@rbrauer hi. So sorry for what you're going through! honestly it sounds like you're suffering from "long covid"… have you looked into that? maybe you had an asymptomatic infection… or possibly the tax triggered a similar response?
@rbrauer hi. So sorry for what you're going through! honestly it sounds like you're suffering from "long covid"… have you looked into that? maybe you had an asymptomatic infection… or possibly the tax triggered a similar response?
I heard an NPR interview last week with a doctor who has been researching long COVID and what it’s potentially causing (COVID hiding in parts of the body, like the intestinal tract) and possible ways to treat it (from Paxlofid, to hyperbaric oxygen chambers…he seems to be available via twitter…?
interesting article if anyone wants to read
https://www.frontiersin.org/articles/10.3389/fneur.2022.956515/full
@ksharky13 Hi, yes Cina is a homeopathic remedy. You can order it online or get from the health food store.
that being said I think the biggest things that have healed me besides diet and supplements has been Lotus 21 day detox and the tautopathic remedy for the specific vaccine I took.
Hope it helps!
@margaret2022 thanks so much for your reply! I’ve been tested (through the NIH Recover study) and confirmed I’ve never had Covid. Many of my symptoms definitely line up with long Covid and I’m doing similar PT. Since I’m now 18 months out from the Pfizer booster that set things off, my neurologist suspects an immune mediated small fiber poly neuropathy. In the next coming weeks I’m getting the tests to see if that’s the case. It would certainly explain dysautonomia symptoms too.
All the best to you!
@margaret2022 I’m so very sorry to hear of your suffering. I’m 40 and feel similar to you - hoping for many more years ahead and uncertain how much this health journey will change for the better. I’ve never had Covid. I had the covid 19 IgG test done to confirm. So I’m confident all my symptoms are directly related to an adverse reaction to the vaccine. I’ve had success doing breathing dysfunction physical therapy and working with a breath coach to regulate my autonomic nervous system. It has helped to “reset” my body’s perception of threat and calmed me down from being on high alert all the time with the dysautonomia. I’ve also had success doing vision therapy - helped so much with my imbalance (vestibular ocular telex dysfunction). I’m also trying a low histamine, anti inflammatory diet to see if reducing inflammation from leaky gut can calm my immune system down. The integrative medicine doc I saw recommended I take NAC (N-Acetyl-L-Cysteine) which is supposed to help with antioxidant and detox activity in the body. in addition to NAC supplement he said ALAmax CR (controlled release alpha-lipoid acid) could help heal my nerves. I haven’t started taking these supplements yet, as I’m waiting for the EMG and skin biopsy so I have an accurate baseline. So just info at this point but something you could explore if you like. I certainly don’t know if they work or how my body will respond - I’ll keep you posted!
Use of the medicinal leech in the treatment of ear diseases
@margaret2022 I’m so very sorry to hear of your suffering. I’m 40 and feel similar to you - hoping for many more years ahead and uncertain how much this health journey will change for the better. I’ve never had Covid. I had the covid 19 IgG test done to confirm. So I’m confident all my symptoms are directly related to an adverse reaction to the vaccine. I’ve had success doing breathing dysfunction physical therapy and working with a breath coach to regulate my autonomic nervous system. It has helped to “reset” my body’s perception of threat and calmed me down from being on high alert all the time with the dysautonomia. I’ve also had success doing vision therapy - helped so much with my imbalance (vestibular ocular telex dysfunction). I’m also trying a low histamine, anti inflammatory diet to see if reducing inflammation from leaky gut can calm my immune system down. The integrative medicine doc I saw recommended I take NAC (N-Acetyl-L-Cysteine) which is supposed to help with antioxidant and detox activity in the body. in addition to NAC supplement he said ALAmax CR (controlled release alpha-lipoid acid) could help heal my nerves. I haven’t started taking these supplements yet, as I’m waiting for the EMG and skin biopsy so I have an accurate baseline. So just info at this point but something you could explore if you like. I certainly don’t know if they work or how my body will respond - I’ll keep you posted!
did they ever diagnose you with vestibular neuritis? Or do any tests such as vng? This is definitely caused by the vaccine and covid. I’ve been reading so much about it. I got some referrals don’t at my appointment this past Friday finally VNG and a repeat ct scan with bettter imaging quality to rule out sscd. I pray to god that imagining is normal and that I don’t have holes in my inner ear parts. I’m so scared the only way to correct it is surgery if I do have sscd. I’m so bummed. They go into your skull the the back and cut into your skull. Craniotomy. So scary. It my symptoms line up to sscd. Or vestibular neuritis. I hope it’s just VN. Omg I keep praying and praying.
@rbrauer: Thanks for posting your experience and success stories. Your post caught my eye for a few reasons.
- Did you get a definitive diagnosis of Dysautonomia?
- If yes, what symptoms did you have? Did/do you have heart palpitations; increased anxiety; almost constant feeling of being in “fight or flight” more?
