@adelaide Hi. I discontinued after 19 sessions. I found temporary relief for my migraines, but no long term help. The protein spike is still in my system after 1 year. As long as it remains, no therapy will be beneficial. Good luck to you!
how are you doing? I saw in a recent post that you had the vng test done? How long did the dizziness or vertigo last after the test? I am so worried to get it. I’m supposed to be getting it.
but worried it’ll make things worse my hearing sensitivity and tinnitus.
hope to hear from you
@margaret2022 Hi - my diagnosis is now PPPD and the ENT thinks I initially had vestibular neuritis and that healed or was compensated for with vestibular rehabilitation since the VNG/ENG testing - followed by an MRI brain scan - were all perfectly normal, indicating no obvious physical impairments. I had no side effects after the VNG/ENG tests and nothing changed so I am becoming convinced that PPPD is probably correct with the brain still perceiving dizziness even when there are no longer physical reasons for it. I've been reading more on the subject since it's common for people to feel pain and other sensations even when there are no physical reasons for it. It's similar to phantom limb syndrome and there is more work being done on "pain reprocessing therapy" and the idea that you need to retrain and even "trick" the brain into ignoring the sensations. It sounds like hocus pocus, but I think I will look into CBT types of things and see how they go. How are things with you? I also have tinnitus in the left ear, although that doesn't bother me that much and it's more the swaying and lightheaded feeling I get when walking (usually more when I'm tired) that is annoying, although I was never really convinced there was anything serious wrong with me (other than having an inner ear reaction to my first vaccine dose!).
Quick update, unfortunately no improvement as such... Don't know what to think aymore.. Just tired of going to specialists who say" this is anxiety, vaccine is safe otherwise i myself wouldn't have done it,and it's all propaganda"really annoying... Swaying feeling and just generally off... Have had some days that weren't too bad... But im just starting to think that it's on such a small level that they can't see anything...read an interesting thing that covid and the v can change gut microbiome,and cause this series of problems.... All i can say is stop reading anything related, also this forum unfortunately.. Trust me, it doesnt help, nobody is going to post a cure... Hang in there, and just hope for the best....
@margaret2022 Hi - my diagnosis is now PPPD and the ENT thinks I initially had vestibular neuritis and that healed or was compensated for with vestibular rehabilitation since the VNG/ENG testing - followed by an MRI brain scan - were all perfectly normal, indicating no obvious physical impairments. I had no side effects after the VNG/ENG tests and nothing changed so I am becoming convinced that PPPD is probably correct with the brain still perceiving dizziness even when there are no longer physical reasons for it. I've been reading more on the subject since it's common for people to feel pain and other sensations even when there are no physical reasons for it. It's similar to phantom limb syndrome and there is more work being done on "pain reprocessing therapy" and the idea that you need to retrain and even "trick" the brain into ignoring the sensations. It sounds like hocus pocus, but I think I will look into CBT types of things and see how they go. How are things with you? I also have tinnitus in the left ear, although that doesn't bother me that much and it's more the swaying and lightheaded feeling I get when walking (usually more when I'm tired) that is annoying, although I was never really convinced there was anything serious wrong with me (other than having an inner ear reaction to my first vaccine dose!).
after reading your old post it definitely does sound like vestibular neuritis and you did mention you get cold sores. Ask your doctor about trying an antiviral such as acyclovir or valtrex. Google it. And look for reviews. And take it to him. It wouldn’t cause any harm at all. I see this medication given to pregnant mothers with herpes to prevent an outbreak before labour (justifying that it’s safe). I read about this in a support group for vestibular neuritis this guy had dizziness in his case he had cytomegalovirus reactivated was experiencing swaying drunk symptoms just couldn’t shake it had tinnitus as well. He googled some articles on vestibular neuritis and took it to his doctor that’s how they found out about cyto and they gave him valtrex and by the 5th day of his medication he cleared up. No more dizziness no more swaying no more tinnitus turns out his was caused by that cyto thst was reactivated by a virus and attacked his innner ear. He suffered for 8 weeks. It’s never to late to try.
