@jkro Hey JEsse, I can't message you back because I'm not active enough on here. However, my update: my last shot was beginning of June, symptoms started July 5. I feel pretty good now. Little tiny things will pop up every once in awhile. HOwever, I am religiously taking some supplements and a low dose of anti-anxiety medication. My supplements are iron (I had low iron but not anemic), fish oil, vitamin D, magnesium, tumeric (just started this), and vitamin B. I honestly think this has been helping me. Days I forget to take it I feel my symptoms pop up (maybe this is psychological, idk). I feel mostly back to normal. Still will be slightly dizzy sometimes and I feel like I'm sensitive to light now. Sometimes I will have mild tingling in my limbs but this rarely happens to me anymore (more like a slight buzzing feeling now--now the parathesia anymore). I can't remember what else I posted but I had a spinal tap and MRIs, those were all clear. My neurologist I saw didn't know what to think about it. She said to follow up with her if I didn't get better. I did find out I have hashimotos (hypothyroidism) exzymes but my actual hormone levels are mostly normal... so I don't think that is connected to these issues. My iron was also low (23-25) so I take iron. I hope you get better. I would say I probably started feeling back to normal sometime in September.. so hopefully if you line up with me you can start feeling better. I would start taking supplements. I did do an IV bag one time that was a detox from the vaccine (read what they suggested in an article my kids pediatrician sent to me). Don't know if that really helped. It's a complete nightmare, I really struggled mentally. I have four kids. My tiredness feels less now too. I do think sleep is important tho. HOpe this helps!
I have the same sensation like you. A lot of my initial symptoms went away and now I have had internal vibration for few months now. It’s been almost 6 months since it got my first shot and I am so getting tired of this. Now I can’t do a lot of stuff because I am not fully vaccinated. So unfair and doctors don’t know what happened to me or maybe they know but they can’t speak up because here they really want everybody to get vaccinated.
Hi, no, I still have this buzzing internal vibration feeling. I am sad but I do hope you feel better.
Every test came back normal but I still have this buzzing internal vibration feeling, so frustrated.
Is there anyone that is dizzy all the time? I have dizziness more than anything.
Has anyone had weakness sensation in the arms and legs after tingling, 4 weeks after second dose of asterazenca?
@jkro Yeah, me! 🙁 It's pretty much 24/7, not nearly as severe now as the first two weeks. Also different and slightly better is that it also feels less "spinny" and more like I'm going to fall over.
@judes if I could get rid of the dizziness/vertigo I could handle the other things I have going on a lot better. Anything you find to make it better? The first three weeks were the worst for me. I couldn’t drive or function.
@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi much of what you say is true when you are distracted and doing things you seem to notice the pain less being calm and not being anxious helps as well I fine to . About the weird feeling in your head I found initially with the vaccine that it made me hyper active and wasn’t able to sleep properly having insomnia things have calmed down since but not quite They’re yours before the vaccine. I noticed also my blood pressure and heart rate we’re up and now I think it’s coming down again. It was me who mentioned the nerve pain pins and needles and burning sensations to my GP and br there yet before the vaccine. I noticed also my blood pressure and heart rate were up and now I think it’s coming down again. It was me who mentioned the nerve pain pins and needles and burning sensations to my GP And heart pounding sensation did a ECG and blood test came back normal but didn’t feel normal to me after the second opinion from another doctor he referred me to a neurologist but I can’t get in till early next year I am trying to maintain a healthy diet and rest hoping this condition will slowly go away I am about just over seven weeks from first Pfizer jab things are calming but not gone for people out there there is hope
My neuro has given me a tablet for folic acid and some vitamins. And one for nerve pain/anti depressant.
Does the palpitation go off on its own? Its only one month down for me.
Today is just the 1st day of the medication but the meds have a side effect of palpitations. So now I've just woken up from my sleep as palpitations were very high.
