@regretvax hi! Well, I've been 2 years in June since my second vax, and although I still have minor tingling, its nothing like it was for the first year and a half. It does ease, I promise. You will learn to ignore it. You will learn that you are safe and its just a sensation. It took me a long time to realise these things (my last appointment with the dr in Nov last year as the tingles had suddenly got bad again made me understand I do not have something horrendous- I was convinced it was ms, like so many others). Honestly, trust that the sensations will gradually ease. Know that they come in waves, but always subside again. I will never in my life have another vaccine and I'm so angry at the government and medical world for hushing it all up. It's disgusting how so many have suffered. You will overcome this. Your body will find homeostasis again. Sending all my best to you.
- Hi, thank you for reaching out and for all the great information. I daydream of wishing I never got the M-jab. Here is my email incase I don’t see your post on here. Lynwrong @g.
- I’ve also been on Keto to tame down the flare ups. I used to drink smoothies, but the sugar from fruits makes me symptomatic. I am also taking
- Lions Mane (herbal mushroom) that helps with nerves. Read up on it, it has helped with auto immune disease. I am still seeing a specialist to rule out things. They did find lesions on my brain. Hoping things could be reversed and we will all recover. I will write more next time, I am headed to work.
Have a good day!
Take care, Lyn
Thank you for this. Its good to know that there is light at the end of the tunnel. Its been a year for me and the symptoms gotten worse. Trying to avoid flare ups. The symptoms are crazy at times, I had to change my diet and avoid sugar. I am also taking Lions Mane (herbal mushrooms) it should help with nerves. Please read up on it.
Take care
@regretvax hi there
it’s also been a year for me now but I did have 5 months in the spring/summer last year where i was pretty much symptom free or at least very mild.
I had the Pfizer booster dec 21 and started with tingling burning nerve pain in the Jan 22, about 3 weeks after having the booster. Had the terrible pins and needles and burning nerve pain for 3 months before it settled down from end March. Then in mid September out of nowhere I had a relapse. I got covid in June for the first time but the relapse didn’t happen till mid September so don’t think it was related to my symptoms returning. I am still in that relapse now - it’s been 4 months.
Saw a neurologist who examined me for peripheral neuropathy and said I’m showing no signs of it. Had loads of blood tests done - only found low iron my levels were 10! I’m on iron tablets now, I think the vaccine also caused low iron in me as I have never had an iron deficiency before and my Aunty who’s also been vaxed had a reading of 8 and again she’s never had low iron before!
I had an MRI scan last week on my brain and spine and thoracic spine to look for inflammation - waiting on the results which will take about 4-6 weeks they said.
The neurologist is saw said she had other patients suffering the same as me since the vax.
As much as I have beaten myself up about getting the booster and wish I could go back in time, I’ve come to realise that people are suffering with long covid and going through the same as us and they didn’t get any vaccines at all. So either way it was a gamble, we could’ve ended up in this position from getting covid and not getting the vaccine so don’t beat yourself up about getting the jabs. Either way vax or no vax we were at risk either with side effects from the jab or long covid symptoms.
I am taking alot of supplements every day and I eat a low carb and low sugar diet which is animal based.
dr Ken berry on YouTube talks about never pain and auto immune diseases and how carnivore has helped loads of people - it’s even put some MS sufferers in remission and off meds. I recommend dr Ken berrys videos and take a look at the comments left by people who have reversed type 2 diabetes and got rid of fybromyalgia along with other nerve illnesses.
I eat lots of meat, eggs, fish and salad and fresh fruit if I need something sweet but I don’t go mad on fruit to watch my sugar intake.
supplements I am on - I watched some videos by Dr Valerie Montiero on YouTube who helps patients recover from peripheral neuropathy and various types of nerve damage. I’ve spoken to her on email and she’s really good at replying - she has helped vax injured people to recover.
For the tinnitus sufferers out there:I’ve seen alot of posts from people suffering with Tinnitus. I have mild tinnitus but not from the vax. It’s from an ear infection I had before the booster. I found Liam Bohen on Instagram his account on YouTube and Instagram is called “Liam stops tinnitus”. From his advice (he introduced me to an animal based diet) my tinnitus is completely gone in one ear and now it’s really mild in the other ear. His advice works for tinnitus and he has lots of success stories posted From people who took his advice. He has a paid course but you can also silence your tinnitus with his free advice - I didn’t pay for anything and got all the free advice from his YouTube videos.
anyway sorry for the long post just wanted to share what I have learnt and what has helped me and if I can help another person then great!
@regret vax - hope your doing ok
animal based diet?? Hmm like what kind of meal plan did you follow? Are you still on this meal plan?
