Vesties’ Village

Tingling/Numbness I...
 
Notifications
Clear all

Tingling/Numbness In Body

2,496 Posts
454 Users
2675 Likes
275.9 K Views
(@buzzgirl)
Very Active Member
Joined: 2 years ago
Posts: 120
 

@pepms

How are you going now? 


   
ReplyQuote
(@buzzgirl)
Very Active Member
Joined: 2 years ago
Posts: 120
 
Posted by: @chesca17
Posted by: @volam76

@vaxstuff22 I only had as john, blood tests and simple tests of nerves and reflexes done by the neurologist (uk - when I saw him back in july I was feeling so much better). I'm frightened now, again, I have something awful like m.s. It is reassuring to here of us experiencing the same things though. I wonder what is doing this to us? Its horrible thinking we will probably never know... 

I just hope every day it all starts really going away again. Take care, know you are not alone. There are others experiencing the same things all over the world. Take care

@vaxstuff22 @volam76 @buzzgirl - to update you all and hopefully bring some hope and guidance… so this relapse that has lasted 3-4 weeks so far has been a bad one, especially the last week my nerves were burning so painful over a lot of my limbs. I went to see the GP on Friday and a couple of things that may help you all…  I’m in the Uk by the way in case some of the tests or meds are called different names where you are.. 

i told her of my issues and straight away she believed me and that it was because of the vaccine. She said she has other patients suffering the same pins and needles and burning nerve pain and she said the more boosters people have (in the Uk they are giving out 2nd boosters now) the more these problems may come to light with more people coming forward with side effects, she also told me don’t have any more vaccines and I said don’t worry you couldn’t pay me to have another!  So back to the appointment. She went through some blood tests I had done 2 weeks ago and was waiting in results, it was a thorough blood test and the only thing it found was low iron. My iron count was 10 and she said it should be as high as 120 - she said having low iron can contribute to nerve pain and pins and needles. I’ve never had low iron before in my life and I’ve had lots of blood tests over the years - it’s since the vaccine. I searched on this group key word “low iron” and found others having the same problem linked to the vaccine - I mentioned it to my auntie today and she has had the exact same issue - low iron from a blood test since the vaccine and again she has also never suffered with low iron before! She told me to go to the pharmacy and ask for the 200mg iron tablets so I’ve been taking these for 3 days (be mindful your stools will be black haha don’t be alarmed!) 

as well as this, I’m also trying for a baby at the moment so I cannot take the usual gabapentin or amatriptaline for risk to a pregnancy and I wanted something to help with the nerve pain. She suggested a steroid called prednisolone that I take for 5 days - it reduces inflammation. Well let me tell you I’ve only taken it for 2 days so far and yesterday and today my nerve pain has been sooo much better im not feeling it that much at all. It could be a combination of the iron tablets and the steroids but honestly I feel Loads better already - look into it if not already with your Gp they can give you a prescription for a short course of steroids it’s certainly helping me so far and it doesn’t carry the side effects that gabapentin does - she said it was safe for taking when trying for a baby so can’t be that bad to take. 

the third thing I requested and spoke to her about was a spike protein test. She has written to Immunology department at the hospital to request this test to be done so we can measure the amount of spike proteins in my body. If the number is high it will prove the reason for my suffering, then the million dollar question is how do they get rid of the spike proteins in my body or is it just something that will reduce in numbers over time till it eventually leaves our bodies. On this forum I’ve read of other people having this test at a point in time and the numbers are high, then they have the test done again a few months later to show the spike proteins coming down which means it’s slowly working it’s way out of the body. 
You can also order the test online privately as an at home kit - some kits don’t tell you the actual spike protein levels they just say “positive” or “negative” so check in the details before ordering. 
the gp dr has asked to see me again on the 4th November to see if these steroids have a, done the job and resolved all my nerve pain, b, done the job whilst I was taking the steroids and then symptoms return or c, even done anything at all. She also said if we’re waiting too long to have the spike protein test done at the hospital I could also order the home test kit by then and send off for it myself. 
i told her about our group and the support and advice we’re all sharing with eachother to get through it and she was really impressed and supportive of it and that we are taking matters into our own hands to help heal ourselves when so many drs aren’t listening to us and dismissing us! 
anyway I’ll be finished these steroids in another 3 days so when I’ve finished them I’ll give it a few days to see if the pains return and then I’ll come back on here and update you all but so far so good! 

