@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi Dee, I didn't have any head pain, but I did have twitches in muscles (even on my lip a few times) but mainly in limbs and fingers and toes.
My Dr and neuro both said its nerve flare up. At my last neuro appt she said that she has seen many patients with this and they have all resolved. She said if it was anything sinister it would have shown up on the nerve test she did on me and the physical exam. And also it's getting better not worse. She definitely doesn't think it's something like GBS.
I'm now 4 weeks post second vax. My symptoms have decreased almost to the point of being gone. Some days I feel a minor twinge or muscle twitch but it's nowhere near as bad as it was a few weeks ago. I've just been staying positive, not thinking about it hardly at all, taking vitamins, exercising etc. I don't plan to go back to my neuro and I don't see anything else coming out of it but she was quite reassuring about everything and that it's nothing to worry about. She also said to stay away from reading things online and self diagnosing as it causes a lot of stress and anxiety which I agree with!
Have your symptoms improved?
I don't know anymore if I am feeling better or worse. It started with muscle twitching on the 4th day post vax and then got pin and needles. Visited a dox who asked me to start Vitamin B12 and ran through some blood tests. Nothing came up except Vitamin D deficiency. I was prescribed Vitamin D tablets and sincd I was already taking B12 tablets a few days before the blood test, the reports did not show a deficiency on that.
A few days later, I started getting nerve pain at random places and the doctor prescribed Gabapin NT which I took for a day but the sude effects were bad - more muscle twiching and hypnic jerks. Post which I started taking half of it and not the whole tablet. The nerve pain started getting a bit better.
3 days later when to the ENT as I also had Tinnitus. He asked me to stop Gabapin and started his treatment for the ears. I was all fine during this time. The nerve issues were too less. All I was concentrating was on my Tinnitus.
All of a sudden my chest pain increased and it was unbearable. This was just a few days ago. I did have chest pain post vax but it was very slight. I also felt this is coz I have been anxious for too long so my body is acting up. But it wasn't the case.
Slowly all my symptoms came back. This time it was more severe than when it had begun. I feel weak in my legs. I feel somewhat electric sesnation in my head which earlier subsided a week post vax. I feel like something is crawling in my body - this I did not suffer from earlier. I don't know anything anymore. I agree that reading all of this makes you anxious but how wpuld we get answers since the doctors haven't been supportive.
9th October I got the jab, 14th October my symptoms showed up. Within a week or 10 days or so I felt better. I was confident this is just vitamin deficiency and I was cming back on track. I left this forum so as to feel better. I did everything of it. But all of it started coming back at me even worse by the end of October and now I'm feeling hopeless.
I am going to see a Neurologist but I hope he is as helpful and assuring as yours was. Hope we all come out of it soon. I am scared. Very very scared!
@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi Dee, I didn't have any head pain, but I did have twitches in muscles (even on my lip a few times) but mainly in limbs and fingers and toes.
My Dr and neuro both said its nerve flare up. At my last neuro appt she said that she has seen many patients with this and they have all resolved. She said if it was anything sinister it would have shown up on the nerve test she did on me and the physical exam. And also it's getting better not worse. She definitely doesn't think it's something like GBS.
I'm now 4 weeks post second vax. My symptoms have decreased almost to the point of being gone. Some days I feel a minor twinge or muscle twitch but it's nowhere near as bad as it was a few weeks ago. I've just been staying positive, not thinking about it hardly at all, taking vitamins, exercising etc. I don't plan to go back to my neuro and I don't see anything else coming out of it but she was quite reassuring about everything and that it's nothing to worry about. She also said to stay away from reading things online and self diagnosing as it causes a lot of stress and anxiety which I agree with!
Have your symptoms improved?
I don't know anymore if I am feeling better or worse. It started with muscle twitching on the 4th day post vax and then got pin and needles. Visited a dox who asked me to start Vitamin B12 and ran through some blood tests. Nothing came up except Vitamin D deficiency. I was prescribed Vitamin D tablets and sincd I was already taking B12 tablets a few days before the blood test, the reports did not show a deficiency on that.
A few days later, I started getting nerve pain at random places and the doctor prescribed Gabapin NT which I took for a day but the sude effects were bad - more muscle twiching and hypnic jerks. Post which I started taking half of it and not the whole tablet. The nerve pain started getting a bit better.
