Hi just wanted to quickly check in to ask how your restless legs (feet burning) are going? Mine are better than before but still there every night or every time I am still. And I’m wondering if you take any specific supplement for it? Thanks so much.
I'm exactly the same, had 5 consultants and 4 MRI's! countless blood tests.. nothing. Neurologist said it would go eventually, I suspect he knew it was anxiety.. Once you accept it's anxiety and try not to feed it, it will go away.. I've also experienced GAD/depression all my adult life but must admit this is the worst anxiety ever and I've had it pretty severe before (derealisation/extreme insomnia/muscle tension). This is daily suicidal thoughts and living in constant panic/fear), just plain evil...
It's the fight/flight response which creates a direct physiological change in your body (buzzing/burning/numbness etc) caused by excess cortisol.. woudn't wish it on anyone - the pain/sensation is certainly very real but no one takes it seriously, as it's "all in your head" 🙁
I am seeing a buddhist mindfullness meditation therapist who is also experienced with ACT (Acceptance Committment therapy?), similar to CBT but next level.. I find it very challenging to accept the buzzing though!.. deep breathing also helps..
Please keep me updated as it's very hard to find similar people online.. I hope we can all recover from this awful condition soon!!
I've googled the hell out of "legs buzzing" trust me.. The trouble with researching online is it can increase your anxiety when you read about all these other serious condions with similar symptoms. Anxiety is VERY common (and treatable) whereas GBS/MS etc are relatively uncommon. I'm not saying the anxiety is any less serious in terms of physical sensations though..
I've had both pfizer shots and have now booked the booster jab. Previously I said I wouldnt but now I'm convinced it's relatively safe (except maybe an increase in anxiety?) will let you know..
@rosie01 mine are better but still there also. I’m having a difficult time taking anything currently.
@montydes I will definitely keep in touch. You as well. We need to get through this together!
@dgingoglia ok thanks for the quick response. I haven’t taken anything to date for it but I might start a b complex just to see if it makes a difference.
I'd also like to add that I had been on a extreme keto/IF diet and that would definitely increase stress hormones.. I was also having cluster migraines for 2 yrs (length of diet) but these have now reduced since stopping the diet..
I'm now trying to follow a more balanced diet (lots of fruit/veg) with more exercise. Gut bacteria is v important as this is where the neurotransmitters (serotonin etc) are created.. you are what you eat..
Update as requested: saw my neurologist today. He said it's definately the vaccine. I'm due for my second shot tomorrow. He would like me to have the second shot (Pfizer) even though I'm tingling. The plan is - go for second shot. I will tingle / have pins and needles / burning. He has upped my medication (Trepiline) from 25mg to 37.5mg to counter-act this. See him again in 3 weeks. If the neuropathy hasn't settled, he'll give me a cortisone shot. He's pretty confident that the Trepiline will calm the neuropathy down - it may just take some time. Remember, I've been on Trepiline for 15 years and it was a life saver. Accordingly to him, it's an auto-immune issue, where your immune system attacks the peripheral nerves. Not unheard of with vaccines. They put alot of crap (preservatives and the like) into vaccines. I'm not sure if I should get the second shot despite his advice. His philosophy is that we can deal with the neuropathy, but he can't help me if I'm on a ventilator due to covid.
Hi @carmenm
How are you doing these days? Did the tingling after your Pfizer calm down? How did you get on with your second shot if you took it? Hope you are doing better.
Hi everyone,
31M here, received the J&J shot on Oct 26. I've been following this forum (and the other 800+ page epic) since early November, so want to start off by saying thanks to you all for your insights and testimonies.
I've also been through a range of symptoms that come and go...and come back—from headache on my right side and sinus pressure behind my nose to pins & needles in my extremities and feeling short of breath. What concerns me the most right is what I'd call nocturnal paresthesia. I'm having sleepless nights because I'm regularly waking up with hand numbness. Usually, it begins in my pink finger on either hand, but sometimes when I wake up it's my entire hand or arm. Sometimes both pink fingers at once. Thankfully the arm only happened once. Once I wake up, so does my hand and I regain feeling soon after. I presume others have felt this too but it would be very helpful to know that for sure, if it's temporary, and if there's ANYTHING I can do to prevent me from happening. It's an awful feeling and I'm now afraid to go to sleep.
If you want some additional background: So far I've met with an internist who ordered an echocardiogram, which came back fine, and a neurologist. Neither have been super helpful or proactive. At the moment the neurologist does not believe it to be GBS and says my current symptoms don't suggest a primary central nervous system disorder. An EMG has been scheduled 3-4 weeks from now in case my symptoms persist. I have also seen an endocrinologist after my bloodwork revealed elevated TSH, but this doctor wasn't convinced the pins and needles/numbness were tied to Hashimoto's. That symptom typically presents at a very late-stage result and I've shown no other symptoms related to the disease. Going to meet with her again in a couple of months after repeat bloodwork.
Below have been my symptoms so far:
- Lower back pain (dull ache, comes and goes)
- Daytime pins and needles in right hand, left hand and feet (not all at once and not associated with hyperventilating). This has gone away, although my right cheek sometimes feels... not right. Not quite pins and needles, not numbness, but something feels off.
- Night sweats - mild but on and off
- Erratic heartbeat/rate
- Shortness of breath (would come and go) - can't tell if this is anxiety-related
- Nocturnal paresthesia in my hands/arms (this past week it's been nightly)
- Waking up feeling as if forgot to take a breath (usually connected to paresthesia; again, not sure it's anxiety)
I recently stopped drinking coffee and alcohol in the last week (and don't plan to go back to it any time soon). Trying to keep my overall diet anti-inflammatory but I'm not sure this is really helping that much by itself. Any additional words of wisdom would be greatly appreciated. Acupuncture? Finding a physical therapist?
Also, for what this is worth, I'm based in NYC so if any of you know of ANY doctors here who are willing to address these conditions as something tied to the vaccine, I would be immensely grateful. So far they've been very hesitant to outright connect this to the vaccine, which is insane and makes me feel like I ultimately can't trust their diagnosis processes.
That's it for now, thank you all,
Michael
(P.S. I'm probably going to post this in the other thread too.)
@fabiana hi - I just wanted to let you know that I have been having symptoms for almost 6 months post Pfizer dose #2. Regarding the limbs falling asleep, mine fell asleep 30-50x a day from month 4-6. This particular symptoms is mostly gone now. My most significant symptom at the 6 month mark is cramping of hands and feet…although to have had more than 20 symptoms to date. My guess is that your limbs falling asleep will lessen in time
My current symptoms are buzzing under my feet (mostly left side), sometime on my left hand. Some vibration on left arm and sometimes left leg. In odd days, I have bubbly feeling in legs.
Hi there! Did you ever find out what was going on? I have been experiencing symptoms similar to yours a month after having the vaccine. I’ve been having the symptoms for 2 months now. They seem be winding down some, but they are unsettling.
Hi
No, I had blood test, EMG test, and MRI. Everything is normal. It’s been like 6 months for me now. I know for sure that anxiety makes the symptoms worse. Meditation somewhat helps. Hope you feel better soon.
Well I first took B12, Vit C, Vit D, Omega 3, I think it might help a bit but I have been lazy taking those vitamins in the past 3 months. I think I should start taking them again. Try to relax and not stress over the symptoms (I know it’s easier said than done). Body takes time to heal.