Vesties’ Village

@tashley what are they doing to treat you?

@judes if I could get rid of the dizziness/vertigo I could handle the other things I have going on a lot better. Anything you find to make it better? ...

Is there anyone that is dizzy all the time? I have dizziness more than anything.

@floryeo don’t lose hope! My symptoms weee really bad in the beginning I had the worst pressure feeling in my head that felt like my ears were being p...

@floryeo oic. What did your doc say? Are they looking further into the result? From the research I have done ANA are auto antibodies in certain autoim...

Have any of you been diagnosed with vasculitis or has it been an idea brought up in conversation with your doctors?

@floryeo also, did you have ANA and ANCA drawn? I believe they are two different things. Both indicate auto antibodies. I had a negative ANA but I’m c...

@floryeo have you been diagnosed with vasculitis?

@lmkk hello! I was feeling better for about 6 days I felt fairly normal. I had a relapse in symptoms yesterday but I’m hopeful the relapses will get l...

@tashley I understand. Do what you and your doctors feel is right. I too had crushing head pressure at first with brain fog now I’m just left with ver...

Update after immunology appointment: The appointment didn’t lend too many answers. She did draw a blood panel again and all of my results were norm...

It looks like a lot of us took the Pfizer vaccine. Do any of you think if you had the Moderna for instance you would’ve had the same reaction? I know ...

@lmkk I was thinking maybe if I stopped BFing it would help me get better with not having the stress on my body to make food and heal. Just a theory. ...

@lmkk did they do any specific testing for your diagnosis? I asked for a spinal MRi and was ordered a cervical spine which I just postponed because I ...

@lmkk did your doc try steroids for you? Any doc I have seen here won’t consider guillian barre for me so far. Probably because it doesn’t present as ...