Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Shannon Ross

Over three years ago I went in for a very routine optional sinus surgery. I woke up with a splitting headache, my ears ringing, confused, nauseous and emotional. What had happened to me? The surgeon

Jill Anne

I have to start at the very beginning to help shape the scope of how this has impacted my life. I’ve never liked any rides as a kid, not even a swing. My mother has

William Johnson

A little over 5 years ago after lake fishing north of Vancouver for 6 days in a rowboat with a 20 hp motor I complained to my traveling companion who is a doctor that I

Diane Worthey

Four years ago, I was diagnosed with Endolymphatic Hydrops (Secondary Meniere’s Disease.) The journey to this diagnosis was frustrating, confusing and depressing. Although this diagnosis came as a relief to me in the fact that

Mary Jadrich

My journey with vertigo problems started with an ear infection. I had to have a second prescription to finally cure the ear. A short time later my left ear started to ring loudly, first indication

Sian Day

I have been diagnosed with vestibular migraines although my original diagnosis was Labyrinthitis. My background was marketing and sales although I had to leave my full time job 2 years ago and I now work

DizzynDeaf

Hi and thanks for reading this! I'm grateful to be part of the VeDA group. I got Meniere's Disease in 2014. I am grateful for my doctors, friends, family and support groups/resources like VeDA, because

Dawn Mlodoch

Looking back over the years, my husband and I can now see that vestibular symptoms were slowly creeping into my life. November 2013 marked the beginning of a journey that there was no turning back

Donna Conboy

I had a full life before vertigo, dizziness, vision loss and imbalance stole my freedom and financial security. I have three biological children – two sons, Luke and Adam, and a daughter, Melissa. My home

Alicia Hudnett

I can only assume that if you are reading this story, you have somehow been touched by a vestibular disorder. As I begin to share my own personal story, I want to emphasize that although

Kristin Knapp

I am one of the thousands of people in the United State who live with vestibular dysfunction. Following my diagnosis of bilateral vestibular hypofunction (BVH), I doggedly pursued any path that had potential to give

Lynn Johnson

Lynn's vestibular journey started on Thanksgiving in 2015, when Lynn started to feel off-balance and nauseous. She went to urgent care and was told to take Sudafed for the fluid in her inner ear. By