Animal based means meat based diet. I eat mainly steaks, eggs, chicken, lamb, fish, bacon and some dairy (milk and cheese and butter). I don’t eat carbs or sugar. Only bit of sugar I will have is a piece of fruit.
I also eat salad made with lettuce, cucumber and onion. I don’t eat spinach leaves as these are very high in oxalates. Salad is the only vegetables I will eat with my meat.
I’m not pushing This diet on anyone but since you’ve specifically asked I will share my experience with it.
I’ve suffered with IBS, acid reflux and a clicky cracky jaw for over 10 years. since I switched to a low oxalate animal based diet all of my gut issues, and acid reflux and clicky jaw have all gone away. I’ve also drastically improved my tinnitus. Loads of people in my carnivore (animal based) community have healed many other health issues including, type 2 diabetes, fatty liver disease, fibromyalgia, UTIs, gut issues, arthritic pain, thyroid issues and many many more issues resolved.
If your interested check out these people on YouTube/Instagram.
Dr Ken Berry
paul saladino
Sally Norton - for education on oxalates. She has an amazing book out called toxic superfoods.
Low ox granny on Instagram is also great and her story is amazing. She features on some great YouTube videos as well.
it has been amazing for me and my health and I’ve cured years of gut issues. As I said, each to their own and I’m just sharing my own experience with this way of eating in answer to your questions 🙂
Re: VZV...shingles can happen without a rash and it is not just for the elderly. The symptom list can be extensive.
--------------
I've been dealing with the symptoms mentioned in these posts and am finding I have a lot in common with people who had covid vaccines or have had long covid.
In my case, this all started before covid19 existed.
I have not had a covid vaccine (due to fear of what it would do to my already extensive symptom list) and I have not had the virus (antibody test confirms this.)
I have seen so many specialists and had so many tests it isn't funny, but so far, no diagnosis that makes SENSE (I'm not counting the doctors who said I was anxious/perimenopauseal/psychosomatic/stressed.)
I've been intensely researching on my own for over a year now because something is SERIOUSLY WRONG with me and my tingling has developed into vibrating so much that I get woken up at night feeling like my bed is shaking. Researching this lead me to so many covid sufferers with the same symptom.
The shaking seems to be related to inflammation in the nervous system and I've found I can keep the shaking and tingling under control with herbal anti-inflammatories like Zyflamend.
All of this has brought me to the conclusion that what I am suffering from is shingles without rash (varicella-zoster sine herpete or "internal shingles") which flared in a huge way while taking a high dose of prednisone to improve what I now believe was inflammation caused by a relatively minor reactivation of the virus due to my being under severe stress. Another huge flare came on as a result of stress from the pandemic.
So, yes...stress is related, but an antiviral would have been a better recommendation than talk therapy at this point.
My physical abilities are so significant deteriorated now. The stress of not knowing what's wrong and being told you are doing it to yourself is enough to keep this thing flared up.
How can I possibly be "stressing" in my sleep so much that i wake up because my body is shaking?
It makes a difference to know what I'm fighting, even if it's just my own theory at this point.
I wanted to thank those on this string for sharing knowledge that helps others.
Doctors need a better education on VZV...shingles can happen without a rash and it is not just for the elderly.
When you have a crazy list of symptoms with no clear diagnosis, consider the possibility of a herpes virus reactivation.
@volam76 Just found this forum. Your post is reassuring to me, thank you. I have had tingling and numbness in my calves since getting my third Moderna booster (I've only had Moderna vaccines so far) almost a year ago. You mentioned that you are not going to get another Covid vaccine, which I understand completely. I'm wondering if I should get the bi-valent booster (maybe with Pfizer) because I'm a teacher in a classroom of adult students every day. My neurologist couldn't tell me definitively if I should get the bi-valent vaccine or not. It feels so risky, since I've already had a reaction, and I worry my symptoms will get worse if I get one more shot. If you or anyone has words of wisdom on making a decision about getting another shot, I would appreciate it.
@regretvax hi there
it’s also been a year for me now but I did have 5 months in the spring/summer last year where i was pretty much symptom free or at least very mild.
I had the Pfizer booster dec 21 and started with tingling burning nerve pain in the Jan 22, about 3 weeks after having the booster. Had the terrible pins and needles and burning nerve pain for 3 months before it settled down from end March. Then in mid September out of nowhere I had a relapse. I got covid in June for the first time but the relapse didn’t happen till mid September so don’t think it was related to my symptoms returning. I am still in that relapse now - it’s been 4 months.
Saw a neurologist who examined me for peripheral neuropathy and said I’m showing no signs of it. Had loads of blood tests done - only found low iron my levels were 10! I’m on iron tablets now, I think the vaccine also caused low iron in me as I have never had an iron deficiency before and my Aunty who’s also been vaxed had a reading of 8 and again she’s never had low iron before!