3 days later when to the ENT as I also had Tinnitus. He asked me to stop Gabapin and started his treatment for the ears. I was all fine during this time. The nerve issues were too less. All I was concentrating was on my Tinnitus.
All of a sudden my chest pain increased and it was unbearable. This was just a few days ago. I did have chest pain post vax but it was very slight. I also felt this is coz I have been anxious for too long so my body is acting up. But it wasn't the case.
Slowly all my symptoms came back. This time it was more severe than when it had begun. I feel weak in my legs. I feel somewhat electric sesnation in my head which earlier subsided a week post vax. I feel like something is crawling in my body - this I did not suffer from earlier. I don't know anything anymore. I agree that reading all of this makes you anxious but how wpuld we get answers since the doctors haven't been supportive.
9th October I got the jab, 14th October my symptoms showed up. Within a week or 10 days or so I felt better. I was confident this is just vitamin deficiency and I was cming back on track. I left this forum so as to feel better. I did everything of it. But all of it started coming back at me even worse by the end of October and now I'm feeling hopeless.
I am going to see a Neurologist but I hope he is as helpful and assuring as yours was. Hope we all come out of it soon. I am scared. Very very scared!
Sorry to hear that, I can image how stressful it is. A few weeks ago I was doing it tough mentally as I had constant pain in my right lower leg and it was a constant reminder that something was happening to me. I was so thankful when it started to subside and I guess that's when I started to really forget about it all and take the focus off and the symptoms just faded away over a few weeks. I still do get some so it's not completely gone and i pray it doesn't backtrack and become worse at any point.
Were you concerned about the tinnitus and focusing on it? I'm just thinking maybe the anxiety around that brought back the other symptoms plus more. My initial symptoms changed from being shooting pains, tingling, even vibration type feelings in my legs to mainly muscle twitches and sometimes shooting pains. So I'm saying the types of feelings you can experience can change after a certain time but I feel like its the body malfunctioning in some way and expressing itself in this way.
Is your tinnitus better now? Ask your neuro to do a nerve test and also physical exam. Mine prescribed me an mri but I didn't go as i can see a lot of people people went for one and all was fine and my neuro also said she would bet on the fact that it's normal, just a piece of mind for you I guess.
As hard as it is, keep telling yourself this will go away and focus as much as you can on other stuff that will completely preoccupy your mind!
@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi Dee, I didn't have any head pain, but I did have twitches in muscles (even on my lip a few times) but mainly in limbs and fingers and toes.
My Dr and neuro both said its nerve flare up. At my last neuro appt she said that she has seen many patients with this and they have all resolved. She said if it was anything sinister it would have shown up on the nerve test she did on me and the physical exam. And also it's getting better not worse. She definitely doesn't think it's something like GBS.
I'm now 4 weeks post second vax. My symptoms have decreased almost to the point of being gone. Some days I feel a minor twinge or muscle twitch but it's nowhere near as bad as it was a few weeks ago. I've just been staying positive, not thinking about it hardly at all, taking vitamins, exercising etc. I don't plan to go back to my neuro and I don't see anything else coming out of it but she was quite reassuring about everything and that it's nothing to worry about. She also said to stay away from reading things online and self diagnosing as it causes a lot of stress and anxiety which I agree with!
Have your symptoms improved?
I don't know anymore if I am feeling better or worse. It started with muscle twitching on the 4th day post vax and then got pin and needles. Visited a dox who asked me to start Vitamin B12 and ran through some blood tests. Nothing came up except Vitamin D deficiency. I was prescribed Vitamin D tablets and sincd I was already taking B12 tablets a few days before the blood test, the reports did not show a deficiency on that.
A few days later, I started getting nerve pain at random places and the doctor prescribed Gabapin NT which I took for a day but the sude effects were bad - more muscle twiching and hypnic jerks. Post which I started taking half of it and not the whole tablet. The nerve pain started getting a bit better.
3 days later when to the ENT as I also had Tinnitus. He asked me to stop Gabapin and started his treatment for the ears. I was all fine during this time. The nerve issues were too less. All I was concentrating was on my Tinnitus.
All of a sudden my chest pain increased and it was unbearable. This was just a few days ago. I did have chest pain post vax but it was very slight. I also felt this is coz I have been anxious for too long so my body is acting up. But it wasn't the case.
