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Tingling/Numbness In Body

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Jessie
(@jkro)
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Joined: 1 year ago
Posts: 249
 

Who on here also had wicked crazy nightmares when you did sleep?


   
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Jessie
(@jkro)
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Joined: 1 year ago
Posts: 249
 

@carlandrews also in addition to vaers report it to Pfizer or whoever made your shot please 


   
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Amawe
(@amawe)
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HelenB
(@helenn)
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Joined: 1 year ago
Posts: 44
 

@kmk3 

 

Hey, I've been browsing this thread just for hope to go on and I just saw your post. I haven't seen anyone else describing the icy feeling you did, but I ALSO had it a month after my first and only Pfizer shot. I was on the floor crying and thinking I was gonna die or lose my legs. I still haven't recovered, I have about everything ppl on this thread listed and some more. But my bones stopped turning into ice after 2 weeks (still feel cold at times). I have other symptoms now. I am waiting for MRI, so far I've been thrown under the bus by doctors. It's been about 3.5 months now. I thought it was getting much better and then BAM it went downhill again. 

Still, I think it is improving but it has destroyed me. I have no energy left, I go day by day hoping there will be an end one day. Most people don't believe me. I know I feel bad when the symptoms start. On good days I function fine. I am not depressed, I want my old body back so this is slowly making me depressed. I used to be a runner, healthy, thin and happy. Now I'm skin and bones and I still can't eat properly. I have two young kids and no help other than my husband. I feel so unlucky and I thought the doctors would help or want to know about it but I can only just try and carry on and hope it will carry on improving and never ever come back but I'm worried sick.

So basically what I wanted to say is that your symptoms very much belong here and if others improved we can too! Keep going!! Hot baths help me to an extent. Expensive water bills are coming....


   
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healmeohlord
(@floryeo)
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Posts: 180
 

@shelleyzou i have insommis too...the braun just dont go to dleep mood even with sleeping pills


   
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cee
 cee
(@tinglyin2021)
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Joined: 1 year ago
Posts: 14
 

Vitamin b complex really helps.  Doesn't totally aliviate but reduces tingling/pins and needles


   
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Ess Emm
(@essem92)
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@eileenwh I also was fine after about 4 months


   
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Tina
 Tina
(@tashley)
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Joined: 1 year ago
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@floryeo 

So do I. I’ve been taking Benadryl and it’s hasn’t helped at all. It’s like my whole internal clock is off. I go to bed and end up waking up at the exact same time every single day. 4:30am every morning. I’m so tired of this


   
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Jessie
(@jkro)
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@helenn you got better and then got worse? I urge all of you that are in the United States to contact your federal senators, the White House, your governors and anyone in legislation that will listen. 


   
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KitKat
(@lmkk)
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Joined: 1 year ago
Posts: 438
 
Posted by: @nawpan

@lmkk 

How long have you had the vaccine?  I agreed about doctors know but didn’t want to admit it.  When my Neurologist called me and said everything is fine from the results that he read.  I asked this mean I am okay then?  Nothing to worry about and he kept saying based on the test and the result that I got, I am fine. I am thinking of calling him back and I need to draft my conversation out first how to go about asking him more questions. My doctor referred to another Neurologist but I won’t get to see him until next Spring.  I really really hope we will get better soon.

I'm going to prepare a list of questions to take to my neurologist too. There are several conditions I have seen others diagnosed with in here who I share symptoms with so I'm just going to ask them to check me for as much as possible. It's such a long wait to see anyone so I need to make my appointment as productive as possible. I have read people on here waiting months for an appointment only to be fobbed off and shown the door after an unsatisfactory twenty minute appointment. I won't leave till I get some answers or get Sent for further investigation. I will share my list of questions and conditions with you that I want them to look at as there may be stuff you can find useful too. 


   
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KitKat
(@lmkk)
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Posted by: @floryeo

@lmkk are u taking medication for GBS?

There isn't anything that can be taken to help GBS it's really a case of time being a healer. But it is known for taking many months for the body to repair itself. You can support your healing process with alpha lipoic acid, turmeric, B vitamin complex, omega 3 to get rid of the inflammation in the body. Steroids are an option in severe cases of GBS. My doctor advised me to wait it out.


   
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KitKat
(@lmkk)
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Posted by: @montydes
Posted by: @lmkk
Posted by: @montydes
Posted by: @medee
Posted by: @montydes

I don't think it's GBS as it says that happens on both sides simultaneously, mine's only on one side - but I agree it's some kind of nerve inflammation/irritation.. I'm hoping it gets better soon or at least goes into remission for a few days!

