@ksharky13 what ssri you were taking ? Sounds similar to my story, symptoms started 2-3 months after moderna booster , but also it was 2 months after stopping Lexapro that I had been taking for 7 years so who knows, I didn’t get tinnitus but neuro issues tingling, pricking burning sensations that i still have now
Thanks for the quick reply. I was in the midst of transitioning from Duloxetine (on for about 10+ months) to Lexapro. Thought I noticed a spike on day 7 of only 5mg of Lexapro, ran to the computer, found out SSRI can cause tinnitus, so I abruptly stopped taking any more SSRI. Stupid move since I had previously transitioned from Sertraline to Duloxetine 10+ months prior without any issues (had been on Sertraline for 20 years). I stopped Lexparo 10 months ago now. I don't recall any immediate withdrawal symptoms. they say that happens within days and only typically last a few weeks. So I don't know if it was stopping Lexapro or if the covid vaccine just keeps making things worse. I did not get any peripheral nerve-related issues. Just the original tinnitus spike (6 weeks after my booster) and heightened anxiety. Both have slowly gotten worse over the last year. I could also be dealing with a relapse vs. SSRI withdrawal, meaning I'm getting the same issues/symptom i had before starting the SSRI, only magnified. That would not include the tinnitus however, as I didn't have that beforehand.
I've put myself in a bad spot as I don't know the cause now (vaccine or SSRI withdrawal), but now I have tinnitus that is more noticeable all day, and my anxiety is through the roof. My therapist wants me to get back on Sertraline to help with my anxiety/panic disorder, but I am terrified of the thought that it could make my tinnitus significantly worse (I've done too much doom scrolling on the internet and read too many horror stories about SSRIs causing debilitating tinnitus for some people). In the end, I am not the same person i was a short 16 months ago, and I'm scared that I'm never getting back to who I was.
Based on your comment, it sounds like yours is related to the vaccine. Again, SSRI withdrawal reportedly starts pretty quickly after stopping the SSRI. Your symptoms appeared 2 months after. Did you taper off Lexapro or pretty stop cold turkey? In any event, these covid vaccines have devastated hundreds of thousands of people and nobody is ever going to be held accountable for it. We got lied to about the testing and safety level, and they continue to do it to this day as they roll out booster after booster. I hope and pray that my tinnitus can be cured or at least will subside over time. Keep in touch and let me know if you have any questions or come across and relevant success stories. Take care.
@pepms: I'm posting this again as I still don't the hang of it between "Reply" and "Quote" and I wanted to make sure you saw it. Lol.
Thanks for the quick reply. I was in the midst of transitioning from Duloxetine (on for about 10+ months) to Lexapro. Thought I noticed a spike on day 7 of only 5mg of Lexapro, ran to the computer, found out SSRI can cause tinnitus, so I abruptly stopped taking any more SSRI. Stupid move since I had previously transitioned from Sertraline to Duloxetine 10+ months prior without any issues (had been on Sertraline for 20 years). I stopped Lexparo 10 months ago now. I don't recall any immediate withdrawal symptoms. they say that happens within days and only typically last a few weeks. So I don't know if it was stopping Lexapro or if the covid vaccine just keeps making things worse. I did not get any peripheral nerve-related issues. Just the original tinnitus spike (6 weeks after my booster) and heightened anxiety. Both have slowly gotten worse over the last year. I could also be dealing with a relapse vs. SSRI withdrawal, meaning I'm getting the same issues/symptom i had before starting the SSRI, only magnified. That would not include the tinnitus however, as I didn't have that beforehand.
I've put myself in a bad spot as I don't know the cause now (vaccine or SSRI withdrawal), but now I have tinnitus that is more noticeable all day, and my anxiety is through the roof. My therapist wants me to get back on Sertraline to help with my anxiety/panic disorder, but I am terrified of the thought that it could make my tinnitus significantly worse (I've done too much doom scrolling on the internet and read too many horror stories about SSRIs causing debilitating tinnitus for some people). In the end, I am not the same person i was a short 16 months ago, and I'm scared that I'm never getting back to who I was.