Slowly all my symptoms came back. This time it was more severe than when it had begun. I feel weak in my legs. I feel somewhat electric sesnation in my head which earlier subsided a week post vax. I feel like something is crawling in my body - this I did not suffer from earlier. I don't know anything anymore. I agree that reading all of this makes you anxious but how wpuld we get answers since the doctors haven't been supportive.
9th October I got the jab, 14th October my symptoms showed up. Within a week or 10 days or so I felt better. I was confident this is just vitamin deficiency and I was cming back on track. I left this forum so as to feel better. I did everything of it. But all of it started coming back at me even worse by the end of October and now I'm feeling hopeless.
I am going to see a Neurologist but I hope he is as helpful and assuring as yours was. Hope we all come out of it soon. I am scared. Very very scared!
Sorry to hear that, I can image how stressful it is. A few weeks ago I was doing it tough mentally as I had constant pain in my right lower leg and it was a constant reminder that something was happening to me. I was so thankful when it started to subside and I guess that's when I started to really forget about it all and take the focus off and the symptoms just faded away over a few weeks. I still do get some so it's not completely gone and i pray it doesn't backtrack and become worse at any point.
Were you concerned about the tinnitus and focusing on it? I'm just thinking maybe the anxiety around that brought back the other symptoms plus more. My initial symptoms changed from being shooting pains, tingling, even vibration type feelings in my legs to mainly muscle twitches and sometimes shooting pains. So I'm saying the types of feelings you can experience can change after a certain time but I feel like its the body malfunctioning in some way and expressing itself in this way.
Is your tinnitus better now? Ask your neuro to do a nerve test and also physical exam. Mine prescribed me an mri but I didn't go as i can see a lot of people people went for one and all was fine and my neuro also said she would bet on the fact that it's normal, just a piece of mind for you I guess.
As hard as it is, keep telling yourself this will go away and focus as much as you can on other stuff that will completely preoccupy your mind!
Thanks, Nat! No, I wasn't concentrating on the Tinnitus. I wasn't thinking of anything at all. Though I had a bit of muscle twitching and tinnitus at times, I wasn't paying attention to it as most of it had subsided.
It was when I had a chest pain that I got scared. And the same day all of my symptoms shooted up. Though it subsided a bit but it hasn't been as relaxing as I was last month. Moreover the chest and head issues are concerning me. I've started to feel more weakness in my legs and arms. I don't know what to do.
I will see what ghe Neuro has to say. I hope, its just nerve flareup which will subside over time and the body will heal itself on its own. But at tbis moment, I have no clue if hopes will work, if the medication will help, if I amd all of us will ever come out of it 100% and will lead our normal lives like before.
Keeping you all in my prayers! I won't wanna giveup but fighting this battle seems getting difficult with every passing day!
@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi Dee, I didn't have any head pain, but I did have twitches in muscles (even on my lip a few times) but mainly in limbs and fingers and toes.
My Dr and neuro both said its nerve flare up. At my last neuro appt she said that she has seen many patients with this and they have all resolved. She said if it was anything sinister it would have shown up on the nerve test she did on me and the physical exam. And also it's getting better not worse. She definitely doesn't think it's something like GBS.
I'm now 4 weeks post second vax. My symptoms have decreased almost to the point of being gone. Some days I feel a minor twinge or muscle twitch but it's nowhere near as bad as it was a few weeks ago. I've just been staying positive, not thinking about it hardly at all, taking vitamins, exercising etc. I don't plan to go back to my neuro and I don't see anything else coming out of it but she was quite reassuring about everything and that it's nothing to worry about. She also said to stay away from reading things online and self diagnosing as it causes a lot of stress and anxiety which I agree with!
Have your symptoms improved?
I don't know anymore if I am feeling better or worse. It started with muscle twitching on the 4th day post vax and then got pin and needles. Visited a dox who asked me to start Vitamin B12 and ran through some blood tests. Nothing came up except Vitamin D deficiency. I was prescribed Vitamin D tablets and sincd I was already taking B12 tablets a few days before the blood test, the reports did not show a deficiency on that.
A few days later, I started getting nerve pain at random places and the doctor prescribed Gabapin NT which I took for a day but the sude effects were bad - more muscle twiching and hypnic jerks. Post which I started taking half of it and not the whole tablet. The nerve pain started getting a bit better.
