@saba Hi Saba. I am so frightened. I am about to undergo more neurological tests tomorrow. I am just completely shocked it’s come back out of nowhere.
You only had one dose of Moderna? And still seeing side effects after 9 months? What have specialists told you?
@sickofthis there are a number of viruses that can infect the vestibular nerve. They did not confirm mine but after consulting with docs that was the conclusion we came too. You can’t really test the vestibular nerve for anything so that is why this is so difficult to figure out. But I think the fact that the c19 vaccine takes your immune system down hard during the 2 week period that it makes sense something lying dormant could attack the nerve. Inner ear issues can cause so many weird symptoms. Honestly I felt like I had recovered from a stroke. But I would say I’m 95% better. I have reactions to any type of stimulant like coffee and alcohol and even the benzos. I have been prescribed. A full nights sleep is extremely important as well. I hope I am making sense.
Thank you for the information. I couldn't even begin to imagine what kind of virus it could be if that were the case. Did your doctor say it will pass with time? Everything I have read about vestibular neuritis said it typically resolves in 3ish weeks (or up to a couple months). Its great that you are feeling 95% better!! Oh how I miss drinking coffee, I also cant even have a sip now.
@soraya Yes only one dose of Moderna. PCP helped with the insomnia issues with meds. Understands that it could be vaccine and gave me an exepmtion for any additional doses, thanfully. One ENT blew me off, another one said he had seen tinnitus in others from vax, but nothing to offer. 2 Opthalmologists visits, both said floaters are just from ageing and just told me to ingore it. Saw a retina specialist said retina is fine so nothing to worry! Neuorologist that I saw found all of this interesting, he was a migraine/vestibular issues specialits and he didn't see any issues with my vestibular system or anything related to migraines. He wanted to prescribe me anti-depressants which I declined. Bottom line is no one, absolutely no one, has any answers or recommendations. If our issues are similar to those are covidlonghaulers, it may take a long time. I am seeing people report recoveries 18 months after.
@sara90 Your doctor, by contrast, needs to spend more time online and research what is actually happening to people. It IS absurd for a cardiologist to suggest you take the second dose after pericarditis. I mean, seriously? I'm aghast these people have doctorates.
There was a woman who came to my workplace - shortly after the vaccines began being administered - who developed pericarditis after the first injection. She was wearing a heart monitor and had been "cleared" by her cardiologist to receive the second dose. She said, "I hope it doesn't happen again!" I was floored that anyone would attempt a second dose after that experience - but even more floored that a reputable cardiologist would sign off on it!
I agree, this whole experience has been a joke. I will never trust the government or a vaccine ever again.
I had to force this cardiologist to give me an exemption and mind you, I’m eligible because of the pericarditis. He is so pro-vaccine that he doesn’t want to hear about the adverse reactions.
The fact that some people who had adverse reactions to the dose and are going back for the second and third is beyond me.
@sara90 Well, it goes to show you how much faith people put in their providers and specialists. If the provider says "jump", many will - because this person is supposed to be looking out for their best interest.
Physicians hold such an important role and have so much power over the patients they treat. Recommending that a vaccine-injured patient with heart damage receive a second dose is a gross misuse of that power and grounds for losing a medical license, in my opinion.
It doesn’t seem like we can get Nasalcrom in Aus. Can anyone familiar tell me whether this is similar?
No, they are different.
The product you link to is Mometasone furoate (a steroid).
Nasalcrome is a mast cell stabiliser (I think the active is cromoglicic acid, also known as cromoglycate).
I've tried Fexofenadine hydrochloride (which is an H1 antihistamine) with no effect evident.
@sickofthis actually it can take years for symptoms to get better. I have done so much research. I had to as most docs couldn’t help. I saw 3 different doctors, the 3rd was a charm. 2 ENTs had ct scans, mri and went to physical therapy because the VN caused me to have bppv. It gets better when your vestibular system finally adjusts to having the loss of function in 1. I was told it’s like when a plane loses an engine on one side and the pilot has to make adjustments for the plane to level out. There is some good information on this website about different kinds of disorders. Best wishes
Hey everyone,
I got the booster more than 1 week ago. Still feeling okay.
