Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Etrily Laitphlang

help me MAKE VESTIBULAR "VISIBLE" While most people may not be familiar with the word “vestibular”—a system in your inner ear that sends signals to your brain to tell you where you are in space—many


Lightheaded daily since Aug 2021

Hi! I'm retired, age 71. In August 2021, my neurologist prescribed Lyrica for my mild essential tremor. Within a few days I noticed I was very lightheaded whenever standing and sometimes when driving, I had


Migraine Associated Vertigo (MAV), Vestibular Migraine

Before my life with Vestibular Migraine I was on the go always, I was a busy corporate Accountant, studying my Master in Business Management, a Dancer and Dance Teacher. I liked being busy and would


Athlete and student has central vestibular dysfunction

When I was starting my senior year in 2021 I was feeling great and excited to see what it would all be about! It started out fun and great, but as October hit I started


Keeping the Balance

I grew up in a rather rural area with nature as my playground. I loved exploring, going on roller coasters, climbing trees, and sharing in my imagination. I had such great energy and excitement for


When My Life Went Sideways, A Story of Binocular Vision Dysfunction

My life in 2019 was normal before anything happened. At the time, I was working at a busy Chiropractic office as the lead Chiropractor and at the same time I was an instructor at a


My complicate relationship with G force

My name is Sara, I’m about 38. I’m Italian and I’ve always been living in Trento, in the North East of Italy. I developed impactant balance disorders when I was 22, but the first memory


Struggling with “Head Dizzies”

I am writing on behalf of my 12 year old son. He has been struggling with vestibular migraines for the last 5 years. I can't recall when we actually received the diagnosis but it took


Chronic migraine, BPPB

Hi, My story started about 14 months ago. I was standing while talking to my son. All of a sudden this feeling like someone just poured a bucket of water over my head. I was


Life Interrupted

I first fell ill July 2014. I was a single Mom, with 2 kiddos. In the process of moving, a lot of stressors personally and professionally at the time. I started feeling sick around Friday.


Chronic brain stem dizziness

I was healthy until I was diagnosed with multiple sclerosis (MS). I have 2 forms of dizziness: One from MS. One from inner ear. I have had brain surgery to correct the ear problem. I've


Rollercoaster of a Ride

Where does one start? I first wrote this over a year ago when I just needed to try to work out how I was feeling when my symptoms were at their worst. Life Changes Life