3 days later when to the ENT as I also had Tinnitus. He asked me to stop Gabapin and started his treatment for the ears. I was all fine during this time. The nerve issues were too less. All I was concentrating was on my Tinnitus.
All of a sudden my chest pain increased and it was unbearable. This was just a few days ago. I did have chest pain post vax but it was very slight. I also felt this is coz I have been anxious for too long so my body is acting up. But it wasn't the case.
Slowly all my symptoms came back. This time it was more severe than when it had begun. I feel weak in my legs. I feel somewhat electric sesnation in my head which earlier subsided a week post vax. I feel like something is crawling in my body - this I did not suffer from earlier. I don't know anything anymore. I agree that reading all of this makes you anxious but how wpuld we get answers since the doctors haven't been supportive.
9th October I got the jab, 14th October my symptoms showed up. Within a week or 10 days or so I felt better. I was confident this is just vitamin deficiency and I was cming back on track. I left this forum so as to feel better. I did everything of it. But all of it started coming back at me even worse by the end of October and now I'm feeling hopeless.
I am going to see a Neurologist but I hope he is as helpful and assuring as yours was. Hope we all come out of it soon. I am scared. Very very scared!
Your timeline sounds similar to mine. If this can help: I got the jab on August 29, mild symptoms started around September 5, around Sept 24 they were gone. On Sept 25 they came back full force plus new ones altogether so strong I thought It was the end. I was in bed for two weeks freaking out. Blood tests didn't show anything wrong. Starting from October 6 they started going away. They never came back as strong as they were. I have mild relapses and days where I am 100% already. Hope it will stay like this and that the last mild symptoms will go away soon.
@rosie01 hi oz, do u have pins and needles sensation in yr eyes ? And blur vision? And tingling in yr head and also the pressing pressure in yr head? I have all these besides buring pain and numbness all over my body.
I don't think it's GBS as it says that happens on both sides simultaneously, mine's only on one side - but I agree it's some kind of nerve inflammation/irritation.. I'm hoping it gets better soon or at least goes into remission for a few days!
If it helps anyone, using a TENS machine can distract you from it for a while..
I'm seeing Neuro again tomorrow so will update then.. no sleep again so exhausted from it all 🙁
Hi, have you visited the Neurologist again? What did they say?
What were your symptoms?
Hi,
The neurologist doesn't think there is any neurological explanation for the buzzing and is taking me off Gabapentin , all tests have come back clear and he was adamant it wasn't GBS as my symptoms alleviate intermittently and with GBS it's pretty constant.
I'm now seeing a mental health crisis team who are visiting me at home tomorrow as I attempted suicide yesterday, currently on diazepam but it STILL doesnt stop the buzzing!! Standing up and walking appears to help a bit and any distraction from it helps. I don't know if it's anxiety or a weird nerve irritation from the vax.. more research is badly needed.. The nurse in A&E hadn't heard of many side effects from Pfizer either?
@medee I really do think that staying calm, positive and distracting yourself from these feelings and also the thoughts about them really helps. I had a few bad days where it all seemed to flare up but I was overthinking everything and panicking that Im going to have some serious health issues etc as a result . Then I spoke to my Dr who was quite reassuring. She said all vaccines can cause nerve flare ups but these covid ones are a lot stronger and generate a stronger immune response. She also said nerve pain generally always goes away with time, some people may just take longer than others. It's now just a case of either trying out different meds that will ease the symptoms, or just riding it out till our bodies naturally settle everything down. Since I had the talk with my Dr my symptoms are still there but i notice them a lot less and I'm focusing on other stuff. Some days I don't notice them much at all and I can see certain body parts which used to have nerve pain have now gotten better. So I definitely believe we should all try to minimise our anxiety about this as much as we can.
I didnt have ear pain but I did experience some tinnitus type symptoms a few times but they were very mild and passed quickly.
My neuro prescribed me gabapentin as well and I took it for a few days but felt spaced out and not myself so I stopped it.
I think the best bet is to just keep believing that your body is healing and this will all go away soon!
Did you have a weird feeing in your head as well and ny sort of muscle weakness too?
I see that you've mentioned about your Dr and then Neuro. Just wanted to know if the nerve flare-up was said by the General Practitioner or the Neuro. If this is coming from the Neuro then it sounds like some relieving information.
Also did your Neuro do any tests on you?
Pls do use the QUOTE option while responding. You take care!