I had an MRI scan last week on my brain and spine and thoracic spine to look for inflammation - waiting on the results which will take about 4-6 weeks they said.
The neurologist is saw said she had other patients suffering the same as me since the vax.
As much as I have beaten myself up about getting the booster and wish I could go back in time, I’ve come to realise that people are suffering with long covid and going through the same as us and they didn’t get any vaccines at all. So either way it was a gamble, we could’ve ended up in this position from getting covid and not getting the vaccine so don’t beat yourself up about getting the jabs. Either way vax or no vax we were at risk either with side effects from the jab or long covid symptoms.
I am taking alot of supplements every day and I eat a low carb and low sugar diet which is animal based.
dr Ken berry on YouTube talks about never pain and auto immune diseases and how carnivore has helped loads of people - it’s even put some MS sufferers in remission and off meds. I recommend dr Ken berrys videos and take a look at the comments left by people who have reversed type 2 diabetes and got rid of fybromyalgia along with other nerve illnesses.
I eat lots of meat, eggs, fish and salad and fresh fruit if I need something sweet but I don’t go mad on fruit to watch my sugar intake.
supplements I am on - I watched some videos by Dr Valerie Montiero on YouTube who helps patients recover from peripheral neuropathy and various types of nerve damage. I’ve spoken to her on email and she’s really good at replying - she has helped vax injured people to recover.
For the tinnitus sufferers out there:I’ve seen alot of posts from people suffering with Tinnitus. I have mild tinnitus but not from the vax. It’s from an ear infection I had before the booster. I found Liam Bohen on Instagram his account on YouTube and Instagram is called “Liam stops tinnitus”. From his advice (he introduced me to an animal based diet) my tinnitus is completely gone in one ear and now it’s really mild in the other ear. His advice works for tinnitus and he has lots of success stories posted From people who took his advice. He has a paid course but you can also silence your tinnitus with his free advice - I didn’t pay for anything and got all the free advice from his YouTube videos.
anyway sorry for the long post just wanted to share what I have learnt and what has helped me and if I can help another person then great!
@regret vax - hope your doing ok
Thanks for sharing. I received my one and only Moderna vaccine on July 25, 2021. I was so thankful to have found this site and was more active in the first several months. Like many people, I stopped coming on around one year because my symptoms had really started to improve. However, in the past few weeks, the pins and needles in my legs and significant fatigue have returned. It is hard not to become afraid. I initially had several labs which were normal and an MRI of my brain, also normal. I spin around with regret for getting the vaccine, thank you for reiterating the lack of productivity in this. Even though I have this conversation with myself daily, like others too, I was healthy before the vaccine. I am saddened for all of us that we are enduring this. Relapses are extra hard because we think we have healed, and it all returns. Hoping and praying for a full recovery for all of us.
NIR Laser
Has anyone bought NIR Laser to help the nerve repair?
If yes and if you found it effective, please share brand and model and where to buy.
Thanks
Hi,
I feel your pain. Reading your story was like reading mine. I got the one and only M- in Jan 2022 and that within a few hours I had tingling and numbness in my leg that went up to my arms several months later and went away for a few months. Then in winter, the flare up came harder, tingling and numbness in arms and legs, joint and muscle pain, fatigue, brain fog, and now sometime itchy hands and feet. I notice that sugar enhances my symptoms. I did some research and found that
Glucosamine Chondroitin Turmeric & MSM vitamins work. I was so amazed, it took away the tingling and numbness (right after the first time I took it) and I felt normal again. I forgot what living without tingling and numbness felt like. It really works!
They sell the brand, Vimerson Health which have time vitamins all in one capsule. It’s all natural herbs that bring healing.
Hope this helps. Take Care!
Hi Kimberly,
Glucosamine Chondroitin Turmeric & MSM vitamins work. I was so amazed, it took away the tingling and numbness (right after the first time I took it) and I felt normal again. I forgot what living without tingling and numbness felt like. It really works! And also helps with the vibrating sensation.
They sell the brand, Vimerson Health which have time vitamins all in one capsule. It’s all natural herbs that bring healing.
Take care
Glucosamine with Chondroitin Turmeric MSM Helps Inflammatory Response,
Brand: Vimerson Health.
Amazon is the cheapest.
Here’s a description of this product.
Description
@regretvax Thank you for the supplement suggestion! I am planning to try this. I initially tried B12 complexes that were recommended by my acupuncturist, but they did not help. I also tried alpha lipoic acid without relief.
No problem. When things help me, I’m more than happy to share with others. Please let me know how it works for you. I take 3 capsule, maximum per day. 2 in the Am and 1 in the evening time. When you first receive it, It’s a good idea to take one to make sure you aren’t allergic to anything in it. I was surprised how much it helped me right away. Good luck. Message me with any questions. Take care