keep the faith and take comfort in all the negative scans and blood tests were all getting for any bad illnesses - yes I had low iron but it’s easily fixable and it might just be one of the causes of this nerve pain. 

Be back with an update in a few days 🙂 

I’ve attached a photo of the home test kit I found for the spike proteins 

P.s. When you see this GP next, can you please ask what other suggestions she might have. Also any feedback on what was effective for other people she might have seen.

Thank you!!


   
ReplyQuote
(@montydes)
Active Member
Joined: 2 years ago
Posts: 40
 

Very intersting Francesca, I literally mentioned low iron a few posts back from yours!! I'm taking supplements but no improvement thus far (less than a week). I'm also now taking a good quality b complex. Hell, I'll try anything to get rid of this buzzing once and for all!!!!


   
ReplyQuote
(@montydes)
Active Member
Joined: 2 years ago
Posts: 40
 

Hi all,

So when I touch my upper side/inner thigh I can create a buzzy sensation in my foot (follows the nerve down the leg I guess?), I've had similar to this previously with the legs but most of my buzzing seems to have moved to the feet now (especially after a walk)? Does anyone else get this?

Thanks

Ste

 


   
ReplyQuote
(@montydes)
Active Member
Joined: 2 years ago
Posts: 40
 

Could some of us have this? (treatment being Prednisone). It certainly seems that our nerves are demyelinating with no protective layer around them? More common in men apparently..

Edit - think this is related to Guille Barre syndrome which my neurologist said I definitely didn't have

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) | National Institute of Neurological Disorders and Stroke (nih.gov)

This post was modified 1 year ago by Buzzing (not in a good way) Steve

   
ReplyQuote
(@vaxstuff22)
Active Member
Joined: 2 years ago
Posts: 19
 

@montydes I have buzzing in my foot and hands but haven't noticed any connection with the thigh.

However, some good news. I've come completely off sugar ( cake, biscuits , anything sugary ) and caffeine. I had cut down before but have now given up entirely. Whether coincidental or not my buzzing/tingling is about 20% of what it was.

We are all different but maybe worth a try.


   
ReplyQuote
(@buzzyb)
New Member
Joined: 1 year ago
Posts: 2
 

Hey guys, 

I got 3 doses of the AstraZeneca vaccine. No untoward symptom after the 1st dose (May 2021) but a week after my 2nd dose (Aug 2021), I had an episode of tachycardia (HR 147 just laying still). It lasted for a week (HR 110-120). GP said it was anxiety!!
12 weeks later I started having numbness in my feet; lost almost entire sensation in some areas. GP diagnosed it as Vitamin B deficiency (Burning feet syndrome) and prescribed supplements. Got my 3rd dose in June 2022 (that vaccine might be causing this didn’t even cross my mind).
 
Now, 2 months on and I have a myriad of symptoms including tingling & numbness in my limbs, internal tremors and buzzing all over my body (more on the left side), muscle twitches all over, eye twitch (only on my right eye), lip twitches, heaviness (like having a tight band on my left arm and having weights attached to my left leg), tachycardia, being woken up by a jolt and tightening around my chest and a feeling of burning with fever (though no fever), sudden goosebumps only on my right leg and, for a short time, gum bleeds. At some point I felt that symptoms had almost disappeared but then it all came back with a vengeance.
 
