Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Jen Husak – Vestibular Warrior

IMAGINE LIVING LIFE WITHOUT BALANCE. No really. Close your eyes and stand on one foot. It’s hard right? Now imagine having that same disorienting feeling on two feet, and with your eyes open. Balance is


Sue H

My vertigo journey began around Christmas 2020 where I couldn't roll out of bed without a whirlwind of dizziness. Thinking it was an inner ear virus as I've had vertigo before, my primary doctor who


Julie S. + Brain Injury

“My vestibular experience started following a traumatic brain injury suffered in a car accident. I immediately felt off balance and disconnected. I went to the emergency room, where they discounted the possibility of a brain


Kimberly Warner

Mal de Débarquement Syndrome (MdDS) throws people off balance in every aspect of their lives. In Kimberly Warner’s case, MdDS derailed her thriving career as a filmmaker and photographer. Her award-winning work was published in


Carol A DeLillo

My journey with vestibular disturbances began in 1979 when I was diagnosed with ( Otosclerosis) in my right ear along with tinnitus, hearing loss and dizziness. I had a successful stapedectomy performed in 1980 with



I was diagnosed with MAV (Migraine Associated Vertigo), PPPD and Ménière's in September of 2018. I became ill August 6, 2017. My diagnosis took 23 doctors, trials of medication, vestibular rehab and a trip to


Stephen’s story – being a caregiver

Many people don’t realize that being a caretaker will have a profound impact on your time and energy, your emotional equilibrium, your relationships, and your lifestyle. It’s like getting married or having your first child. You simply could not have foreseen the challenges ahead because you’ve never had the experience.


Helen Stoll

VeDA has been a sanity-saver for me for 30+ years. I am a 73-year old 'retired' RN. In May of 1986, the month I turned 40, I came down with what eventually was diagnosed as


Sue (a.k.a. “Surly Sue”)

Sue retired in 2019 at 67. Since then, Sue has been clawing her way through months of vestibular rehab therapy. A determined and heroic Sue is pictured here with her canine therapist, "Uncle Brenda." It


Ron Moore

Introduction My Meniere’s Disease began some 20 years ago, while I was leading a workshop in England, when I experienced a sudden and dramatic hearing loss, specific to one ear. I had to ask people


Yvonne Linton

When Balance Goes Topsy-Turvy The tipping point for seeking help for my balance was toppling over on my bike while waiting at a stoplight. As someone who enjoyed training for triathlon events, this could prove


Connie in the Water

I am floating face down, having managed not to panic after having fallen down a six-foot embankment into the river. I am reveling at the thought that I have remained relaxed, but I am also