- What did you do to help/resolve your issues?
- How did you find a breath coach? Is that who taught you breathing dysfunction physical therapy?
- Hat brand and dose of NAC was recommended? Please come back and let us know if it helps.
- What’s the skin biopsy for?
Thanks again for posting. Best wishes for continued healing.
@margaret2022 I’m so very sorry to hear of your suffering. I’m 40 and feel similar to you - hoping for many more years ahead and uncertain how much this health journey will change for the better. I’ve never had Covid. I had the covid 19 IgG test done to confirm. So I’m confident all my symptoms are directly related to an adverse reaction to the vaccine. I’ve had success doing breathing dysfunction physical therapy and working with a breath coach to regulate my autonomic nervous system. It has helped to “reset” my body’s perception of threat and calmed me down from being on high alert all the time with the dysautonomia. I’ve also had success doing vision therapy - helped so much with my imbalance (vestibular ocular telex dysfunction). I’m also trying a low histamine, anti inflammatory diet to see if reducing inflammation from leaky gut can calm my immune system down. The integrative medicine doc I saw recommended I take NAC (N-Acetyl-L-Cysteine) which is supposed to help with antioxidant and detox activity in the body. in addition to NAC supplement he said ALAmax CR (controlled release alpha-lipoid acid) could help heal my nerves. I haven’t started taking these supplements yet, as I’m waiting for the EMG and skin biopsy so I have an accurate baseline. So just info at this point but something you could explore if you like. I certainly don’t know if they work or how my body will respond - I’ll keep you posted
@rbrauer: Thanks for posting your experience and success stories. Your post caught my eye for a few reasons.
- Did you get a definitive diagnosis of Dysautonomia?
- If yes, what symptoms did you have? Did/do you have heart palpitations; increased anxiety; almost constant feeling of being in “fight or flight” more?
- What did you do to help/resolve your issues?
- How did you find a breath coach? Is that who taught you breathing dysfunction physical therapy?
- Hat brand and dose of NAC was recommended? Please come back and let us know if it helps.
- What’s the skin biopsy for?
Thanks again for posting. Best wishes for continued healing.
@rbrauer: Thanks for posting your experience and success stories. Your post caught my eye for a few reasons.
- Did you get a definitive diagnosis of Dysautonomia?
- If yes, what symptoms did you have? Did/do you have heart palpitations; increased anxiety; almost constant feeling of being in “fight or flight” more?
- What did you do to help/resolve your issues?
- How did you find a breath coach? Is that who taught you breathing dysfunction physical therapy?
- Hat brand and dose of NAC was recommended? Please come back and let us know if it helps.
- What’s the skin biopsy for?
Thanks again for posting. Best wishes for continued healing.
I can’t believe you developed pots that’s crazy. My daughter too after covid. Heart rate jumped to 152. Now her too tinnitus ringing in her ears both sides. She’s only 10. I said I bet if she wasn’t vaxed she wouldn’t be going through this. Well all of us wouldn’t be going through this bullshit. I’m so mad. So angry. Nothing can be done. No one wants to help. They say it’s hard when we don’t know how to manage it or how to fix it.
I saw a doctor today too referred me to internal medicine that specializes in symptoms that dont make the list of diagnosis. Especially with all the tests that I had. Which were normal. He said this clinic will love to hear my story and how this came about. They do research. He didn’t order any bloodwork. He upped my vitamins d, b12, vitamin c, started me on thiamine, and upped my iron. I told him about the functional med doctor I started seeing. He mentioned he was dealing with a lady with hearing sensitivity, he upped her vitamins as well. In about 3 months when she had a follow up with him she was much better. Because he was going to refer her to the same place as he’s referring me to. It turns out she no longer wanted the referral. Of course he couldn’t go into further details. I was hopeful at that point. So he upped my vitamins.
I said I’ll try anything I am so desperate at this point. I just want normalcy back. I honestly don’t know what that feels like. I’m such a burden. I have to wear ear plugs now everywhere I go. Even driving. Because the vibration is so loud. I had family come visit out of town. I wore ear plugs the whole time. But they understood. It just sucked because it took away me the real me. I felt like I couldn’t myself. But I really needed them here. Their company really took my mind off things. Kept me occupied. I was cooking and hosting. Which I love to do when family comes around.
Hello, Did your symptoms improved? Thank you!Hi was wondering if anybody has had a symptom of a crunchy or sandy sound in neck when turning or going ear to ear ? Any recovery from this does it go away with time ?