Doctors found no issues. Reflexes, touch, pin pricks, vibrations, blood tests all normal apart from very low Vitamin D and a high BP reading in the clinic. So I have been prescribed supplements and asked to monitor my BP and ignore ALL my symptoms (psychosomatic?). They did not refer me to a neurologist(though I have been asked to return in 2 weeks time). When I asked if it could be the vaccine or even covid itself, the answer was a resolute NO.
 
I was a fit 39 year old with no other health issues; now at my wit’s end trying to make sense of my symptoms, going down the rabbit hole of googling every neurological disease under the sun. Stumbled across this thread and my anxiety level just dropped quite a bit. Unlike most of you though, my first symptom was not immediately after the vaccine; it was a good 3 months after and even then it kinda built up slowly. So I’m still sitting on the cusp of ‘Is it the vaccine’ or ‘is it something serious like MS!’

   
ReplyQuote
(@montydes)
Active Member
Joined: 2 years ago
Posts: 40
 

@vaxstuff22 Yep I find sugar definitely triggers the buzzing, re - caffeine I'm only on a few cups of tea a day (gave up coffe though), but usually have chamomile tea in the evening which I think also helps calm things down a bit.

I also find after moving and sitting down again triggers the buzzing but I can count between each buzz (usually starts every 10 secs) and after a few mins the frequency reduces and then eventually disappears completely which is good (almost like a meditation technique).. 


   
ReplyQuote
(@vaxstuff22)
Active Member
Joined: 2 years ago
Posts: 19
 

@buzzyb My bet is that it is the vaccine. Mine also took a while to really manifest itself. Very similar symptoms to yourself although without the gum bleeds.

Have you tried giving up sugar? Seems to have worked for some of us.

All best wishes.


   
ReplyQuote
(@montydes)
Active Member
Joined: 2 years ago
Posts: 40
 

@buzzyb Welcome! It's definitely not MS or anything serious rest assured. Most of us have been told it's just anxiety (which I don't believe although being anxious doesn't help). It's definitely the Vax, we will all get better eventually but nerve issues can take time to heal, hang in there!


   
Buzzy B reacted
ReplyQuote
(@kg1986)
Active Member
Joined: 2 years ago
Posts: 54
 

So I am in the middle of a TERRIBLE flare up. A lot of the same old symptoms (muscle weakness, ringing in ears, nerve pain etc, brain fog) but this time I feel very achy in my joints and awful back spasms. It again sparked extreme anxiety in me. I am back to Dr appts every day ruling out other scary things (so far so good like usual). They are doing an abdominal MRI because this time around my stomach is really tender on and off, a lot of GI symptoms. And also they are doing another Brain MRI but this time with contrast. They gave my gabepentin which I just started last night. I am also seeing an integrative DR that is really diving into ruling out Lyme. I take ALL the supplements in the world, work out (not for a few weeks because this has been a terrible flare up), and eat very clean. They even tried prednisone for me, which didnt do a whole lot. 

Has anyone heard of being able to have your blood checked for the Spike proteins in the VX? I only ask because I really don't know where else to go from here. I finally have several Drs that are willing to talk about VX reactions and admit that its real, and that yes-it has had very strange effects on some individuals. 

 

I have to keep telling myself that it's not cancer...it just comes and goes for the last year, and most tests are normal besides IGG/ANA and some inflammation markers (and Vit D orignally/low B12)...I just had this nagging fear that I have some terminal illness that they are missing..but I think I have had almost every test/scan available at this point. I have 2 daughters under 3 so I think that makes my anxiety level higher when I feel this ill. I know it will get better ( I am on week 5 of this) so hopefully in a few more weeks I start to feel good again, seems like everytime this happens it lasts 6-8 weeks.

 


   
ReplyQuote
(@kg1986)
Active Member
Joined: 2 years ago
Posts: 54
 

@buzzyb wow you sound just like me. Last year my reaction happened almost 3 months after the initial jab. I was absolutely convinced I had MS, or ALS or some crazy disease. Hang in there...I am still in the middle of trying to figure out just what the heck is happening in my body. I am 36 with to babies and always have been fit and healthy until this. We will get thru it!


