@lookingforanswers Hi Susie. This forum will not allow me to reply to your private message for some reason. To answer your question, my symptoms have improved. I suffered for a solid month. Even now, I will still wake up often to numb limbs and some days mild symptoms sporadically return. These are mostly just inconvenient now and not debilitating as they were before. When it was the worst, I took a baby aspirin daily, changed my diet completely to anti-inflammatory foods, drank plenty of water, cut back on alcohol, and exercised at least once a day. I found that getting my legs up as much and as high as possible seemed to help. I hope things improve for you soon!
May I ask how long before you showed improvement ? How long your symptoms lasted and what symptoms you had ? How bad did they get for you? And how long did the debilitating symptoms last ? Thank you . Having same symptoms still mild right now 6 weeks post vaccine.
@tone My symptoms started the day after my booster and were very frightening. I experienced pinching in the backs of my legs, icy/hot sensations in my hand, heart flutters, abnormal vein engorgement in my hands and feet, numbness and tingling, and hot flushing at night. My limbs felt cold in places. I started to show some signs of improvement after two weeks. It continuously got better little by little but I didn't feel "normal" until a month later. I'm at the 2 month mark now and I still have on occasion the strange sensations in my legs and arms, night numbness, and blood circulation irregularity. It is mild enough now that my anxiety doesn't take over.
Hi, I have been following this forum for a number of months and it has really helped that you are all sharing.
It has been 8 months since my second Astra Zeneca vaccine. After the first I was tired and not walking as far as usual but didn’t connect it to the vaccination. I just thought I was working too hard. Within 24 hours of the second my left knee and ankle were collapsing. I then developed shoulder pain and numbness at my left shoulder. Strange tingling and creeping sensations worked down my left arm, then left leg, then right arm and started on ny left leg over several weeks. One weekend I was almost completely paralysed. I have had shortness of breath, dizziness, incontinence, trembling fingers, muscles spasms,heartburn coming and going. I can now walk about 100metres on a bad day, 400m on a good. I cannot raise my heart rate or my vision swims. Certain muscles I cannot feel at all on my left, others fatigue very quickly and switch off.
I have had multiple MRIs and nerve conduction studies. The scans of my peripheral nerves lit up with gadolinium in Oct 2 showing peripheral neuropathy in my shoulders and hips.
I was diagnosed with MS 3 years ago after another reaction to a medication set of a demyelination episode. It was the only lesion on my brain. The vaccine has no impact on my brain or spine.
I have had steroids courses 3 times and numerous IVIG infusions for the last 4 months. I have been taking baclofen to help the muscle spasms. I have also been having B vitamin injections, alpha lipoid acid, NAC etc etc etc.
Nothing seems to be working and my muscles are showing signs of wasting.
The neurologists are agreeing now that it is the vaccine and are talking about potential reboots of my immune system using either a low dose old chemo drug or other even more extreme measures.
My daughter currently has Covid and has been very ill. It makes me nervous about what would happen if I got that as well.
@hailey Regarding Novavax - my answer is No at present. If its the spike protein causing our issues then Novavax could do the same. In its trials there were 2 cases of heart inflammation...there's still risks with it. Where do you live?
Anyone else experience lip tingling? That usually leads to whole face tingling, even their head?
Yep! Lip tingling, tongue, throat, roof of mouth, face, eyes, feet, hands...you name it I've been tingling there at some point! It dies down after a few months.
Hi Kit, have u ever experience numbness on yr lips and tongue?
Is very scary, i have new symptoms after 5 mths out, my lips and tongue are numb and tingling.
Also new symptom - the whole body is itchy and also itchy burning hand and turn red.
Any one experience such symptoms.
Yes. Tingling, numbness, pins and needles, spontaneous spasms on and off in my face, tongue, throat. Not had any itching but sometimes deep internal burning in abdomen.
Have the tingling and numbness is yr face, tongue, throat gone ?
All my teeth are like not align anymore and keep biting on my tongue. Do u have this experience.
And every morning my abdomen make very loud noise like there is frog inside my tummy making the noise.
Yes, exactly how I explain my family that it feels like there's a frog inside my tummy.
Have you been to a doctor for the tummy thing? I haven't yet.
