Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Kimberly Warner

Mal de Débarquement Syndrome (MdDS) throws people off balance in every aspect of their lives. In Kimberly Warner’s case, MdDS derailed her thriving career as a filmmaker and photographer. Her award-winning work was published in

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Carol A DeLillo

My journey with vestibular disturbances began in 1979 when I was diagnosed with ( Otosclerosis) in my right ear along with tinnitus, hearing loss and dizziness. I had a successful stapedectomy performed in 1980 with

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Nichole

I was diagnosed with MAV (Migraine Associated Vertigo), PPPD and Ménière's in September of 2018. I became ill August 6, 2017. My diagnosis took 23 doctors, trials of medication, vestibular rehab and a trip to

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Stephen’s story – being a caregiver

Many people don’t realize that being a caretaker will have a profound impact on your time and energy, your emotional equilibrium, your relationships, and your lifestyle. It’s like getting married or having your first child. You simply could not have foreseen the challenges ahead because you’ve never had the experience.

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Helen Stoll

VeDA has been a sanity-saver for me for 30+ years. I am a 73-year old 'retired' RN. In May of 1986, the month I turned 40, I came down with what eventually was diagnosed as

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Sue (a.k.a. “Surly Sue”)

Sue retired in 2019 at 67. Since then, Sue has been clawing her way through months of vestibular rehab therapy. A determined and heroic Sue is pictured here with her canine therapist, "Uncle Brenda." It

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Ron Moore

Introduction My Meniere’s Disease began some 20 years ago, while I was leading a workshop in England, when I experienced a sudden and dramatic hearing loss, specific to one ear. I had to ask people

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Yvonne Linton

When Balance Goes Topsy-Turvy The tipping point for seeking help for my balance was toppling over on my bike while waiting at a stoplight. As someone who enjoyed training for triathlon events, this could prove

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Connie in the Water

I am floating face down, having managed not to panic after having fallen down a six-foot embankment into the river. I am reveling at the thought that I have remained relaxed, but I am also

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Nia

Say you have a vestibular disorder. What if I told you that you can drive a car? How about play a sport? You probably wouldn’t believe me. But somehow, I do all of these things.

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Adam Said

With the assistance of the Balance Institute of Indianapolis and The VEDA Organization itself, I began to compile Vestibular exercises that could potentially improve my daily functions. I stumbled upon the VOR X1 and X2

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Diana

I had a concussion after a car accident in July 2016. It caused double vision and my eyes didn't track together. Severe headaches would wake me at night, causing waves of nausea. Everything was too

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