Hi Tabby & All - It is so bewildering and distressing to go all the way back to my original intensity of symptoms from 3 months ago!
Hi Sassafras, Yes it's good that they will be able to see you at your worse. I hope you get some positive news. Things seem to be moving fast for you now, I hope all goes well. Take care.🙏😊
Much happened today. Real feel temp today was to be over 100°, so it was good my a/c only needed 2 inexpensive fuses replaced! ☺️
After relapsing yesterday, I now can't drive, and my kind neighbors picked up a/c fuses for me and took me to my ENT appointment.
ENT people got to see me staggering through their halls & clinging to their walls. Advised I get an MRI, which I'd gotten scheduled this morning in ~2 weeks with my PCP's order from Thursday (before I got worse yesterday). Had the BPPV test performed today for the 3rd time now - negative x 3! Told me I have Vestibular-Ocular Reflex Dysfunction.
Told me to not start Flonase steroid nasal spray or use a sinus antibiotic. Is ordering another 6 day Medrol steroid taper, since I got some limited temporary help from my PCP ordering that last month - to "buy time" until my MRI gets done on the 29th. Maybe my brain will give up some clues? My vestibular therapy gets restarted in a month.
I let them know my insurance company is escalating my case to consider sending me to a neurotologist out of their network (after this ENT only wanted to run my tests, then call to tell me I have "vestibular dysfunction" and dismiss me to therapy over the phone). I now have permission to call them if I'm not better after a couple of days of Medrol, or if I get worse.
I got copies of my test results and I believe I've gained their attention and they've decided there's legitimate reason for them to now have concern for me. I'm relieved to share that it's been an unusually productive day in my "bit of earth"!! And I'm exhausted!! 😏👍🙏
Here's the other issue I'm now worried about. I've taken solace in the probability that as the efficacy of the vaccine starts to wane, so will the side effects, fingers crossed no permanent damage. Here is my dilemma. I'm a healthcare worker, in a hospital (off since March due to unrelenting dizziness). The current trend appears to be that hospital systems across the USA are making it mandatory that their employees take a Covid19 vaccine in order to remain employed. I had no intention of taking any future booster shots for obvious reasons. I'm 63 yrs old and wasn't planning on retiring for another few years. I'm scared of what my future holds. Any suggestions?
I've seen where some of the hospitals that require Covid vaccination in the US are allowing some exception requests and granting some of them.
After having relapsed big time yesterday after 3 months, today I had one of only about 6 visual migraines that I've had in my lifetime.
I don't get any pain, no headache - only this zigzagged, pulsing central blinded visual area that bends into a flashing, jagged arch that gets bigger and bigger as it moves slowly to one side of my vision, then out of my visual field over about 20-30 minutes. Very weird and hard to describe, but you can look it up and I'm sure it would be explained better. It's also called an opthalmologic migraine, I think. The first time it happened it really scared me, and among other things, I thought it might have been a torn retina.
Coincidence? Brought on by stress of relapsing? Evidence of vestibular migraine mixed up in all this for me?
My ENT wouldn't comment about this today ...he's now waiting on MRI - IAC W/ & W/out Contrast to try to put my puzzle together any further...
Hi, here is the website that can inform your doctor about the prescription for Ivermectin.
https://covid19criticalcare.com/guide-for-this-website/how-to-get-ivermectin/
I just came back from the doctor today (on a different matter) and I asked him about Ivermectin. He said it's promising and thinks there will be loosening restrictions for those doctors who would want to prescribe it. Supposedly Ivermectin can assist with post vaccine syndrome and long haul covid.
Take good care.
@lukenick i'm the same, the last week or so i've been experiencing them in both eyes - worse in bright settings. so strange, can't seem to find a remedy for them online - hope they spontaneously disappear?
I have floaters too but I've had some before the vaccination. I'm afraid floaters are permanent. You will eventually learn to ignore them.
Hi All,
Try to contact with Gregory A. Poland, MD, a vaccinologist and director of the vaccine research group at the Mayo Clinic. He has been suffering tinnitus after his second dose.
No one knows what happened to us. But he has more resources to get help. Try to contact him. Let him know the forum.
@cscelfoda I’m experiencing something very similar. Been since April 29th and has not gone away
Update: after 7 days of taking the supplements and a round of antibiotics I am back to square one, woke up today feeling extremely dizzy. How much longer will we have to suffer before we are heard?
Have just found this site/forum. Got Johnson vaccine in March. Started having issues with eyes losing focus within a month. Initially short lived. Have had several more intense issues, lasting up to 10 minutes. Saw primary, thought maybe sugar related since diabetic and adjusting meds. Saw eye doctor for medical exam, mentioned Vestibular Occular Reflex to look in to. Began to think vaccine related. This Forum has confirmed that. Fortunately, my episodes are not as severe as others. I’m beginning to take notes when happens. BP normal, sugar ok, heart rate a little elevated. Have decided not to drive on those days when I start losing focus in my vision. No warning other than that,which follows with balance issues, usually a headache. Just went 3 days with no issues. Today,had a focus issue this am and ended with about 8 separate episodes. Most todate. Took Meclazine this am, didn’t stop rest of episodes. In process of getting appointment with inner ear specialist. Hope they can treat.
@moonbeam hi there! WOW, thats really exciting to hear and praying we can find a solution. Thank you so much for the update. Are you going to try it?
@thenystagmus Hi Sassafras, sorry you had to go through all you did yesterday, sounds like your day was horrendous. It seems you have a diagnosis now that absolutely makes sense with the symptoms you describe. I don't know if you've seen it but there is a very good article here on the VeDA website called Vision Challenges With Vestibular Disorders, there's also a pdf version for download. It describes vestibular ocular reflex dysfunction and explains the symptoms you have. I hope the Medrol takes effect quickly for you to have some relief from this nightmare. Good to hear your air conditioning has been fixed, that's one thing off your mind. Wishing you much improvement over the coming days. Take care.🙏😊
