Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

My diagnosis came as a complete shock to me, but was completely understandable!

I have suffered from BPPV since my early 20's, and am now 49 years old. Was diagnosed just last week by my doctor, who did some balance tests in his office. I have it in


Superior Canal Dehiscence Syndrome

I started having extreme dizziness and vertigo in the Spring of 2109. I was originally diagnosed with BPPV but nothing was making my dizziness better. I also noticed a high sensitivity and vertigo when loud


Nausea, nausea, nausea.

Life before my concussion or TBi was great. I was able to walk, run, basically participate in normal everyday life. I suffered a TBi on both sides of the head at the temples from coming


Fairly Successful ~ After a Decade !

In the early-mid 1990s, I was told it'd be my change-of-life time - but I'd just gotten my BA and was trying out part-time positions that interested me, mostly in schools. Yet at a stop


Recovery from MdDs

March 11, 2021 (Not too long ago, right? Since today is July 21, 2021 [4.3 months]). Little did I know that a volunteer boat trip would change the course of my life. After an incredible


The Fight

I have had dizziness since I was a child. I never liked it when my dad or other people would spin me around because of how I felt afterward. I still lived a kind of



Life was perfect I was living my best life. I was working full-time as a dog groomer and found what I loved to do! I also was on a competitive dance team and had a


Cold comfort

In 2017 I caught a cold. Yep, bog standard heavy cold. This time though, it affected my sinuses and I resorted to nasal decongestants to ease the discomfort. Day 8 I woke in the early


Balanced Frame of Mind

In January of 2019, my life seemed perfect. I was recently married, enjoying life, planning for a wholesome future but then, my life started to change. I was training for a half marathon and started


Losing my balance, finding my career

Like many of the individuals who have generously shared their experience on this spotlight, I distinctly recall the date in which I became ill: December 29, 2020. I woke up and struggled to get out


Jays story

My story began on February 28, 2021. After a nice dinner out with my wife and daughter we returned home. Once we got home I sat on the couch and started to watch TV not


When your world is turned upside down!

In 2016 my world changed drastically from a high functioning individual to someone who struggles to keep on top of daily errands. I was repeatedly turned away by Doctors who suggested it was all in