If it helps anyone, using a TENS machine can distract you from it for a while..

I'm seeing Neuro again tomorrow so will update then.. no sleep again so exhausted from it all 🙁

Hi, have you visited the Neurologist again? What did they say?

What were your symptoms?

Hi,

The neurologist doesn't think there is any neurological explanation for the buzzing and is taking me off Gabapentin , all tests have come back clear and he was adamant it wasn't GBS as my symptoms alleviate intermittently and with GBS it's pretty constant.

I'm now seeing a mental health crisis team who are visiting me at home tomorrow as I attempted suicide yesterday, currently on diazepam but it STILL doesnt stop the buzzing!! Standing up and walking appears to help a bit and any distraction from it helps. I don't know if it's anxiety or a weird nerve irritation from the vax.. more research is badly needed.. The nurse in A&E hadn't heard of many side effects from Pfizer either?

 

Hi @montydes

How are you feeling today?

Please know you are not alone we are all going through similar stuff with you. Next time you start to feel down or alone just come on here and vent it all out you are in good company on this forum and we can all sympathize with each other as we know that what we are suffering from is REAL even if the medical community refuse to acknowledge that this is a vaccine related injury. If you start feeling suicidal please please call someone. Are you in the UK? You can call Samaritan's free in the UK. If you are in the USA there must be a similar charity in place? Thinking of you. 

Hi @KitKat

aww thanks for the concern, really appreciated, I don't have any friends to call upon so this really means a lot to me 🙂 

I've been feeling much better since Saturday - 2 solid days with absolutely no buzzing so I'm back in my "green phase" from the red phase which went on for 7-8 days.. I take comfort in knowing this is cyclical and to look forward to the good days which will happen. Positivity is definitely needed!

Unfortunately once I'm in the "red phase" I tend to panic and this is what I need to change, my panic response - hoping the shrink can alter my meds to give me that much needed boost as my adrenal glands are totally exhausted!

I still think there is a physical neurological element to this. When I simply touch my knee I get electricity sensations down my leg to my foot! I don't think anxiety is that advanced but who knows?!

I'm hoping the green phase continues, will keep you all posted..

Thanks again and take care all 🙂

Steve

 

Glad to hear you are doing better. It's so easy to get lost in despair when nobody around you can understand what you are experiencing. Luckily here we are all in the same boat. 

I agree with the physical neurological element. I have read posts on the VeDa forum where people have described just the sensation of shower water on their skin was painful after their vaccines.

I have read that sufferers of GBS can (not always) experience skin pain if someone/thing touches their body. Once or twice in the first few weeks after my Pfizer vaccine when my symptoms were really bad I did notice my skin seemed more sensitive to the shower water and wind blowing on my skin but these sensations calmed down after a few weeks.

I hope you stay in the green phase too! 👍🙏

 


   
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Natalie_CA
(@nawpan)
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Joined: 2 years ago
Posts: 79
 

@lmkk

Awesome thank you, please share the list with me.  I am doing meditation daily and it seems to calm me down.  Once when I started meditating, I could feel my body vibrate but after maybe a minute into a meditation, it stopped.  I guess being anxious doesn’t help.  I never had anxiety before the vaccine.

This post was modified 1 year ago by Natalie_CA

   
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HelenB
(@helenn)
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Posts: 44
 

@jkro 

Worse only compared to a really good phase. My appetite was starting to come back and I started to enjoy cooking. That's gone away again 😔 I never so far *touch wood* went back to 100/100. That was brutal. I'm not in the states, I'm in the UK. Others have said it too, it seems to go like a wave pattern - better - bit worse (but maybe shorter bursts) - better - worse etc. I take vitB complex, vit C, started magnesium yesterday too. Every day chamomile and nettle and ginger tea. Lavender oil baths, I do muscle strength exercises about every second day (since I saw neuro). I tried to go running twice. I did 45 minutes but it was unpleasant. It didn't make it worse during, but I do think I had a flare up a few hours later both times. Not such terrible news perhaps. Two months ago I burst into tears every day thinking I would never run again. I wish we could understand more about it! I'm desperate to get better and be normal again :'(

Hugs to everyone

 


   
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HelenB
(@helenn)
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@nawpan 

I have the same. I lie down in bed and there goes the buzzing.

I sit watching something on the telly and gigantic bubbles start to pop in my calves?! What the hell?! 


   
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