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Tingling/Numbness In Body

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(@vanessa86)
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Joined: 3 years ago
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I received the first Pfizer early April 2021. At 24 hours all extremities and my tongue became "tingly" and I experienced paresthesia as well as neuropathy/numbness. I was worried about Guillain Barre and spoke with an ER physician, kept a close eye on any progression of weakness/asthenia, but never had what I considered classic GBS progression. Symptoms were most extreme for the first 6-8 weeks and very slowly began to fade over time with no disability beyond the very uncomfortable and sometimes odd sensations. I saw a neurologist who performed extensive testing and confirmed no underlying neurological disease process. She assumed irritation and inflammation of nerve endings caused by an extreme overreaction to the vaccine by my immune system to be the most probable cause of the symptoms. Could this be a mild form of GBS?  Possibly.  What causes some to experience this overreaction and not others remains to be seen and I hope to see emerging trends in the data at some point that will give us a better idea, (and why it's so important to report these sides effects to your national vaccine reporting organization). Much to my own dismay, with the intense pressure to vaccinate, and with implied repercussions around any negative press, many physicians are hesitant to report these side effects as vaccine related. Trust me when I say a small percentage of physicians and other healthcare workers have also experienced these effects, so you are not alone. The vaccine is safe overall but vaccinating hundreds of millions globally in a pandemic means there are bound to be issues, and unfortunately, we are some of the unlucky few. Nerves do heal, albeit slowly, and ours will most likely heal over time (9-12 months is realistic). After several weeks of being relatively symptom free, I've spent the last two days with intermittent paresthesia having returned in my hands and feet.  It's incredibly frustrating and I take it as a sign I need to rest, reduce some stress, and allow my body to continue to heal from the inflammation.  Before its asked, I elected to not receive the second MRNA in my series (in case it was a mild GBS).  I may eventually consider Novavax if it becomes available in my area, especially since I travel. I have never experienced any clinical anxiety, fibromylagia, lyme, or any of the other issues mentioned in previous posts.  I do have dx'd clinical migraine several times a year and treat with OTC.  Stay positive!


   
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(@maddie628)
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Joined: 3 years ago
Posts: 14
 

My son is 7 months into this and not getting better.All tests normal. 3 neuros, cardio, PCP’s you name it. His vision is now distorted and he is slowly losing his ability to cope with daily life.Burning and buzzing in face, vibrations in face chest and head.Numb arms and hands.Brain fog.Exercise intolerance. Change of position from lying down to standing or sitting assumes all symptoms to flare up.he had to move in with us. Was an athlete, body builder, happy fellow till two weeks after second Pfizer shot.Has ANYONE gotten anyany relief and HOW? He is on edge emotionally,.His Dad and I don’t know what to do to help him cope or get better. Mayo Clinic referral was made.. maybe they can find a way to treat?? 


   
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 Oz
(@rosie01)
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Joined: 3 years ago
Posts: 14
 

@johnnyc 

I have been enduring exact same burning sensations and insomnia since my shots. It’s been 2 and a half months of frustrations and doctors visits and bills since. I actually thought I was going through menopause because of the symptoms. I’ve since been to the hospital, a neurologist and gyno. I am hopeful now that it is all vaccine related since seeing your comment. I’m interested to know if you’ve also seen any medical professionals since this all began. Thanks and hope you and I miraculously get better right away. I can’t function during the day with constant lack of sleep every single night. 


   
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 Oz
(@rosie01)
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Joined: 3 years ago
Posts: 14
 

it’s only the soles of my feet that feel like their on fire every night. Sometimes my hands too but my feet are just shocking. 


   
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(@jackgunning)
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Joined: 3 years ago
Posts: 2
 

Hi all,

I have been following this post for some time and wanted to share my symptoms with you. I feel it’s important as I can imagine there are so many people who read this forum for relief but never post! Please feel comfortable to come forward and tell your story as the discussion provides untold anxiety relief to those suffering! 

my symptoms manifested back in March when I had my first vaccine with numbness and a weird feeling in my right arm (same arm as vaccine) at the time I didn’t accociate the feelings I was having with the vaccine and after visiting a neurologist was told it could be anxiety or a mineral deficiency. I have suffered with health anxiety for yours but to be honest it had never felt like this. I then continued to take my second vaccine 20/06 and following this my symptoms evolved further. I have had all blood works done as well as a mri on my brain and spine (all come back clear thankfully) it was only after a month later that I began to research online and found this forum as quite frankly waking up feeling like a zombie every day takes its toll! 