Based on your comment, it sounds like yours is related to the vaccine. Again, SSRI withdrawal reportedly starts pretty quickly after stopping the SSRI. Your symptoms appeared 2 months after. Did you taper off Lexapro or pretty stop cold turkey? In any event, these covid vaccines have devastated hundreds of thousands of people and nobody is ever going to be held accountable for it. We got lied to about the testing and safety level, and they continue to do it to this day as they roll out booster after booster. I hope and pray that my tinnitus can be cured or at least will subside over time. Keep in touch and let me know if you have any questions or come across and relevant success stories. Take care.
@pepms: I'm posting this again as I still don't the hang of it between "Reply" and "Quote" and I wanted to make sure you saw it. Lol.
Thanks for the quick reply. I was in the midst of transitioning from Duloxetine (on for about 10+ months) to Lexapro. Thought I noticed a spike on day 7 of only 5mg of Lexapro, ran to the computer, found out SSRI can cause tinnitus, so I abruptly stopped taking any more SSRI. Stupid move since I had previously transitioned from Sertraline to Duloxetine 10+ months prior without any issues (had been on Sertraline for 20 years). I stopped Lexparo 10 months ago now. I don't recall any immediate withdrawal symptoms. they say that happens within days and only typically last a few weeks. So I don't know if it was stopping Lexapro or if the covid vaccine just keeps making things worse. I did not get any peripheral nerve-related issues. Just the original tinnitus spike (6 weeks after my booster) and heightened anxiety. Both have slowly gotten worse over the last year. I could also be dealing with a relapse vs. SSRI withdrawal, meaning I'm getting the same issues/symptom i had before starting the SSRI, only magnified. That would not include the tinnitus however, as I didn't have that beforehand.
I've put myself in a bad spot as I don't know the cause now (vaccine or SSRI withdrawal), but now I have tinnitus that is more noticeable all day, and my anxiety is through the roof. My therapist wants me to get back on Sertraline to help with my anxiety/panic disorder, but I am terrified of the thought that it could make my tinnitus significantly worse (I've done too much doom scrolling on the internet and read too many horror stories about SSRIs causing debilitating tinnitus for some people). In the end, I am not the same person i was a short 16 months ago, and I'm scared that I'm never getting back to who I was.
Based on your comment, it sounds like yours is related to the vaccine. Again, SSRI withdrawal reportedly starts pretty quickly after stopping the SSRI. Your symptoms appeared 2 months after. Did you taper off Lexapro or pretty stop cold turkey? In any event, these covid vaccines have devastated hundreds of thousands of people and nobody is ever going to be held accountable for it. We got lied to about the testing and safety level, and they continue to do it to this day as they roll out booster after booster. I hope and pray that my tinnitus can be cured or at least will subside over time. Keep in touch and let me know if you have any questions or come across and relevant success stories. Take care.
Hi, I’ve seen you posting a lot on this forum. I’m so sorry that you’re suffering from tinnitus and anxiety post vax. I have tinnitus in both ears, some hearing sensitivity in the right ear plus many other symptoms post vax. There are Facebook groups you can join and people might be more responsive on there and you might see some recovery stories. Although I’m not sure joining Facebook groups would help if your anxiety is through the roof. I was thinking you could maybe try a med for your anxiety but I can understand you not wanting to as it may make your tinnitus worse. Have you tried yoga, breathing exercises, maybe try taking a break from these forums. Try not to check Google. Although I know that’s difficult to do, it only makes anxiety worse. I’ve done that, and it only makes me feel worse so I try not to as much anymore.
As you say, so many are suffering as a result of the vaccine and we were lied to about the safety level.
How many of you think that the shear trauma of knowing to have done it, and consequent depression is giving more symptoms than the actual v?
@ksharky13 I am so sorry that you are suffering so much and really relate to your description of the 'high pitched electrical' tinitus on the left - Mine is exactly the same and has been more or less constant for over two years now since my first vx shot in Feb 2021... I don't experience anything on my right side however. It's taken me 2 years to work out that this symptom plus a host of others that came on 20 days after my first jab were vaccine related as my GP at the time sent me to a neurologist who gave me a different diagnosis which turne dout to be inconclusive after lots of scans etc... In that time my initial symptoms started to die down and all I had was mild tinitus with a blocked feeling on one side of my head that was put down to asaphalgic migraine... Then I caught Covid and everything exploded in my system and the Vx symptoms returned plus lots of others and have left me with a lovely cocktail of post covid and the original vaccine symptoms which is what I realise they are now after reading all the posts on this site. I'm just trying a long list of supplements and herbs and trying to destress as much as possible to help inflamation as this may be at th root - I'll also try HBO therapy as heard this is good at relieving tinitus. What have you tried?
