it? I will read about this. Thanks for checking in. Praying your symptoms improve. And others who are suffering.
@r30953 one doctor saw the result but didn’t say anything, it’s so new that I think they have no idea if high antibodies it’s a good thing or it might be too much
i will be repeating test a month after last one to see how are they decreasing and will let you know
@seatempest let’s hope time will help us, I took a vaccination antibody level blood test and found out I have more than 8600 units! That’s almost 6 months from my moderna booster, I’m wondering if having so many antibodies can be related to symptoms
Hi. What's the name of the antibody test?
@buzzgirl Here in my country it’s called anti-sars-cov-2 spike 1 quantitative total antibodies
I was initially diagnosed with SFN,,
after nerve conduction studies and other test the ruled out SFN ..
i think your test will come negative as well..
now I only suffer of cold stings or burst in my legs that reaches up to the thigh.
sometime also feel itching in my arms.
tomorrow i will have a follow up appointment with my neurologist.
i assume he will give me the same answer.. that i have nothing significant in my case !!
@selene53 how is your situation now,,
i still remember how you describe your symptoms by saying “ my body is like a Christmas tree”
i feel exactly the same occasionally..
is there any improvement with you?
@nawwaf How were you first diagnosed ? Then how did they ruled that out? Myself brain mri was clean and also nerve conduction studies, apart from blood tests
My doctor suggested that i had GBS ..
@nawwaf But more specifically to the SFN how did the diagnosed and the rule it out?
@pepms the SFN is usually diagnosed by clinical symptoms
My neurologist thought it is gulien barry syndrome - GBS
then afterwards ot resulted in SFN .
