Hello, we are the Vestibular Disorder Association or VeDA. For over 35 years, we’ve been a lifeline of support to anyone affected by vestibular (inner-ear and brain balance) disorders. Since 2012 our website has been accessed over 18 million times. We understand what you’re going through and will do whatever we can to help you on your road to recovery.
VeDA is partnering with the headache and migraine community to raise awareness about what it’s like to live with these devastating illnesses, with a spotlight on vestibular migraine.
Featuring nine vestibular warriors whose lives were impacted by living with vestibular dysfunction.
This journey is best taken together with those who understand what you’re going through, for patients and their loved ones.
On the Level is VeDA’s quarterly newsletter, featuring patient stories, research, and helpful tips for coping with vestibular symptoms.
Lynn Johnson lost her balance and livelihood to an autoimmune disorder. She sought out support, but couldn’t find any local support groups, and even if she did she was unable to drive herself to get there. Lynn describes the solace she has found through VeDA’s online support groups.
“I care for my mother because I care about her,” says Stephen. VeDA supports both vestibular patients and their loved ones on their journey as they learn how to adapt their lives to these invisible and unpredictable conditions.
Kayla’s symptoms included sensitivity to bright lights and sounds, as well as constant spinning, wobbly legs, unstable movements, aches, pains, numbness, and tingling. VeDA helped her understand her crazy symptoms and discover a community of support.
Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.
Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.
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