so my symptoms… they are 

 

- brain fog (this has improved) 

- dizziness (this has improved) 

- numbness and tingling mainly on right side 

-muscle twitches these are mainly located in my calves they were originally visible but now have settled slightly

- Right eye has also been feeling weird for some time and twitches constantly. I had 2 in-depth eye examinations both with OCT scans and was told my eyes were in great health. 

it Is really comfortable to hear that I’m not the only one going through this and even more so that the symptoms match how I feel. I would love to hear about more stories and recoveries. I feel like I’m slowly getting better but as many say the recovery is not linear so I guess it’s just a waiting game! 

stay strong everyone hopefully over time we will be heard! 

I am a 29 year old fitness freak and have managed to remain active throughout this nightmare. I do find fitness and a clean lifestyle helps.  

I do hope this message can offer a bit of relief to some and happy to discuss anything further with any of you 

cheers

 

Jack 

 

This post was modified 3 years ago by Jack Gunning

   
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(@shelllynncox)
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Joined: 3 years ago
Posts: 1
 

@johnnyc I had numbness in my right leg about a month ago. Went to the er because I had been so sick since August with sinus infection symptoms and flu like symptoms and my doctor ordered an ultrasound. Said everything is fine and no clots.  
This is my 2nd go round fighting what they call a virus. My 1st go around with flu-like symptoms started 2 weeks after my first shot. My second one was in June. and it started in August. Same exact symptoms as first but worse This time I had to use a nebulizer every 4-6 hours  all the way until a week ago. I’m still coughing and blowing 

What has me worried is Monday my left leg from the calf down went numb and today is Sunday and it’s still numb. 
Did your numbness ever go away and if so how long?


   
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(@lukec99)
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Joined: 3 years ago
Posts: 1
 

Hey I just thought I’d put a post on here to ease people’s minds about the tingling and numbness associated with the vaccine. I had my first Pfizer vaccine on the 23/06 and the day after, I felt weird (like I was drunk). On the same day, I began to experience pins and needles in my feet and legs, along with numbness and constant itching around my body. I felt so fatigued for a few days and I was really really worried that something was up. I then tested positive for Covid-19 on the 30/06 and I felt terrible! I was so ill - I had all the symptoms and I still had the pins and needles and other symptoms when I got my vaccine! I thought that this was related to having Covid-19, but for the next few months, I still experienced pins and needles, numbness, tingling and itching in my body, along with chest pains. I went to A and E and they said it was due to my COVID-19 diagnosis and the after effects of this (even though I had the symptoms before testing positive). I was worried about getting my second dose but f*** it I got my second dose on the 6/09 (I waited 10 weeks as the UK prolonged the gap between doses) because I did slowly begin to feel better! Again I felt pins and needles come back and the tingling and itching - I felt drunk again and I was worried I was going to feel worse. However after a few days to a week, I felt back to normal and now I only rarely experience these symptoms. I take an antihistamine every day and a daily vitamin supplement, which I think helps. The only experience I have with symptoms recurring is when I am under a lot of stress, eat a lot of junk food or when I drink caffeine, which I have reduced since. I just wanted to write this post to give some hope about getting the second dose - trust me I was petrified about getting the second dose as I am a 22 year old fit male otherwise snd I didn’t want to feel worse! But I’m glad I got the second dose and if anyone wants to ask any questions about my symptoms/times etc, ask away!:) 


   
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 Dee
(@medee)
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Joined: 3 years ago
Posts: 650
 

@nat21 I so agree with you. I didn't want to take the vax. I got brainwashed and got it under pressure. I had tingling and tremors post vax which for now has somwhat reduced. However, I now have random nerve pain. But I sense thr symptoms are more when I'm anxious. Mostly feel all of it at night. Not much in the day.

 

I have been having B12 tablets for last 9 days now. But will have to see the GP again as I now have pain.


   
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 Dee
(@medee)
Very Active Member
Joined: 3 years ago
Posts: 650
 

@oshomer I agree with you. I was suggested to intake B12 supplements. Though my tingling and muscle tremors have reduced, I have nerve pain now and will have to see a doctor.

