@margaret2022 Funtional Neruological Disorder...basically you have the symptoms but clear imaging and labs w no real diagnoses. Sometimes the nervous system just has to reset and basically re train itself. Can be caused trauma, viruses, vx, anything really. I have heard some people have good luck w a special type of PT....Its so least of the scary things it could be I guess.lol
@margaret2022 around 3 weeks time you need to feel results and you will see huge improvement specially from these mushrooms ones I thought I was fully recovered at some point but two weeks after I stop taking them everything strike back , I little feedback from lansoprazole I'm on the last week I feel much better but I had a little relapse yesterday, I think is my fault because we went to KFC and I ordered spicy chicken, next day I woke up with sore throat not sure why maybe from the reflux but quite weird because since I took this life ruining vaccine I don't have sore throat once , maybe esophagus is healing, not sure , only my speculations. Try these reishi / lions mane mushroom, really good , feel sorry that you're still suffering badly , what about vertigo do you experiencing any ? And one more questions when all this started do you have twitchy eyelid?
@callie Thanks for your kind words... Actually no I am not still experiencing sleep issues since takeing low dose Melatonin for nearly 6 months now. Before this for two period of around 6-8 weeks each last year I was only sleeping maybe 1.5 hours per night which was dreadful! This seemed to be linked to a flare up of symptoms and each time I tried to fall asleep I'd get a crazy racingheart beat which would wake me up along with a ramping up of my tinitus to a high pitched intensity combined with dark and hot white auras in my head... It was a waking nightmare until I got put on the Melatonin. I still have all my symptoms rolling around my system now but at least I'm managing to get better sleep although the heart rate does do a dance most nights but now if it wakes me I manage to go back to sleep.
@callie Thanks for your kind words... Actually no I am not still experiencing sleep issues since takeing low dose Melatonin for nearly 6 months now. Before this for two period of around 6-8 weeks each last year I was only sleeping maybe 1.5 hours per night which was dreadful! This seemed to be linked to a flare up of symptoms and each time I tried to fall asleep I'd get a crazy racingheart beat which would wake me up along with a ramping up of my tinitus to a high pitched intensity combined with dark and hot white auras in my head... It was a waking nightmare until I got put on the Melatonin. I still have all my symptoms rolling around my system now but at least I'm managing to get better sleep although the heart rate does do a dance most nights but now if it wakes me I manage to go back to sleep.
@malo: Sorry to hear that you are dealing with a myriad of vaccine-induced issues. I share a number of those also, some that presented earlier (13 months ago) and some that are more recent (last few months). Of particular interest is the tinnitus. I got that early and it seemed to subside after about 4 months, but then got a spike, then another reduction, then another spike about 3 months ago. Now it's a high-pitched electrical type whine in the middle of my head. I have no idea if it's still related to the vaccine or if my uncontrollable anxiety is the cause. Just wondering how your tinnitus is doing, as well as your anxiety. I do believe that the vaccines, or our immune response, did something to our nervous system, particularly the Vagus nerve, that is at the root of a lot of the issues people are dealing with. Let me know how you're doing and if you did anything that helped to relieve any of your symptoms. thanks and take care.
@callie Thanks for your kind words... Actually no I am not still experiencing sleep issues since takeing low dose Melatonin for nearly 6 months now. Before this for two period of around 6-8 weeks each last year I was only sleeping maybe 1.5 hours per night which was dreadful! This seemed to be linked to a flare up of symptoms and each time I tried to fall asleep I'd get a crazy racingheart beat which would wake me up along with a ramping up of my tinitus to a high pitched intensity combined with dark and hot white auras in my head... It was a waking nightmare until I got put on the Melatonin. I still have all my symptoms rolling around my system now but at least I'm managing to get better sleep although the heart rate does do a dance most nights but now if it wakes me I manage to go back to sleep.