@ksharky13 I have had every test imaginable with no diagnosis besides maybe long covid, maybe the VX. I also have felt the way you do, I told my Dr I have never felt anxiety like this, its not typical anxiety, it is a constant feeling of impending doom, waking up with panic attacks and living with a pit in my stomach and believing I had every disease I would read about... which ultimately made me feel hypersensitive to everything happening in my body and it was making my symptoms worse. She said this is not uncommon and she has heard this over and over recently, esp with long covid too. I should also mention I have never suffered from anxiety or depression before all of this.
I should mention one thing..I DID test positive for Lyme/Babesia thru an integrative dr (negative on regular labs)..this was not my underlying issue but I think the VX caused this to reactivate...I took several antibiotics which may have helped w some of my symptoms. Besides that my CBC has always been ok..my c4A was high meaning inflammation and my C reactive was normal. I had minor things here and there on my bloodwork but overall fine.
@kg1986: Thank you so much for both your personal reply and the long & detailed post you wrote on here. I am so happy to hear that you have worked your way through so much and are in the process of resolving so many of your issues. To hear such a success story is very encouraging.
I find it particularly interesting that you made the distinction between the actual physical adverse effects and the psychological manifestations that the mind can induce with constant doom scrolling, etc. I am certainly guilty of that and am in the process of just starting to try to deal with it in that manner. It isn’t easy though.
My tinnitus (which started all of this for me 1 year ago) has recently taken a back seat to some extreme and fairly constant anxiety / panic attacks; all too often feeling of “fight or flight”, and (most concerningly) heart palpitations, racing heart rate, and PVCs. Even though I just went through a 48 hour holter monitor with basically zero finding, I am convinced that this is physical and related to some level of damage to the autonomic nervous system created by the vaccine (even though it’s been a year since my last shot/booster). I think it’s a type of dysautonomia or POTS, but not sure how to get it definitively diagnosed & treated. I wake up in the am with a heart rate of about 60+ and when I stand up it immediately shoots up to 100+ and stays there for a long time (unless I sit down). I live in fear of having a stroke or heart attack at any moment. It sucks to be like this.
How did you reduce your anxiety? Did the NAC help, or D3? Did you have the racing heart rate/PVC issues? I’ll check out the Project Veritas video and the Pfizer site. Yes, React19 is definitely another great site for this stuff. Thanks again for sharing all of your experiences and success. We all need to hear stories like yours to feel some sense of hope.
hey how’s it going? I came checked out that Liam stops tinnitus on you tube and I joined one of his presentations. You gotta check it out. And he has other videos as well. I recommend you check him out. He had tinnitus and hyperacusis. Let me know your thoughts keep us posted
@margaret2022: Thanks for the info. I have seen some of Dr. Liam's videos. To be honest, my tinnitus is taking a back seat for now as I am dealing with recent (over the last 3 months) onset of heart palpitations and periodic rapid heart rate issues. Just started seeing a cardiologist so no idea what the root cause is yet (vaccine-related vs. stress/anxiety vs. heart problem vs. autonomic nervous system issues, etc.) This definitely has me much more concerned, considering it's my heart. Hopefully the cardiologist will be able to diagnose & treat in relative short time. Take care and keep in touch.
@ksharky13 I'm having similar issues with my hear palpitations and weird heart rate changes. I had my bivalent booster shot on December 20th. Dizziness, headache, ear aches, digestive issues ever since. Nothing is working properly. Please post anything you learn from your cardiologist. This is scary.
@margaret2022: Thanks for the info. I have seen some of Dr. Liam's videos. To be honest, my tinnitus is taking a back seat for now as I am dealing with recent (over the last 3 months) onset of heart palpitations and periodic rapid heart rate issues. Just started seeing a cardiologist so no idea what the root cause is yet (vaccine-related vs. stress/anxiety vs. heart problem vs. autonomic nervous system issues, etc.) This definitely has me much more concerned, considering it's my heart. Hopefully the cardiologist will be able to diagnose & treat in relative short time. Take care and keep in touch.