   
Buzzy B reacted
ReplyQuote
 J
(@j)
Active Member
Joined: 3 years ago
Posts: 51
 
Posted by: @kg1986

So I am in the middle of a TERRIBLE flare up. A lot of the same old symptoms (muscle weakness, ringing in ears, nerve pain etc, brain fog) but this time I feel very achy in my joints and awful back spasms. It again sparked extreme anxiety in me. I am back to Dr appts every day ruling out other scary things (so far so good like usual). They are doing an abdominal MRI because this time around my stomach is really tender on and off, a lot of GI symptoms. And also they are doing another Brain MRI but this time with contrast. They gave my gabepentin which I just started last night. I am also seeing an integrative DR that is really diving into ruling out Lyme. I take ALL the supplements in the world, work out (not for a few weeks because this has been a terrible flare up), and eat very clean. They even tried prednisone for me, which didnt do a whole lot. 

Has anyone heard of being able to have your blood checked for the Spike proteins in the VX? I only ask because I really don't know where else to go from here. I finally have several Drs that are willing to talk about VX reactions and admit that its real, and that yes-it has had very strange effects on some individuals. 

 

I have to keep telling myself that it's not cancer...it just comes and goes for the last year, and most tests are normal besides IGG/ANA and some inflammation markers (and Vit D orignally/low B12)...I just had this nagging fear that I have some terminal illness that they are missing..but I think I have had almost every test/scan available at this point. I have 2 daughters under 3 so I think that makes my anxiety level higher when I feel this ill. I know it will get better ( I am on week 5 of this) so hopefully in a few more weeks I start to feel good again, seems like everytime this happens it lasts 6-8 weeks.

 

Hi Kristin - my flare ups last 6-8 weeks too…in in week 6 of one now with the same symptoms as you.  I just started having joint issues too. So I have just started intermittent fasting to try to clear spike proteins during the fasting time. I will let you know how it goes. I don’t know how to measure the quantity of spike proteins but you can do a COVID antibody planel to quantify the antibodies. They start high after the jab and then decrease over time naturally/as time passes

good luck with your new mri and dr. Visits. Keep us posted!


   
Kristin reacted
ReplyQuote
(@chesca17)
Active Member
Joined: 2 years ago
Posts: 26
 
Posted by: @buzzgirl
Posted by: @chesca17
Posted by: @volam76

@vaxstuff22 I only had as john, blood tests and simple tests of nerves and reflexes done by the neurologist (uk - when I saw him back in july I was feeling so much better). I'm frightened now, again, I have something awful like m.s. It is reassuring to here of us experiencing the same things though. I wonder what is doing this to us? Its horrible thinking we will probably never know... 

I just hope every day it all starts really going away again. Take care, know you are not alone. There are others experiencing the same things all over the world. Take care

@vaxstuff22 @volam76 @buzzgirl - to update you all and hopefully bring some hope and guidance… so this relapse that has lasted 3-4 weeks so far has been a bad one, especially the last week my nerves were burning so painful over a lot of my limbs. I went to see the GP on Friday and a couple of things that may help you all…  I’m in the Uk by the way in case some of the tests or meds are called different names where you are.. 

i told her of my issues and straight away she believed me and that it was because of the vaccine. She said she has other patients suffering the same pins and needles and burning nerve pain and she said the more boosters people have (in the Uk they are giving out 2nd boosters now) the more these problems may come to light with more people coming forward with side effects, she also told me don’t have any more vaccines and I said don’t worry you couldn’t pay me to have another!  So back to the appointment. She went through some blood tests I had done 2 weeks ago and was waiting in results, it was a thorough blood test and the only thing it found was low iron. My iron count was 10 and she said it should be as high as 120 - she said having low iron can contribute to nerve pain and pins and needles. I’ve never had low iron before in my life and I’ve had lots of blood tests over the years - it’s since the vaccine. I searched on this group key word “low iron” and found others having the same problem linked to the vaccine - I mentioned it to my auntie today and she has had the exact same issue - low iron from a blood test since the vaccine and again she has also never suffered with low iron before! She told me to go to the pharmacy and ask for the 200mg iron tablets so I’ve been taking these for 3 days (be mindful your stools will be black haha don’t be alarmed!) 

