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The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Gary Breitbord

Meniere’s sucks. I apologize if I offend anyone with my language, but I bet people who have a vestibular disorder are nodding their heads vigorously in agreement. Well, maybe not too vigorously, because they can’t

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Nicole McBurnett

When I returned from deployment I was told I will never be the same person as when I left and that I needed to learn to accept the new me. I was able to accept

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Recovery from MdDs

March 11, 2021 (Not too long ago, right? Since today is July 21, 2021 [4.3 months]). Little did I know that a volunteer boat trip would change the course of my life. After an incredible

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Carol A DeLillo

My journey with vestibular disturbances began in 1979 when I was diagnosed with ( Otosclerosis) in my right ear along with tinnitus, hearing loss and dizziness. I had a successful stapedectomy performed in 1980 with

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Bill Haywood

Writing this has taken me a long time to know that it is something I wanted to do. Having always fantasized about writing a book, I could never come up with a subject I thought

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Katrien Goethals

“On Christmas Eve 2021 my life changed in a snap. I went from a physically and mentally active 54-year-old woman to someone who was barely able to function in a matter of weeks. “What started

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Kelly Helsel

It took 7 years to be diagnosed with Autoimmune Disease of the ear, which affects my vision, hearing loss, right ear few decibels left and the left a few more. May have to have cochlear

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Life Rebalanced Live

Life Rebalanced Live is VeDA’s annual virtual vestibular conference. Vestibular disorders cause a variety of disorienting and debilitating symptoms such as loss of coordination, vertigo, and dizziness, leaving desperate and confused patients searching for answers.

Participants will hear from several different experts on topics relevant to the vestibular disorders community, all from the comfort of their homes. Life Rebalanced Live is free to attend.

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Digital Devices: Issues, Settings and Tips

By Karen R Mizrach Our digital devices are wonderful, annoying, and all sorts of inbetween. The lights, the motion, the print, the colors, the noise, can all challenge our already sensitive brains, eyes and ears.

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Dawn Mlodoch

Looking back over the years, my husband and I can now see that vestibular symptoms were slowly creeping into my life. November 2013 marked the beginning of a journey that there was no turning back

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Visual Snow Syndrome

Visual Snow Syndrome (VSS), is a chronic, debilitating, and persistent neurological condition that affects a person’s vision, hearing, and brain function. The primary, and shared, symptom of VSS sufferers is Visual Snow. This resembles “TV

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Diana

I had a concussion after a car accident in July 2016. It caused double vision and my eyes didn't track together. Severe headaches would wake me at night, causing waves of nausea. Everything was too

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