Hi Dee, I didn't have any head pain, but I did have twitches in muscles (even on my lip a few times) but mainly in limbs and fingers and toes.
My Dr and neuro both said its nerve flare up. At my last neuro appt she said that she has seen many patients with this and they have all resolved. She said if it was anything sinister it would have shown up on the nerve test she did on me and the physical exam. And also it's getting better not worse. She definitely doesn't think it's something like GBS.
I'm now 4 weeks post second vax. My symptoms have decreased almost to the point of being gone. Some days I feel a minor twinge or muscle twitch but it's nowhere near as bad as it was a few weeks ago. I've just been staying positive, not thinking about it hardly at all, taking vitamins, exercising etc. I don't plan to go back to my neuro and I don't see anything else coming out of it but she was quite reassuring about everything and that it's nothing to worry about. She also said to stay away from reading things online and self diagnosing as it causes a lot of stress and anxiety which I agree with!
Have your symptoms improved?
I don't know anymore if I am feeling better or worse. It started with muscle twitching on the 4th day post vax and then got pin and needles. Visited a dox who asked me to start Vitamin B12 and ran through some blood tests. Nothing came up except Vitamin D deficiency. I was prescribed Vitamin D tablets and sincd I was already taking B12 tablets a few days before the blood test, the reports did not show a deficiency on that.
A few days later, I started getting nerve pain at random places and the doctor prescribed Gabapin NT which I took for a day but the sude effects were bad - more muscle twiching and hypnic jerks. Post which I started taking half of it and not the whole tablet. The nerve pain started getting a bit better.
3 days later when to the ENT as I also had Tinnitus. He asked me to stop Gabapin and started his treatment for the ears. I was all fine during this time. The nerve issues were too less. All I was concentrating was on my Tinnitus.
All of a sudden my chest pain increased and it was unbearable. This was just a few days ago. I did have chest pain post vax but it was very slight. I also felt this is coz I have been anxious for too long so my body is acting up. But it wasn't the case.
Slowly all my symptoms came back. This time it was more severe than when it had begun. I feel weak in my legs. I feel somewhat electric sesnation in my head which earlier subsided a week post vax. I feel like something is crawling in my body - this I did not suffer from earlier. I don't know anything anymore. I agree that reading all of this makes you anxious but how wpuld we get answers since the doctors haven't been supportive.
9th October I got the jab, 14th October my symptoms showed up. Within a week or 10 days or so I felt better. I was confident this is just vitamin deficiency and I was cming back on track. I left this forum so as to feel better. I did everything of it. But all of it started coming back at me even worse by the end of October and now I'm feeling hopeless.
I am going to see a Neurologist but I hope he is as helpful and assuring as yours was. Hope we all come out of it soon. I am scared. Very very scared!
Your timeline sounds similar to mine. If this can help: I got the jab on August 29, mild symptoms started around September 5, around Sept 24 they were gone. On Sept 25 they came back full force plus new ones altogether so strong I thought It was the end. I was in bed for two weeks freaking out. Blood tests didn't show anything wrong. Starting from October 6 they started going away. They never came back as strong as they were. I have mild relapses and days where I am 100% already. Hope it will stay like this and that the last mild symptoms will go away soon.
I am assuming you're referring to my last comment on this thread. So since Oct 6th, it hasn't been so bad? Symptoms relapse but not so bad a before sounds good.
Did you see any doctor or neurologist? Did any other test apart from the blood test? I have some odd burning feeling in my thighs. From so long it was a left one and now its the right one too. Did you have anything of that sort too?
I hope it goes away as yours have subsided. May I know what were your exact symptoms? And were you on any medication and did you see a Neurologist?
I am about to see a Neurologist. Do reply, will help me on the muscle issue.
Do use the QUOTE option when you reply.
I don't think it's GBS as it says that happens on both sides simultaneously, mine's only on one side - but I agree it's some kind of nerve inflammation/irritation.. I'm hoping it gets better soon or at least goes into remission for a few days!
If it helps anyone, using a TENS machine can distract you from it for a while..
I'm seeing Neuro again tomorrow so will update then.. no sleep again so exhausted from it all 🙁
Hi, have you visited the Neurologist again? What did they say?
What were your symptoms?
Hi,
The neurologist doesn't think there is any neurological explanation for the buzzing and is taking me off Gabapentin , all tests have come back clear and he was adamant it wasn't GBS as my symptoms alleviate intermittently and with GBS it's pretty constant.