@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi much of what you say is true when you are distracted and doing things you seem to notice the pain less being calm and not being anxious helps as well I fine to . About the weird feeling in your head I found initially with the vaccine that it made me hyper active and wasn’t able to sleep properly having insomnia things have calmed down since but not quite They’re yours before the vaccine. I noticed also my blood pressure and heart rate we’re up and now I think it’s coming down again. It was me who mentioned the nerve pain pins and needles and burning sensations to my GP and br there yet before the vaccine. I noticed also my blood pressure and heart rate were up and now I think it’s coming down again. It was me who mentioned the nerve pain pins and needles and burning sensations to my GP And heart pounding sensation did a ECG and blood test came back normal but didn’t feel normal to me after the second opinion from another doctor he referred me to a neurologist but I can’t get in till early next year I am trying to maintain a healthy diet and rest hoping this condition will slowly go away I am about just over seven weeks from first Pfizer jab things are calming but not gone for people out there there is hope
My neuro has given me a tablet for folic acid and some vitamins. And one for nerve pain/anti depressant.
Does the palpitation go off on its own? Its only one month down for me.
Today is just the 1st day of the medication but the meds have a side effect of palpitations. So now I've just woken up from my sleep as palpitations were very high.
Hi I’m just out over seven weeks after first Pfizer jab the palpitations were more common at the start when I got a vaccine probably looking back the first 5 to 6 weeks Have seen it gradually calm somewhat At the start I used to wake up in the middle of the night where are used to feel it quite often and felt like heart was beating harder than normal and I mentioned it to my doctor at the time but had no reason for concern as well as my Blood pressure which was good before vaccine was elevated slightly when having the symptoms I find the symptoms have eased off somewhat naturally and my blood pressure has improved a little it hasn’t gone away completely but I feel that it is getting better with time I hope over the next weeks and months it improves more
I just wanted to update everyone on my condition. When I first started feeling these symptoms 6 days later I went to the ER. I ended up getting every test done under the sun. The spinal tap revealed I have oligloclonal bands in my csf and serum which is consistent with an inflammatory polyneuropathy. Most likely I have Guillian Barre. My advice to those of you who are having the same symptoms I have is to get checked ASAP. I will detail my symptoms below in the order they presented.
9/10/21- received second dose of Pfizer vaccine. No issues until 24 hours afterwards. 24 hours later I began having head pressure and brain fog. That lasted 5 days. About 5 days later I started having this very sharp and intense pain in my left rib cage. No matter what I did it wouldn’t go away. It was worse at night. I couldn’t get comfortable and nothing helped it. That lasted for about 4 days. It still comes and goes every now and then. Exactly 2 weeks after getting the vaccine I began feeling tingling in my hands and feet. (Or at least that’s when i noticed it, could have been there before the 2 week mark). I brushed it off as a simple side effect. The tingling started progressing over the course of several days to my legs, arms, and upper back. Over the last week I have developed back pain both lower and upper and in my buttocks. The tingling in my lower back has become more pronounced. Over the last 2 days the tingling has spread to my teeth. My teeth feel numb. I am currently 3 weeks out from the time my tingling started. I have not experienced any weakness yet. I pray to God that this is a very mild case and I recover very soon. Please don’t let the doctors blow you off. I am terrified this is going to take a turn for the worst.
@tashley also what is the prognosis long term? I looked these bands up and it talks about MS too. Did you get an MRI of your brain? Any other imaging? I’m just curious because I had ct/mri and they were negative so my neurologist won’t do a spinal tap
I have not seen anyone yet. I just received my csf results today. 2 weeks after the spinal tap. I saw these results on my patient portal. However, a good friend of ours is an ER doctor. He’s the one who did the spinal tap. He told me what the results mean. Now I have to wait for neurology. I asked him if I need to come back to the ER to get admitted because from what I read GBS patients need to be closely monitored just in case their respiratory becomes compromised. He told me at this time I do not need to go to the ER because I have not developed any weakness. But who says that won’t come later on this week? Or tonight? I am just extremely scared right now. We just had our 6th baby and she’s 4 months old and I’m terrified I’m not going to get to see her grow up.
@tashley I thought you see one who is post partum like me. I have a six month old who is my third child and I have the same fears you do. I’m so mad at this situation. I wonder if anyone else on this forum has gotten a spinal tap? When will you be talking to your neurologist? Have you taken any steroids?