Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Recovery from MdDs

March 11, 2021 (Not too long ago, right? Since today is July 21, 2021 [4.3 months]). Little did I know that a volunteer boat trip would change the course of my life. After an incredible

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The Fight

I have had dizziness since I was a child. I never liked it when my dad or other people would spin me around because of how I felt afterward. I still lived a kind of

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Labyrinthitis

Life was perfect I was living my best life. I was working full-time as a dog groomer and found what I loved to do! I also was on a competitive dance team and had a

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Cold comfort

In 2017 I caught a cold. Yep, bog standard heavy cold. This time though, it affected my sinuses and I resorted to nasal decongestants to ease the discomfort. Day 8 I woke in the early

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Balanced Frame of Mind

In January of 2019, my life seemed perfect. I was recently married, enjoying life, planning for a wholesome future but then, my life started to change. I was training for a half marathon and started

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Losing my balance, finding my career

Like many of the individuals who have generously shared their experience on this spotlight, I distinctly recall the date in which I became ill: December 29, 2020. I woke up and struggled to get out

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Jays story

My story began on February 28, 2021. After a nice dinner out with my wife and daughter we returned home. Once we got home I sat on the couch and started to watch TV not

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When your world is turned upside down!

In 2016 my world changed drastically from a high functioning individual to someone who struggles to keep on top of daily errands. I was repeatedly turned away by Doctors who suggested it was all in

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Vertigo episodes

I am a healthy 50-year-old woman with no previous history of vertigo or dizziness. I woke up in the middle of the night with the room spinning. I didn’t know what was happening. I turned

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Jen Husak – Vestibular Warrior

IMAGINE LIVING LIFE WITHOUT BALANCE. No really. Close your eyes and stand on one foot. It’s hard right? Now imagine having that same disorienting feeling on two feet, and with your eyes open. Balance is

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Sue H

My vertigo journey began around Christmas 2020 where I couldn't roll out of bed without a whirlwind of dizziness. Thinking it was an inner ear virus as I've had vertigo before, my primary doctor who

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Julie S. + Brain Injury

“My vestibular experience started following a traumatic brain injury suffered in a car accident. I immediately felt off balance and disconnected. I went to the emergency room, where they discounted the possibility of a brain

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