Thanks for your reply. I’m so glad to hear you don’t have insomnia anymore. It’s such a horrible symptom, it affects everything including other symptoms. I know that feeling of 1.5 hrs! It’s the worst. I had terrible insomnia. It got better though and I was sleeping ok most days for a while but now it’s returned and it’s the worst. I think insomnia is underestimated as a symptom, it really affects other symptoms too. I’ve noticed the ringing in my ear has been slightly more high pitched, more frequent migraines and dizziness. I’m really hoping it’s just a relapse, I just want to sleep! What other symptoms do you have?
@callie Sorry my reply seemed to repeat itself! I'm so sorry to hear about your insomnia and I so sympathise knowing just what you are going through. I would try and get on Melatonin if possible - I'm only on half a pill which is 1m and it seems to work. Nothing really helps the tinitus apart from sleep which tunes it down a pitch or two. My tinitus also faded for a few months but kicked in again during the Covid infection. After my first vaccs I had a weird feeling around my heart which I didn't link to the vaccsas I was one of the early cohort and not much was being mentioned about reactions then. I kept feeling this obstructive feeling and after doing some deep stretches to work out where it was, I felt something snap inside and got the onset of head pressure on the left, tinitus developed with terrible vertigo , tingling in my head, darkening vision and cronic tiredness. These first batch of symptoms died down over the following year until I got Covid and then the extreme vertigo returned , but not the dizzy kind, the floor moving kind so I felt like I was drunk or gravity was pulling me down every time I walked. I had gut issues and diarrhoea that lasted 6 weeks so I lost a stone in weight. I had crazy adrenolin rushes, spikes in my BP 188/117, tachycardia, dizzy rushes to my head, left arm and left facial numbness, fizzing feeling in my stomache and tingling in my legs and feet that felt like I was walking on sponges atimes, burning sensations that moved around my torso and legs and cronic fatigue... I think that was it! I've never been so ill in my life ... Now I'm about 70% better but have relapses with any of the above and no telling what triggers it apart from stress, but suspect there's something else going on physiologically as well that contributes... Just trying to boost my system with as much as I can re supplements - Found this which might help
Hello everyone, I hope you can understand me since English is not my first language. I am currently 18 years old, I will try to explain what happened to me, on November 11, 2021 I took the first dose of Pfizer (AND THE ONLY one), which from that same night I began to experience side effects, some of them were tingling in the extremities, burning sensation and muscle spasms (as if the muscle were vibrating), after a month and seeing that the side effects did not go away, I decided to go to the doctor, the only thing they told me was that it was "anxiety", Later they sent me to do blood tests and I tested positive for antinuclear antibodies, which referred to Systematic Lupus Erythematosus. At the moment, I am without treatment since the only symptoms I have are the muscle spasms that I mentioned before. Later, they did other tests, and a non-specialist doctor told me that it was polydermatomyositis according to what I googled; that is not a very flattering diagnosis given the high mortality rate (that was a doctor from my country), and I prefer not to believe that I have that, giving as an explanation that he was a general doctor and not specialized in rheumatology. I have gone to multiple rheumatologists (who are supposed to be more oriented to this type of issue) and none have given me a clear diagnosis. I ask them, "Do I have lupus?" and they answer "yes andno." Honestly, I don't understand sometimes, and I feel that the suggestion is what is going to kill me first. I feel good; I go to school, I run, and I eat healthy. Laboratory studies showed high CPK and blood clots; blood clotting was minimal, but inflammation in the muscles was very high. The truth is that I am afraid. When I went on vacation to my country of origin, I did the blood tests, and that is where they found all the abnormalities. Since in the United States they only told me that "I was fine", in my country they gave me treatment for a month of Azatriopine to reduce inflammation in the muscles, but later I went to a rheumatologist, and she said that it is better to evaluate the physical symptoms since I mentioned that I felt fine. Honestly, I am 100% certain that it was related to the vaccine since months ago, as part of routine studies of adolescents, they did blood tests and everything was totally normal; after vaccinating myself, it "happens" that everything changed, and I feel frustrated. Because I was a teenager with no health problems, seeing myself like this overwhelmed me. I would really appreciate it if you could answer me and see if any of you have gone through something similar.