as well as this, I’m also trying for a baby at the moment so I cannot take the usual gabapentin or amatriptaline for risk to a pregnancy and I wanted something to help with the nerve pain. She suggested a steroid called prednisolone that I take for 5 days - it reduces inflammation. Well let me tell you I’ve only taken it for 2 days so far and yesterday and today my nerve pain has been sooo much better im not feeling it that much at all. It could be a combination of the iron tablets and the steroids but honestly I feel Loads better already - look into it if not already with your Gp they can give you a prescription for a short course of steroids it’s certainly helping me so far and it doesn’t carry the side effects that gabapentin does - she said it was safe for taking when trying for a baby so can’t be that bad to take. 

the third thing I requested and spoke to her about was a spike protein test. She has written to Immunology department at the hospital to request this test to be done so we can measure the amount of spike proteins in my body. If the number is high it will prove the reason for my suffering, then the million dollar question is how do they get rid of the spike proteins in my body or is it just something that will reduce in numbers over time till it eventually leaves our bodies. On this forum I’ve read of other people having this test at a point in time and the numbers are high, then they have the test done again a few months later to show the spike proteins coming down which means it’s slowly working it’s way out of the body. 
You can also order the test online privately as an at home kit - some kits don’t tell you the actual spike protein levels they just say “positive” or “negative” so check in the details before ordering. 
the gp dr has asked to see me again on the 4th November to see if these steroids have a, done the job and resolved all my nerve pain, b, done the job whilst I was taking the steroids and then symptoms return or c, even done anything at all. She also said if we’re waiting too long to have the spike protein test done at the hospital I could also order the home test kit by then and send off for it myself. 
i told her about our group and the support and advice we’re all sharing with eachother to get through it and she was really impressed and supportive of it and that we are taking matters into our own hands to help heal ourselves when so many drs aren’t listening to us and dismissing us! 
anyway I’ll be finished these steroids in another 3 days so when I’ve finished them I’ll give it a few days to see if the pains return and then I’ll come back on here and update you all but so far so good! 

keep the faith and take comfort in all the negative scans and blood tests were all getting for any bad illnesses - yes I had low iron but it’s easily fixable and it might just be one of the causes of this nerve pain. 

Be back with an update in a few days 🙂 

I’ve attached a photo of the home test kit I found for the spike proteins 

P.s. When you see this GP next, can you please ask what other suggestions she might have. Also any feedback on what was effective for other people she might have seen.

Thank you!!