My symptoms started 4 days post the 1st jab of AstraZeneca.


   
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(@nat21)
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Joined: 3 years ago
Posts: 12
 

@medee where do you feel the nerve pain? Is it always present? For me the tingling, shooting pains and twitches seem to be getting better (although some days are better than others). But I do have a persistent pain in my bottom right leg, a bit up from my ankle. It's like having a toothache, it's constantly there but it's not like a muscular pain, more like a nerve pain. If I press on it it's tender and sore. Im pretty certain it's related to this as it was the bottom part of my right leg and calf that was the most affected when I started getting these symptoms. I even had a DVT ultrasound about 2.5 weeks after first shot as I was terrified I had a clot,  but it was all clear

Going to see my GP today to ask about this ongoing pain. May get another ultrasound done. I'm seeing neurologist next Monday also for a follow up. Will keep everyone posted 


   
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(@ksmooth107)
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Joined: 3 years ago
Posts: 1
 

Just discovered this thread here and thought I'd share my story. 

I'm a 40-year old man living in Japan and got the Pfizer vaccine. About 7 days after, I started feeling tingling/numbness in my arms and legs. Additionally, I noticed a sensitivity to temperature--which I first felt when I put my hands under cold running water. It's as if parts of my body have become very sensitive and it almost hurts (not immensely but enough to notice) when I touch a cold surface or even put a cold bar of soap on my body. Now that it's gotten colder as we head into winter, I certainly notice the temperature change. 

I also feel weakness in my muscles and quickly fatigue sets in. The sensation I get is like when you've worked your muscles out a lot or you've held a stretch for a really long time--it's a burning sensation that's hard to bear for long. I feel this even after the littlest movements--going up the stairs, quickly reacting and moving in one direction, etc. 

Lastly, my legs constantly feel like they need to be stretched--I've never felt anything like this. When I do finally stretch, I instantly feel the burning sensation I described previously. 

It's been about 3 months of this so far and I don't see any end in sight. 

I'll lastly add that I did end up receiving the 2nd vaccine shot -- at the time, I didn't put two and two together and think that maybe this all has been related. 

I've been to the doctor and even received an MRI--the doctor isn't sure what to make of it as the MRI shows that my brain and everything else seem to be in good condition. 

None of this has been enough to stop me or affected me enough to inhibit my life, thankfully. I share these things in case others are feeling what I've been feeling; some of these things I haven't yet seen described here (though I haven't read every post on the 40+ page thread here). 


   
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(@jkro)
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Joined: 3 years ago
Posts: 249
 

Have a lot of you seen improvement over time with symptoms? 


   
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(@sfakiami20)
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Joined: 3 years ago
Posts: 3
 

@jkrogmeier I am starting having improvement from the last week (12th week since 2nd jab-3 months)when the pain in the right side of head reduced ..I am having  less tingling in legs but I think that our body is healing from the possible damage in our nerves .. 

Patience to all !

This post was modified 3 years ago by Michail Sfakianoudis

   
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(@richardhall17)
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Joined: 3 years ago
Posts: 14
 

@jkrogmeier I feel like my tingling in hands and feet is about 50% of what it was like initially and I am at week 10 since my 1st Pfizer vax - I have my 2nd vax booked for this Wed so could be very interesting afterwards. I have had every test possible done and they all show that there is nothing wrong with me. 


   
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(@jkro)
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Joined: 3 years ago
Posts: 249
 

@richardhall17 I am 7 weeks post first Pfizer that I didn’t really want to take but got brainwashed into it like someone else said. There was so much going on at the time and all the hype pressure etc got to me and I gave in. My kids also both started school and it’s all a long story. I feel my symptoms are still cyclical but have been spaced further apart and I’m hoping to one day be better. I will not be taking anymore shots. My docs have said I can have an exemption/exception should I ever need one. I am in the U.S. I am amazed there is zero people to help with this issue. I have had lots of testing too and nothing really had been bad. I’m hoping the immunologist I see can help me. I truly think it is a hyper inflammatory state. I think steroids would have cured this but PCP wouldn’t prescribe them. Has anyone taken steroids on here for their symptoms? 


   
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