I have been having a lot of luck with Diamine Oxidase DAO digestive enzyme for histamine!!!!!!!
Someone on MCAS Reddit kindly explained my results:
Sooo, your histamine levels are actually quite good. Your histamine/creatinine ratio is way off. Creatinine gets used as a marker for metabolism. So you've got a lot more histamine than your metabolic rate would suggest that you have. Even though your histamine is otherwise normal.
Last but not least, the diamine oxidase activity test is measuring how fast you are breaking down histamine. It's way too low. Which suggests your body isn't making enough of the enzyme that breaks down histamine, rather than your mast cells releasing too much. Which would fall into histamine intolerance, not MCAS or mastocytosis. If it were much lower, your diamine oxidase activity would strongly suggest histamine intolerance. You're more or less right between "yep that's histamine intolerance" and "well, it's almost certainly histamine intolerance."
How are you doing? I started taking DAO and it has been helping me A LOT!
Another update regarding our determinations with my wife having vaccine(mRNA) induced MCAS which lead to POTS.
We believe that further narrowed it down to diamine oxidase deficiency. We've been able to test this by introducing diamine oxidase blocking substances to her body and gauging the impacts. One of the things we used was very strong, longer steeped Matcha Green Tea. Within 15-60 minutes of consumption of green tea she exhibited 'extreme' symptoms that she had post mRNA vaccine. Increased heart rate, tinnitus, flushed feeling, anxiety, dizziness and a feeling that 'death' was imminent.
The surprising aspect of this is the GUT-BODY-BRAIN connection - the symptoms also manifested in pretty clear negative responses with systems ranging from her ears, throat, heart, circulatory and even neurological. Most of the system started to mimic her initial response to the second mRNA vaccine. I haven't established the link yet, but I am postulating that the vaccine may damage the diamine oxidase release systems in some people resulting in some form of histaminosis or enteral histaminosis that manifests in various systems that pertain to documented MCAS responses.
Since my wife's overall post mRNA vaccine systems seem to have a lot in common with other sufferers, I wonder if this is a key factor in this?
Furthermore, I am also considering that this COULD be what we're hearing regarding mRNA's and pregnancy issues. When a woman becomes pregnant her body naturally suppresses histamine responses so the baby can thrive without causing both histamine responses in the baby and the mother (allergic rejection). Localisation of mRNAs for diamine oxidase and histamine receptors H1 and H2, at the feto-maternal interface of human pregnancy. If the diamine oxidase is damaged (and it is related to mRNA) then this could also help explain some of these issues perhaps.
My theory is called 'Elevated histamine etiology via diamine oxidase impaired function post mRNA vaccination.'
I can find some viable evidence and papers this to support this hypothesis of mine;
https://www.preprints.org/manuscript/202203.0169/v1/download
Vaccines Associated Cardiac Adverse Events, Including SARS-Cov-2 Myocarditis, Elevated Histamine Etiology Hypothesis
https://pubmed.ncbi.nlm.nih.gov/35698641/
Elevated Histamine Etiology Model for Most Major Vaccine Associated Adverse Events including SARS-CoV-2 Spike Vaccines
How is your wife doing? I started taking DAO and it has been helping a lot.
I have also been taking food enzymes and Diamine Oxidase (DAO) and that has helped me eat foods which I could eat before without getting vertigo. Has anyone else had luck with these?
Yes, DAO is helping me. How are you?
@blueberries
Hi, thanks for checking for me.
I have not been in this forum for a while, sorry for my delayed reply.
I still have relapses and a month ago I got a brand new symptom with my relapse (POTS), never had this one before. This is so weird because the POTS also last only a few days to a week. And then it subsides. When I am out of relapse I feel almost normal (90-95%). But seems my relapses are more frequent now than they were before. I hope that the spring with lots of sun coming out will make me feel better again and relapses will disappear.