@malo Thanks, I have some melatonin at home, i'll try it and see if it helps. I just really want to sleep. I'm hoping it's just a relapse as I was doing ok for a while. Lack of sleep is affecting my other symptoms too. Insomnia is just the worst. I'm sorry about all those symptoms but i'm glad to hear your 70% better, that's a positive thing. I have some similar symptoms to yours including the vertigo, head pressure and tiredness. I've never been so ill in my life either...Yeah I have frequent relapses too, I have no idea what's causing them. How long do your relapses last? Yes it's important to try boost the immune system as much as you can. Thanks for the link, i'm taking some of those supplements. What type of magnesium are you taking?
@callie Hi really hope your system starts to unwind soon and sleep comes - Hope the melatonin will help. My relapses seem to last around 2/3 months and when they come I'm back to almost where I was at my worst... even out of a relapse state I'm never back to normal... I am starting to think that this will never happen with the internal damage that has been done initially by the vaccs and driven down deeper by the covid infection - It feels like a scarring has occured and may even be precipitating some other serious underlying issues that only time will tell... Sorry to sound so negative, but at the moment this is where I am..other times I feel more positive... Who knows! The magnezium I've just ordered was recommended on one of these pages - Its:
Life Extension Potassium with Extend-Release Magnesium – For Blood Pressure & Vascular, Bone Health – Promotes Cardiovascular Health - Gluten-Free – Non-GMO
Take care
Hi: I wanted to follow-up with you for a couple of questions:
- 1) How are you feeling? Are you continuing to get better?
- 2) Are you still taking a PPI? Where are you in that process?
-3) Have you discussed with your MD what happens after you're done with the PPI regimen? I mean, will the symptoms and issues come back?
-4) Any other insights, updates, encouraging words, etc. you can share will be greatly appreciated.
Thanks so much and I truly hope that you get back to 100% of your old self.
Hello!
1. Yeah, it's getting better and better, yesterday I drove 100km at night outside the city which was impossible for me when I had all those problems, it somehow affected my vision too
2. Im currently 3 weeks without PPI, I'm having a rebound which is normal after taking ppi so long, so I get indigestion/acid burn which is getting easier and easier each day
I'm currently without any symptoms though yesterday I was doing glute bridges like one hour after eating some pretty acidic food and BAM after third session with 12 repetitions I've started getting tired, headache, diziness and brain fog, also low heart rate. So I am 101% sure that all my symptoms were coming from those things. I ate pretty acidic that day and during glute bridges all this acid had to traver to my esophagus
3. They won't come back. My erosions are healed the only symptoms I get now may come only from light inflamation after getting off ppi, that's why when it comes to situation that I described above they were so mild. Maybe they dont sound like mild but trust me, when I had esophagitis and erosions after eating somwething acidic or salty I would almost fade while having panic attack at the same time 😀
Now I understand why I got panic attack when I was trying mountain biking last year, acid was jumping up too hard.
4. Do all tests that you can, sibo, stomach, intesties, histamine, gallbladder. If something comes out you will know what to do.
Hey up , after reading post above i decided to try PPI , Im suffering for about 2 years now on from 2nd Pfizer shot my symptoms match all yours , which includes;
-brain fog , unbalance, headaches , random pressures around the head , vision problems , tinnitus etc..