hi
hi
sorry you’re going through this it’s definitely the vaccine you can’t just randomly develop this without any cause. I’m not having a good last couple months too. Not sure what’s going to happen. All I know is that it’s always a wait. Wait for appointments and suffer until then. My doctor has an echo this week her fast heart rate subsided now it seems as she never had any complaints. I have so much pressure at the back of my head mainly the same side as my ear and eye issues. I started fasting today gonna eat my supper shortly made meatballs only. Gonna try a meat based diet and Keto type. I did it before. I’m also getting headaches on the left side at the back of my head and also my left cheekbone and behind my eye. Not sure if it’s from dehydration or inflammation. But I been drinking a lot. This place really died. I’m actually gonna be talking to a mental health specialist as well. Never ever in my life have I felt this way of having trouble coping. It’s crazy. I keep praying I don’t have SSCD/SCDS. I picked up something heavy on the weekend and then I immediately felt pressure at the back of my head on the left side. So that’s why I’m thinking SSCD/SCDS. Normally you should’ve feel any pressure back there when lifting. Unless anyone has ?? Well I don’t know what else to say. Other than this sucks and I wish I can turn back time. I’m definitely grieving my old self. I feeel so isolated at home and just can’t enjoy anything with this increase hearing sensitivity and eye issue now more dizzy with sound. I don’t have any chest pains or palpitations anymore it took about a month after covid for it to disappear. I don’t feel my heart anymore flutter either. Now I’m left with all this head pressure in my head and this loud hissing in my head and dizziness to sound. I keep praying for everyone. It feels like the end of the world.
A woman tells about midodrine for dysautonomia:
https://react19.org/vaccine-injury-of-hillary-martinez-pfizer-entry418/
There are two youtube channels about this theme:
The Dysautonomia Project
https://youtu.be/m8UT-6xaaic
Dysautonomia international
https://youtu.be/EGUb7w411_c
@kmarie18: I’m sorry to hear that you are going through so many post-vaccine issues. I can certainly relate to some of them. I have my next follow-up appointment with my cardiologist on 2/8. I will certainly keep posting my experience, treatments, progress, etc. as I go through this process of figuring out what is causing my heart-related symptoms, and how to go about treating them. I know how important it is to have people come back here to post their stories, especially if they include some level of success.
In the meantime, I would very much suggest that you try to get in to see a cardiologist as soon as you can. After that a neurologist may be in order. I’ll let you know if I go down that path too. Take care and stay positive.
Thank you for your reply. I've been to the neurologist a few times. She doesn't know what to do with me. My GP wanted me to take steroids, but they make me pretty sick so I passed on those. I had a brain MRI and that was fine. I guess I just wait and see. I may see my cardiologist if my heart continues to be funky. I've had issues with that before the vax. It's like it found every weak spot in my body and just amped everything up. Hopefully in time we will all feel "normal" again. Take care.
@ksharky13 Hi. I received your message but can't reply there since I haven't posted enough. I'm glad your doctor took time to talk with you and explain things and that your tests were non-concerning. I really hope your treatment plan helps you out. I'm going to try the L-Theanine for my anxiety too and maybe it will help calm down my hypersensitive nervous system a bit. If I could just get rid of the dizziness I could cope. I had tinnitus going into this and it's definitely more obvious now. I would say the vaccine definitely brought that on.
Thanks for all of your feedback. If I find something that works, I'll pass it on. Thanks so much and be well.
@brindledog1 2 years later and still having dizziness and nausea almost every day. This is connected with vestibular migraine, for sure, but the vaccine launched me into the never-ending syndrome. Through meditation, yoga and a really boring diet, I have had subtle improvement, but every day is a challenge. If I were one of the Kardashians and didn't have to work, it wouldn't be so bad. I am very angry that this issue, which affects thousands, is being covered up and not discussed by the CDC. And I am more angry that there isn't help for those of us who are financially suffering because of it. All of the many doctors I've seen have basically said, yes, we're seeing more and more of these types of problems, but we don't know what to do. My ear problem turned out to be a brain problem, again associated with vestibular migraine, in which the brain is sending signals to the ear, telling it that it is blocked when it is in fact not blocked! I never had these problems before the Moderna vaccine. I wish we could get some real help. How are you doing?
@fila85 hi, do you still experience any of this, in particular the joint pain?
@fila85 hi, do you still experience any of this, in particular the joint pain?