I was 100% last year for 5 months (march - august 2022). This is so weird, but as I can understand the body just keep producing the spike. Unfortunately, there are no tests in Estonia that shows how much spike protein is in the body. Also just a month ago I had blood done and I have low hemoglobin, ferritin, and RBC.
How are you?
Well I certainly related to your tinnitus and the blocked feeling on one ear/side of the head. Mine is on the right. I am 14 months into my tinnitus with a couple of semi-resolutions followed by a couple of spikes during that time. I am taking a combo of some vitamins (the standard Magnesium, D3, B-complex, Zinc) but nothing really seems to make any difference. It seems that the supplements that may be helpful also support the production of serotonin, which can cause tinnitus spikes, so those don't seem to be viable options. I had some mild/moderate tinnitus when I was younger from concerts and bars but I was able to resolve/habituate to it and it wasn't even an issue anymore for me until the vaccine. I'm looking into supplements for my anxiety, like lavender oil, passion flower, turmeric/curcumin, L-theanine, and others, but if they actually worked I would expect everyone would be taking them and ditching their prescription meds. What are you taking and has anything helped, either now or before you got covid, with your tinnitus?
@maxdc2 Well I only put 2 and 2 together recently after two years of being told by the medical professionals that my symptoms were to do with something else, but were never substantiated through their scans/testing and the more they scratched their heads and dismissed me the more the symptoms persisted until I found forums like this and realised it was VX induced all along, so knowing or not does not make the symptoms any less
@ksharky13 I am taking a range of things for a range of symptoms, not just the tinitus as I feel it's all linked. During the day I feel my visual distortions, tinitus, head pressure, slight facial and finger numbness and vertigo are part of the same subset, then at night the pounding racing heart joins in with spikes in my BP along with raised veins down my arms and legs and this feels like it's a cardio vascular thing going on... Sometimes my gut joins in with rumbles and squelching and I have burning sensations that occur around my heart, chest and torso with tingling spongey feelings in my feet. I don't know where to really focus, so I am trying to follow Dr Sayed Haider's protocol for VX injured/long haulers for now which I have posted a link to on my timeline.... I'm also seeing a traditional Chinese Meds person and reading up on what people have been doing here. So far I'm in exactly the same place, if not worse, but also think a lot of unavoidable stress in my life at the moment isn't helping and I need to get through this phase to totally know. I really wish you well - I am so moved by everyone's accounts on here and feel so furious at what's happened and the complete lack of most of the medical profession to support and work with us to find a way through all this suffering
@ksharky13 I am taking a range of things for a range of symptoms, not just the tinitus as I feel it's all linked. During the day I feel my visual distortions, tinitus, head pressure, slight facial and finger numbness and vertigo are part of the same subset, then at night the pounding racing heart joins in with spikes in my BP along with raised veins down my arms and legs and this feels like it's a cardio vascular thing going on... Sometimes my gut joins in with rumbles and squelching and I have burning sensations that occur around my heart, chest and torso with tingling spongey feelings in my feet. I don't know where to really focus, so I am trying to follow Dr Sayed Haider's protocol for VX injured/long haulers for now which I have posted a link to on my timeline.... I'm also seeing a traditional Chinese Meds person and reading up on what people have been doing here. So far I'm in exactly the same place, if not worse, but also think a lot of unavoidable stress in my life at the moment isn't helping and I need to get through this phase to totally know. I really wish you well - I am so moved by everyone's accounts on here and feel so furious at what's happened and the complete lack of most of the medical profession to support and work with us to find a way through all this suffering
Hi!
I just wanted to ask do you take just these supplements that are in Dr. Sayed Heider's protocol or did you brought the package and got also the prescription meds (IV and fluex etc.)? Do you feel the difference with the protocol?
@malo yeah i get that.. Same problem i have with docs.... But am trying to figure out if the more i read, the more i here about deaths, the more my brain assimilates having problems with consequent panic and anxiety...like if someone said to you, you got a placebo you're ok... But in your mind you had the worst one....
Anyway, where is this link of the protocol i can't find it...thanks