I'm now seeing a mental health crisis team who are visiting me at home tomorrow as I attempted suicide yesterday, currently on diazepam but it STILL doesnt stop the buzzing!! Standing up and walking appears to help a bit and any distraction from it helps. I don't know if it's anxiety or a weird nerve irritation from the vax.. more research is badly needed.. The nurse in A&E hadn't heard of many side effects from Pfizer either?
Its a relief that it isn't GBS as none of us have constant issues here. Its always on and off.
Please take care of yourself. I have been feeling the same too. It is disappointing to feel like this everyday. I have been speaking such stupid things about giving up with my family too but, deep down still have faith that I'll recover.
Your comment about it not being GBS was such a great relief. I was already scared and I have a Neurologist appointment tomorrow.
You take care of yourself and please let know if the mental support from the people visiting you has been helpful or not. I hope it helps.
Keeping you all in my prayers. I hope and pray we all come out of it soon and live a healthy and fulfilling life we had before taking the vax. Love and prayers from me!🤍
No I am not. I still currently have the tingling in my hands, feet, arms, legs and pretty much everywhere else. I’m praying so hard that it all goes away. I wish I could wake up tomorrow and I would be healed. I pray for you as well.
I am not sure if vit D has a role to play...who knows. Went to neurologist she said it's likely the nerve inflammation from the vax. Nerve studies didn't show abnormalities. I need to do couple MRI scans just in case... not sure what to do with the 2nd dose. We have cases in the area, and I wish to be fully vaxxed. But now with these symptoms makes it harder to make a decision.
How are you feeling now? Did you do further tests you've mentioned in the comment? What was the outcome?
What were your symptoms if I may ask...
Do use the QUOTE option while responding. Thanks and take care.
Hey Medee, it is still a mad ride for me. So week 11 post my 1st Pfizer. Opt out of getting the 2nd one bcs:
-the tingling has subsided BUT the twitching and the ugly nerve pain in my main leg arm muscles got pretty bad, also insomnia, despair and depressive thoughts, tightness in my throat. I had MRI done with nothing significant (white matter spot in the brain but it was there 3 years ago, my neuro wasn't worried).
Took Gabapentin which helped with pain/twitches but it feels like it shuts parts of my brain and pretty hard to function when I am on it. So holding it as a back up.
I've noticed that grounding helps, I literally lay down on the grass and breathe, not sure if it is placebo affect but I read up grounding does balance our bodies.
Coming to my week 12 next week and been told I should take AZ vax by the doctor. To be honest I don't feel I can cope with more side effects. I don't qualify for vax exemption in Australia so if I don't take the 2nd dose I am in a boat with all unvaxxed being locked out.
I am not sure if vit D has a role to play...who knows. Went to neurologist she said it's likely the nerve inflammation from the vax. Nerve studies didn't show abnormalities. I need to do couple MRI scans just in case... not sure what to do with the 2nd dose. We have cases in the area, and I wish to be fully vaxxed. But now with these symptoms makes it harder to make a decision.
How are you feeling now? Did you do further tests you've mentioned in the comment? What was the outcome?
What were your symptoms if I may ask...
Do use the QUOTE option while responding. Thanks and take care.
Hey Medee, it is still a mad ride for me. So week 11 post my 1st Pfizer. Opt out of getting the 2nd one bcs:
-the tingling has subsided BUT the twitching and the ugly nerve pain in my main leg arm muscles got pretty bad, also insomnia, despair and depressive thoughts, tightness in my throat. I had MRI done with nothing significant (white matter spot in the brain but it was there 3 years ago, my neuro wasn't worried).
Took Gabapentin which helped with pain/twitches but it feels like it shuts parts of my brain and pretty hard to function when I am on it. So holding it as a back up.
I've noticed that grounding helps, I literally lay down on the grass and breathe, not sure if it is placebo affect but I read up grounding does balance our bodies.
Coming to my week 12 next week and been told I should take AZ vax by the doctor. To be honest I don't feel I can cope with more side effects. I don't qualify for vax exemption in Australia so if I don't take the 2nd dose I am in a boat with all unvaxxed being locked out.
What the heck is this? Why are we not getting an exemption?