Hi, Dee!
I would like to say what I think about one of the symptoms that upset you: the sounds you hear in your stomach.
You said also that they are more common at night and this seems to me a significant observation.
I think the disorder you're talking about, these abdominal sounds, is another form of manifestation for a problem that many people have.
I think it's the same kind of disorder that other people have described: it's a very high production of gas in the digestive tract. It manifests itself either as belching or bloating.
Many talk about high gas accumulation in the digestive tract.
An intestinal dysmicrobism, obviously.
I would like to tell you an experience:
A woman I know has developed a number of side effects: burning pain, weakness, tremor, internal vibration, shortness of breath and, very often, gas expelled out of the stomach, through the mouth.
For this annoying gas removed from the stomach, she tried different treatments:
-espumisan, the medicine that is typically offered in case of bloating - but it really didn't help
-probiotics
-zeolite
-fennel and anise oils - which helped a little
-treatment with nystatin, in case of an intestinal candidiasis, which could have explained the overproduction of gas - helped a little
-treatment of an supposed Helicobacter pylori, which is also known to cause bloating - but did not help
-treatment with Normix, an intestinal disinfectant - did not help
The treatment that finally helped was some pills from the naturopathic store, which, in total, contained these plants: mint, salvia officinalis, fenugreek (trigonella foenum-graecum), gentiana lutea, cloves, black wormwood, pumpkin seeds, garlic, grapefruit seeds, fennel, thyme (thymus vulgaris), black pepper.
Slowly, these pills took effect, after about a month this gas production decreased almost completely.
We must note the following: these plants are antiparasitic.
The side effects described by different people are different, very different, but some elements are mentioned by many people and they are very significant, because the question is: how can they be explained, what can produce them, what does it look like, from what is known so far?
Some special things are told by many people:
-although there are various symptoms, many have noticed that it worsens in the evening or at night - so some people have more tachycardia at night or more tinnitus during the night than during the day, or more headaches at night than during the day. Also, the temperature, sweating and chills are accentuated in the evening and at night.
-many people noticed nocturnal insomnia
-periods of remission and relapse alternate
-also, it is special that some symptoms appear suddenly, without warning and suddenly reach very high degrees.
All these symptoms are also characteristic of parasitic infections.
In addition, parasitic infections can be associated with allergic manifestations (hence the problem in which histamine is involved) and with autoimmune diseases.
The inflammation caused by parasitic toxins is so great that sometimes the treatment of a parasitosis is associated with cortisone. So there are similarities with what is found in people with side effects.I have selected from various sites lists of manifestations of parasitosis. I haven't passed any links, because anyone can find a lot of data on this topic on the net:
-digestive problems including stomach cramps, pain, unexplained constipation, diarrhoea or persistent gas, nausea or vomiting
-skin issues such as rashes, eczema, hives, crawling sensation under the skin and itching
-various forms of mental distress, anxiety, headaches, eye aches, behavioral changes, a strange sensation that something is stuck in the head
-nocturnal insomnia
-fatigue
-body aches, continuous muscle and joint pain
-dehydration
-weight loss
-swollen lymph nodes.
It is also known that the symptoms caused by parasites are maddening.
Very informative are the pages where they talk about “pathogen and parasite die off symptoms”.
There are, in fact, many causes and mechanisms involved, which are present to varying degrees in those affected and these mechanisms are interconnected with each other, they influence each other and explains the side effects:
-inflammation
-tendency to coagulation or bleeding
-autoimmune phenomena
-histamine problems: allergy to additives, MCAS
-reactivated infections or susceptibility to new infections
-direct effect on ACE2 receptors, with high blood pressure
-plus the individual elements, some, pre-existing: deficiencies, heavy metals.
But, among them, I think, it emerges as a well-founded suspicion: the parasitic infection.
I do not know which, although I tried to find out which parasites can infect, for example, the brain. Although some parasites may not colonize the brain, but their toxins circulate to the brain and cause brain symptoms such as anxiety, headache, dizziness, etc.
Parasites infecting the gut may ignite an inflammatory cascade throughout the body, is known.
If you find this an interesting idea, I hope you try to find information for this topic.