Actually I still have some lingering symptoms from April. I got mild headaches, and insomnia sometimes. I also have some dizziness when I don't sleep enough.
During my journey my partner have left me (6 months ago) because my health issue, so it's quite difficult to decide if my symptoms still remained from the vaccine or it is depression 😅
Those who start fluvoxamine, do you take it for a few weeks or more time?
I hope the remaining symptoms will also subside with time, I saw the progress in my 8 months nightmare, but still not perfect.
Are there anyone here who has still some mild symptoms remained from almost 8-9 months left?
Yes I also still have symptoms, I’m 7 months post 1st dose. My remaining issues are ear pressure and kind of blurry vision on one side, heart palpitations and bladder issues. And i am still à little tired. it’s all way better than in the beginning but i’m still not back to myself.
I have been taking an antidepressant for a month now (not fluvoxamine but another one prescribed by my doctor) and it’ s been helping. I will keep taking it for another month or 2 (very low dosage).
Hi
i just wanted to say I got vestibular Nueritis after having a flu shot in 2018. Basically if you have a virus dormant in your body and the vaccine takes your immune system down there is a chance it can become active and that is what happened to me. My Epstein Barr virus attacked my vestibular nerve. Most of the symptoms I see here sound like VN. I had vertigo for 4 days straight. Took 2 weeks before I could walk a line. Imbalance, ears felt full, got the feeling I was swaying and falling constantly. My head felt like it was stuck in a church bell and every step I took my head felt like it was being rung. Tinnitus. I lost 15 pounds. Overwhelmed by surroundings. Derealization. It took a year and a half for me to get over. Well I’m not completely well and things will never be the same. I say the best thing is don’t sit around. Get moving. I went to work a month after my illness started and my physical job and physical therapy got me better. Look into the Vestibular Nueritis section of this site. I know I had more symptoms than I listed. Btw the anxiety comes from your vagus nerve. It’s happening when your body is panicking due to dizziness and imbalance. The only thing that helped that for a while was a benzo. I wish all of you well. I will not take this vaccine or any other ever again. Because of this.
Did you have an eye issue as well ?
When you say it never got back to What it was, what are you still feeling ?
@coco I didn’t have an eye issue. Other than being overwhelmed in many places by my surroundings. My head feels off still sometimes and I get dizzy. Headaches on occasion. Tinnitus and full ears. I’m way better now. But k got hit with this 3 years ago after the flu shot. I will not be taking the covid shot.
@saba My gosh! I never would have thought that. I’m so sorry you have gone through that. It’s very similar to my situation. When I first reported my symptoms, everything was inconclusive. My ENT also said he had never heard of anyone having my side effects. But seriously, 18 months is a long time!
I’ve been on edge all day, trying my best to stay calm. I’m crying and angry all at the same time.
@soraya Sorry I hope my comment about 18 month long recoveries in covid longhaulers didn't add to what you are going through. That was just what I had seen reported and it is upto 18 months, so there are some who have reported recovering in way less time than that. If you have come this far with a steady recovery, I am hopeful that this is a temporary relapse for you. Best wishes. Stay strong!
Does anyone have info or theories on flare ups a.k.a. relapses? My second shot was 4/29 and while I had dizzyness, headaches, etc. for a couple months, it all went away for a couple months only to reappear in September. Since then my symptoms seem to be on and off almost weekly. 1 week I'll feel pretty good and the next not so much. This trend has continued to this day for the most part. Any info or thoughts on this is greatly appreciated.
@thamollusk mine don't seem to have any trigger whatsoever, I can be feeling relatively fine and then almost instantly the dizziness and tingles will come and that is when I know I'm in for a bad time. I just lay on the lounge and try to relax as to not work myself up over it. I got myself fish oil, vitamin c and some antihistamine yesterday and some green tea which helped some. I will just keep trying whatever I come across in the hopes that one day these side effects will disappear or at the very least be so minimal that I can live the life I was prior to this dreaded "vaccine".