I too am not sure on what is happening. My legs are burning and this is a new side effect. Everytime something new comes up! What have they done to our bodies! How to live a life like this? Why aren't our reports showing anything at all when we're literally struggling?
Though in India vax is not mandatory, I took it out of pressure. I felt like I got brain washed. I wasn't in favour of it but had no clue of such side effects. I wish I'd known about it.
I feel like giving up every now and then and feel like ending my life. I've had a difficult time and we all have. Everyone at home is crying including me coz I feel I cannot take it anymore and I really don't know what to do next. My family is dependent on me and this is my condition. Nothing will work for me unless my body does. All stay strong messages aren't helping me. I want my body to get back to normalcy. I want to feel that it is healing. When will that day arrive....
I'm just tired of new symptoms showing out of nowhere every damn time.
Please share with me if you agree ❤
- I spoke to multiple doctors and specialists. There is a theory that these reactions we all are due to Fascia reaction, as it has impact on nerve and blood vessels. Not the nerves themselves. WE DON'T REALLY KNOW WHAT IT IS, pls keep this in mind. It can be VIT B6 toxicity (has very similar symptoms) for some and something else for others. Although the clinical picture is similar for all of us after the vax, please don't scare yourself with GBS and other Google diagnoses. If you had all the tests and assessment from a neurologist with no conclusive data to base these scary diagnoses please don't make yourself more sick by freaking out. I did that, and had a full on mental breakdown. I am week 11 post my 1st Pfizer jab and still dealing with this shit, but the tingling went away. The bilateral nerve leg/arm pain and muscle twitches came after the tingling went away, also inner tremor and vibrations, inner buzzing kinda. I wonder if we could do a support chat/facebook/zoom or something? I think I've been lonely in this and I personally feel bullied by the environment: scared of covid and scared of the jab. No answers from the doctors and no vax exemption. Locked out in a boat with all unvaxxed. If this sharing resonates please reach out to me. The only way out is through and I think it's hard to do it without support.
I am not sure if vit D has a role to play...who knows. Went to neurologist she said it's likely the nerve inflammation from the vax. Nerve studies didn't show abnormalities. I need to do couple MRI scans just in case... not sure what to do with the 2nd dose. We have cases in the area, and I wish to be fully vaxxed. But now with these symptoms makes it harder to make a decision.
How are you feeling now? Did you do further tests you've mentioned in the comment? What was the outcome?
What were your symptoms if I may ask...
Do use the QUOTE option while responding. Thanks and take care.
Hey Medee, it is still a mad ride for me. So week 11 post my 1st Pfizer. Opt out of getting the 2nd one bcs:
-the tingling has subsided BUT the twitching and the ugly nerve pain in my main leg arm muscles got pretty bad, also insomnia, despair and depressive thoughts, tightness in my throat. I had MRI done with nothing significant (white matter spot in the brain but it was there 3 years ago, my neuro wasn't worried).
Took Gabapentin which helped with pain/twitches but it feels like it shuts parts of my brain and pretty hard to function when I am on it. So holding it as a back up.
I've noticed that grounding helps, I literally lay down on the grass and breathe, not sure if it is placebo affect but I read up grounding does balance our bodies.
Coming to my week 12 next week and been told I should take AZ vax by the doctor. To be honest I don't feel I can cope with more side effects. I don't qualify for vax exemption in Australia so if I don't take the 2nd dose I am in a boat with all unvaxxed being locked out.
What the heck is this? Why are we not getting an exemption?
I too am not sure on what is happening. My legs are burning and this is a new side effect. Everytime something new comes up! What have they done to our bodies! How to live a life like this? Why aren't our reports showing anything at all when we're literally struggling?
Though in India vax is not mandatory, I took it out of pressure. I felt like I got brain washed. I wasn't in favour of it but had no clue of such side effects. I wish I'd known about it.
I feel like giving up every now and then and feel like ending my life. I've had a difficult time and we all have. Everyone at home is crying including me coz I feel I cannot take it anymore and I really don't know what to do next. My family is dependent on me and this is my condition. Nothing will work for me unless my body does. All stay strong messages aren't helping me. I want my body to get back to normalcy. I want to feel that it is healing. When will that day arrive....
I'm just tired of new symptoms showing out of nowhere every damn time.
I am right there with you and I resonate a lot with your experience. Some of us here definitely feel similar. If it gets better I feel hope but if I have a relapse it upsets me.