Last seen: August 14, 2023 8:41 am
I am not aware of any USA lawsuits. But I’m not really all that in the loop in that regard. If I hear of any, I will pass it along to the group
For the Australians out there: There is a class action lawsuit for the v injured against Aussie government. Said to be free to register. I have see...
@carlapucci Hi - Did the docs say why they ordered the lumbar puncture? Are they looking for MS? I can’t recall what my last update was. I have 15-2...
Hi Carla, it is excellent news that you have no additional brain lesions. Regarding “mitochondrial myopathy” do your symptoms line up with that condit...
Yale is recruiting study participants globally for their LISTEN study. They may select you to take blood samples from (USA only). Looking for vaccine...
Yale is recruiting study participants globally for their LISTEN study. They may select you to take blood samples from (USA only). Looking for vaccine...
Hi Carla, how are you doing? I wanted to check in with you to see if you are feeling any better and if you had your second MRI. I have a few more lesi...
Hi Kristin - my flare ups last 6-8 weeks too…in in week 6 of one now with the same symptoms as you. I just started having joint issues too. So I have...
Hi KitKat, each time I have a flat up I get that gnawing feeling in my forearms and strong aching/pain in my hands/feet amongst many other symptoms, e...
Hi KitKat - I just noticed your post where you speak of “gnawing ache” in your forearms/wrists. Just wanted to let you know that I also get that each ...
Hi Nawwaf, I am curious about your spinal tap. Do you happen to know what was tested? Also, 10k is really expensive - are you comfortable sharing you...
Hi Volam - I know, it’s terribly upsetting when the symptoms come back. What we have is very cyclical - better for a while and then out of the blue ev...
Hi Everyone - I’m at 15 months since it all started and currently in a flare up. Curious if anyone has had their tingling replaced by aching? All my ...
Hi Mohammad - thank you for posting your candid update at the 1 year mark, it is much appreciated. I also posted my 1 year update and will do the sam...
Hi Kg, I can relate. I have the same question…is this going to flare up every time I get sick??? For over a year people in my house were getting si...