Patient Perspective

Step 7: Give Back to the Vestibular Community

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 | Diagnosis & Treatment | New Patient Toolkit | Step 7: Give Back to the Vestibular Community

You can make a difference

Participate in Research

One way to help future generations of vestibular patients is to participate in research aimed at reducing diagnosis times and improving treatment outcomes. You can find clinical trials that are recruiting participants on VeDA’s website, or visit the U.S. National Institutes of Health website and use “Search for Studies” to find an applicable study.

Join VeDA’s Patient Registry

VeDA reports on the vestibular patient experience by collecting data through a patient registry. You can help by sharing information about your medical history. Learn more…

Join VeDA’s Community of Support

If VeDA has helped you in some way, please consider making a donation to ensure the continuation of our patient education. support, and advocacy program. Your gift helps millions of vestibular patients learn about their condition, find qualified healthcare providers to diagnose and treat them, and discover a community of support so they don’t feel alone and misunderstood.

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Step 4: Coping

Vestibular disorders come with a host of concurrent symptoms, including physical and emotional fatigue, brain fog, and nausea. A holistic healthcare plan addresses all these issues.

Learn more about how to deal with the cognitive and emotional impacts of vestibular disorders, as well as secondary symptoms like nausea and tinnitus. Develop strategies to deal with stress and fatigue, and learn to adapt your diet to avoid triggers.

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Step 5: Support

You are not alone. Millions of people experience vestibular dysfunction. By sharing with others, your own experience is validated, which can give you hope, as well as useful tools for coping with the daily impacts of a chronic illness.

Find out more about:
– In-person and online support groups
– VeDA’s online forum
– Support for your family and friends

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Step 6: Stay Informed

Keep up-to-date on new and developing topics in the vestibular community. Join VeDA’s mailing list to receive our monthly e-newsletter, with links to original articles and patient stories, and stay connected via social media.

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