@volam76 @buzzgirl @vaxstuff22 

so it’s been 2-3 days since I finished the steroids and unfortunately as feared symptoms of burning tingling nerve pain have returned. The steroids certainly helped the pain whilst I was taking them it’s just annoying that it hasn’t resolved. I’m seeing the gp who put me on them on Friday the 4th so will look at next steps with her. 
had some bad news the other day, immunology wrote back to the gp and said they won’t do the spike protein tests because they see no evidence that my symptoms are linked to the vaccine!!! I was soooo angry as you can imagine, how dare they make such a bold statement when they have no proof that it isn’t caused by the vaccine! Looks like I’m going to have to have that test done privately. I’m so frustrated with the nhs and their lack of knowledge or belief for people suffering with vaccine side effects! 
@buzzgirl to answer your question in your other post, when the gp told me she had other patients suffering the same it was my immediate question - “have they gotten better” and she said they haven’t yet found resolution because they are also on the same timeline as me - symptoms started for them in November:December last year when they got their first booster vaccines. 
Although it will be 12 months on Jan 10th since my symptoms started I can’t say I’ve been Ill or suffering for almost a year. I’ve had 2 episodes/periods of time during the last 9 and a half months where I’ve suffered with symptoms/side effects. 
jan 10th the first initial symptoms lasted around 8 weeks and then in this 2nd random relapse I’m now around 5-6 weeks in. I’m hoping this relapse follows a similar pattern to the first which would mean I should start to feel better in 2-3 weeks but who knows.  I don’t know if this is just coincidence but on Wednesday this week I caught a stomach bug that I am still battling. As my immune system is down whilst I’m unwell, that could have affected the steroids working - I still had 1 more day of steroids to take when the stomach bug started and as I say all my nerve pain is back so wonder if me being unwell with a virus has had an affect - I’ll ask the gp on Friday.  I can’t eat really at the moment with this bug but once I’m better I’m going back on my ketovore diet. I cut out all carbs and sugar (as John referred to) I eat a lot of red meat and some low oxalate vegetables.  I first learnt about a meat/animal based diet through a guy called “Liam stops tinnitus” you can find him on Instagram and YouTube and he has lots of videos and resources. I was suffering with tinnitus from an ear infection unrelated to the vaccine and so came across his advice. This woman in the YouTube video below suffered vaccine injuries like us and one of her side effects was tinitus so she followed Liam’s advice which is to eat only meat, liver, eggs (carnivore), get sunlight, take cold showers, grounding (walking barefoot on the earth) no tap water, (I bought a water filter jug on Amazon and now use that) exercise, and some fasting. 
here’s the video it’s an interesting watch. 

https://youtu.be/C74TB_f4xjs  

when I was following an animal based diet for a few weeks before I got this virus, my 15 years of TMJ issues went away, my ibs issues went away and all my gut inflammation, acid reflux was gone and if I’d been able to carry on with it a few more weeks I really think it would’ve helped my nerve pain seen as though this way of eating reduces inflammation in the body. 
I’ve watched videos of people who are carnivore on YouTube and they have come off their MS medication and reversed type 2 diabetes so that says a lot.. 

anyway just sharing if anyone wanted to give it a go or research further into it - dr Ken berry is worth a watch on YouTube too - he talks about nerve pain and carnivore. 

anyway, I’ll come back on here after my appointment with the go on Friday and let you know how it goes. 
Stay positive everybody, we will fight this and get better! 🙂 


   
Buzzgirl reacted
ReplyQuote
(@thordin)
New Member
Joined: 1 year ago
Posts: 1
 

Hello guys!

After lingering here for a few days I read all your posts here and want to share my experience with you which is pretty fast thankfully.

12 days ago I received Sinovac vaccine. Normal reactions after, felt week and irritated day after. 3 days after I started feeling insane tingling, itching on my left arm and then next days spread to the whole body, also tinnitus and insane brain fog.

I knewed it’s not anxiety beacuse I was dealing with anxiety past 2 years, so I know her every detail, even tho vaccine side effects and anxiety are almost the same, but not in the way of that kind of tingling and itching.

Now is 12 days for me from the first dose and I can say it’s already 95% gone, maybe I am lucky just, but my state of mind is really strong beacuse I had experienced lots of horrible health things in my past so nothing can let me down that fast. First few days I was in shock ready that it can last for the months, but in another hand knowing that I naturally healed from anxiety without any medication couraged me again that body have amazing abilitty to recover.

I did nothing special, I started drinking b12 complex again these days and Fish Oil thats all. I eat mostly clean food, I don’t smoke drink, caffeine and nothing in that nature so I guess that have also sort of help.

Anyway time is a healer, try to relax and distract from this things beacuse as much you focus on certain things, they get more acumulated, also don’t restrict yourself too much with diet etc. Time is the best healer which proves me in many my health issues.

Some my opinion at the end that seems that post vaccine side effects kicking the butt in b12 and D vitamin so who have lower from the start, most likely will experience this things. My doctor just suggested me this from start, I didn’t even contact Neurologist.

Good luck people and don’t worry!


   
ReplyQuote
Page 156 / 167