Naturopathic products to treat parasitosis could be tried, I think, at least by those who have noticed a worsening of symptoms at night or have symptoms on the list of characteristic symptoms in parasitosis.
A visit to a parasitologist may also be interesting.
It is true that I have not read to anyone who has found high values of eosinophils or IgE.
However, the assumption about parasitosis is worth considering.
A very interesting article is entitled:„Chronic giardiasis with vitamin 12 and folate deficiency presenting with psychiatric symptoms“. And a phrase from this article is: “the description of fleeting visual hallucinations suggested a possible organic origin”.
This is about mental symptoms, but the idea is: they are intermittent phenomena. Intermittent phenomena that have an organic cause.
And the question is: "why are they intermittent, how can this be explained?"
If a person drinks a glass of wine from time to time, then in those moments it can be a little different: funny or emotional, etc.
So a certain substance that reaches the brain from time to time, causes certain manifestations.
Parasitic toxins, discharged from time to time, upon replication or death of the parasite, may explain intermittent neurological or psychological phenomena.
That is, it could be an explanation for the fact that the symptoms sometimes appear suddenly, without explanation, without phenomena that announce them and the symptoms suddenly reach great severity.
What exactly are these pills whatbtge name of them ? And where can I get ? Will my GP be able to do anything for this ?
@hailey Regarding Novavax - my answer is No at present. If its the spike protein causing our issues then Novavax could do the same. In its trials there were 2 cases of heart inflammation...there's still risks with it. Where do you live?
I'm in Sydney Australia. I am pressured now to get the vaccine after many visits to the specialists. They believe Novavax 'should be ok'
I'm scared. But literally can lose my job here.
Does you work have a temporary medical exemption application? If so, see if your GP will fill it out.
Personally it's unreasonable for someone to get a 2nd dose of any covid jab when they are still experiencing symptoms from 1st. If you symptoms flare up after novavax you won't know if it's novavax or a continuation of your original first dose symptoms.
If you could get a 2-3 month temporary exemption then it gives you time to recover more and also monitor for adverse reactions to novavax.
The TGA acknowledged 4 adverse reaction reports received this week relating to Novavax (and its only their first week). Didn't say what they were nor how many doses were administered. We won't be able to view these reports til at least 2 weeks time
@hailey I'm in Sydney Australia too. I had an exemption due to my pericarditis. Once this expired I told my dr I had caught covid and he gave me a 6 week exemption. I know 6 weeks isn't ideal but it was easy to get because as you know we only have to do rapid testing now so I didnt have to prove anything to get the exemption.
Hi, Tone!
I wanted to write the names of the herbs contained in those capsules, because that's what matters.
I can't advertise a product, please understand me.
It would be very wrong.
Plant products against parasites are found all over the world and have about the same composition, there are only a few plants that are known for this effect.
I'm sure you'll find something in your country.
Also, it would be very unpleasant to wait weeks for a delivery from a distant place, especially if it doesn't help.
The family doctor cannot prescribe it, because they are naturopathic products.
They can be bought freely, without a prescription, from naturopathic stores or online.
There are many people who know that it is healthy to take a natural antiparasitic cure from time to time, for example, those who have pets.
So there is a great worldwide experience for natural antiparasitics.
I'm sure you'll find something nearby and also it shouldn't cost much.
Sorry I haven't gotten back to you. I found an interesting Facebook group...
Novavax Discussion Group - Australia
I have only read a few comments and there are people who have received their first dose of Novavax and are experiencing tingling pins and needles
@hailey I found an interesting Facebook group...
Novavax Discussion Group - Australia
I have only read a few comments and there are people who have received their first dose of Novavax and are experiencing tingling pins and needles
Which group are you referring to? Can't seem to find the Australian one???
@hailey I'm in Sydney Australia too. I had an exemption due to my pericarditis. Once this expired I told my dr I had caught covid and he gave me a 6 week exemption. I know 6 weeks isn't ideal but it was easy to get because as you know we only have to do rapid testing now so I didnt have to prove anything to get the exemption.
This still just gives me anxiety. I am not fully recovered so do need to discuss further....my exemption is till the end of the month. I wish they would just figure out what is exactly causing this 🤦♀️