I bought 30mg lansoprazole and I'm on second week now and everything improved that much that I can't believe it, headaches gone , balance back to normal from time to time I still getting a bit blurry vision but not as much as before but in overall I feeling myself again, I will take lansoprazole to up to 4 weeks and I will stop , I've done research about it and is pretty much safe if not exceeding 8 week period then it needs to be maintained by GP , seriously it's working and is IRRITATED VAGUS NERVE which causes all of this is responsible for many things in our body , I noticed some side effects, one of them I felt a bit nauseous for first few days and is a bit funny feeling in the stomach not pain I will say ache like I just feeling stomach but is getting better , I still shocked that all this was caused by simply REFLUX , if you have any questions just ask me , take care
Hey man, I'm soo glad that I've helped someone! Yeah the symptoms are the same as in my case!
One thing though, you need to check your stomach, ask your doc for endoscopy. If you have esophagitis or gastritis 4 weeks won't be enough and you will go back to your previous state. I made that mistake when I was starting I took PPI for two weeks and thought that it will be enough. I was on PPI for 12 weeks, it took soo long for erosions to heal..
Just check that up before getting off PPI and also check up for Helicobacter cause this may be the cause too, its also stomach typical problem.
Get well!
@callie Hi really hope your system starts to unwind soon and sleep comes - Hope the melatonin will help. My relapses seem to last around 2/3 months and when they come I'm back to almost where I was at my worst... even out of a relapse state I'm never back to normal... I am starting to think that this will never happen with the internal damage that has been done initially by the vaccs and driven down deeper by the covid infection - It feels like a scarring has occured and may even be precipitating some other serious underlying issues that only time will tell... Sorry to sound so negative, but at the moment this is where I am..other times I feel more positive... Who knows! The magnezium I've just ordered was recommended on one of these pages - Its:
Life Extension Potassium with Extend-Release Magnesium – For Blood Pressure & Vascular, Bone Health – Promotes Cardiovascular Health - Gluten-Free – Non-GMO
Take care
Hey, thanks so much! Not being able to sleep properly really sucks. We need sleep to heal. Yes, that’s exactly the same with me whenever I relapse. It’s ok to sound negative. My sleep hasn’t been this bad in months and like you I feel very negative about the whole thing when I’m going through a relapse. There are times where I feel more positive too, but when I relapse the negative thoughts are more. This poison vaccine has affected our health so much, I just hope with time and supplements etc things will improve and the relapses will be less. Thanks for the link, magnesium is good for sleep so I’ll try that one and see. You take care too.
@margaret2022 trust me when I say, I completely understand what you’re going through. I don’t know if I’m coming or going.
HI all: I have to admit that I am getting distraught. My tinnitus is a loud as ever and seems to be getting gradually worse over time. And my anxiety is sky high and constant. To compound things, I’ even starting to doubt that it was due to the vaccine, although my first spike came 4-5 weeks after my Moderna booster 16 months ago. I also mad a horrible mistake of getting off an SSRI last June that I had been taking for several years so now I’m wondering if my tinnitus and anxiety are due to SSRI withdrawal syndrome and not the covid vaccine. I believe it’s fairly rare to have SSRI withdrawal for 10 months, or to get new symptoms months after stopping. So I have no idea if what I am going through is vaccine related or SSRI withdrawal related.
I have two types of tinnitus going on: 1) I have a high pitched electric “hiss” that is more in my head than my ears. I know a lot of people on here mentioned that they got the “hiss” after their vax; 2) I also have a high pitch and a moderate pitch tone in my right ear. I am seeing an audiologist tomorrow to see if I have any discernable hearing loss that could be contributing to my tinnitus. I’m just so scared that this is going to be permanent and maybe will even continue to get worse.
If anybody on here has any advice, similar experience, etc. I would very much appreciate it. I am saddened as there is so little traffic on here anymore. Either people got better or are just accepting things and getting on with their lives as best they can.
@ksharky13 what ssri you were taking ? Sounds similar to my story, symptoms started 2-3 months after moderna booster , but also it was 2 months after stopping Lexapro that I had been taking for 7 years so who knows, I didn’t get tinnitus but neuro issues tingling, pricking burning sensations that i still have now