I thought I would give a positive update here..I am 18 months in now from my Pfizer Vx...I have had flares and some mild symptoms that always stayed. I had a really few rought months recently. I decided to stop going to ever Dr under the sun and work on my anxiety that seemed to be taking over everything. My biggest fears were MS/Parkinsons/ALS...I still can't watch TV without hearing or seeing that in a show or movie without getting a knot in my stomach even though I am pretty positive this is all stemming from an immune response and symstemic inflammation which explains why it comes and goes and is always in a different place in my body or multiple things at once. I just finished a round of anitbiotics for lyme/co infection. I have stopped taking 15 supplements a day because I think that is just too much on my body. I cut back to "yourgutplus" which was desgined in the UK for covid..its a really good pro biotic since they do believe covid and the VX is destroying gut health which can also lead to many problems. I also take a few other pre and probiotics as well and have cut back on dairy and gluten and I can say my GI issues are gone completely. My anxiety had gone from a 10 to a 3 in the last few weeks and I am back to intense workouts, yoga and enjoying my life as a mom and wife. I was really zoned out for a while with worry, and it seems that the worse my anxiety got from every Dr scaring me w new possibilities and digging on the internet, the worse my symptoms got, your mind is POWERFUL. I am not dismissing anyone with symptoms either, I know they are real I had over 20 I can list.
The last week or so I feel almost normal besides a few last lingering things, and I guess these are things that still worry me but I had them last year and they eventually went away. My hands are still a little shakey during certain movements, along with flexing my bicep or doing leg lifts etc, I get a slight quiver coming down. My muscle spasms in my back are gone, the pain is gone, the joint pain is gone, brain fog much better, headaches gone, ringing in ears gone...vision still a little funny at times. At night when I lay down I get these random quick twitches..all over not in one spot they are a split second long. Mostly annoying but hoping they fade as the inflammation gets better. I do feel weak after work outs and more shaky but I think thats from taking months off and overall I am weaker and have to build my strength back up.
I no longer have shooting nerve pain and my chest pain is very rare and short lived. I still get dizzy now and again when sitting and then standing (I think I do have pots)
The only supplements I am taking besides a ton of probiotics are:
NAC but I am going to taper off that I have been on it a long time
Vitamin D (w K3)
NATTO-highly suggest everyone takes this whether you have long covid or vx issues
Zinc but not daily
Curcumin
Glutathione
I also juice daily when possible (celery on its own is amazing for your immune system), beets, carrots, ginger, turmeric, fruits, spinach etc.
I finally have put on 5 lbs..hoping its muscle from working out because I lost so much during this last flare up, guessing a lot from the anxiety- I had zero appetite. Now I can't eat enough my metabolism is finally kicking back in from working out I think.
If you havent seen the Project Veritas video, check it out, shows how corrupt these people really are...--Pfizer released a statement this past Friday as well on their site...also adding a slew of symptoms from the VX including a statement "this many not be all of them" haha.
My point is don't lose hope, and sometimes its good to take a mental break from searching the internet and trying every medicine and going to every dr for second and third opinions,
React 19 is also great- I recent joined just to stay in the loop with the studies they are doing and I think one day there will be a treatment or at least some sort of answer. They were started by a woman that was part of the vx trials and lives with a lot of our symptoms. Its a ton of Dr's and nurses doing this for free on the side. It is all coming out and I realize there are probably millions of people out there that have issues. I am waiting until this area can check for micro clots/spike proteins, until then I am doing the HBOT and trying to be positive that I am still here and get to enjoy life with my family still. I am part of a FB group and I can tell you there are some really really sick people from all of this, I consider myself lucky that I am not as bad as some of them. I go to Mexico for vacation next week and I am hoping the warm weather and stress free week will be the final boost to feeling 100%. Wishing you all the best!
@ksharky13 I have had every test imaginable with no diagnosis besides maybe long covid, maybe the VX. I also have felt the way you do, I told my Dr I have never felt anxiety like this, its not typical anxiety, it is a constant feeling of impending doom, waking up with panic attacks and living with a pit in my stomach and believing I had every disease I would read about... which ultimately made me feel hypersensitive to everything happening in my body and it was making my symptoms worse. She said this is not uncommon and she has heard this over and over recently, esp with long covid too. I should also mention I have never suffered from anxiety or depression before all of this.
@ksharky13 I have had every test imaginable with no diagnosis besides maybe long covid, maybe the VX. I also have felt the way you do, I told my Dr I have never felt anxiety like this, its not typical anxiety, it is a constant feeling of impending doom, waking up with panic attacks and living with a pit in my stomach and believing I had every disease I would read about... which ultimately made me feel hypersensitive to everything happening in my body and it was making my symptoms worse. She said this is not uncommon and she has heard this over and over recently, esp with long covid too. I should also mention I have never suffered from anxiety or depression before all of this.
I should mention one thing..I DID test positive for Lyme/Babesia thru an integrative dr (negative on regular labs)..this was not my underlying issue but I think the VX caused this to reactivate...I took several antibiotics which may have helped w some of my symptoms. Besides that my CBC has always been ok..my c4A was high meaning inflammation and my C reactive was normal. I had minor things here and there on my bloodwork but overall fine.